Our Final Journey
Section 8 - Children Seriously Ill
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Section 8 - Children Seriously Ill
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Section 8 
Children Who Are Seriously Ill
Applying Palliative Care Principles to Children  - This is the first in a four-part series concerning pediatric end-of-life issues. Other articles will focus on bereavement issues, ethics, advanced care planning, and research into pediatric end-of-life care.
 
Excellent information from The Medical Center of Central Georgia:
 
 
Child With A Long-Term Illness In English and Spanish - A ton of facts for families with links to many excellent resources to help with all problems in adolescents and teenagers.
 
Please click on the following for information on agencies who provide wishes for seriously ill children.
 
No words can describe what it is like to know that your child is not going to live to be an adult. You can comfort your child  during her lifetime, and heal with your family in the future. Seriously ill infants; Sudden causes of childhood death; Fatal chronic illnesses with intact intellect; Communication with children; Rare disorders and Disorders with impaired consciousness
Improving End Of Life Care For Children (PDF) 4 page document from Partnership for Caring offering  recommendations. 
 
Palliative Care for Children-American Academy of Pediatrics  - An integrated model for providing palliative care for children living with a life-threatening or terminal condition. Advice on the development of a palliative care plan and on working with parents and children is also provided.
 
Respite for Children with Disabilities and Chronic or Terminal Illnesses -  Respite programs provide temporary relief for families or caregivers. Additional family benefits include: allowing the family to engage in daily activities thus decreasing their feelings of isolation; providing the family with rest and relaxation; improving the family's ability to cope with daily responsibilities; maintaining the family's stability during crisis situations; helping preserve the family and more
 
Songs Of Love - A not-for-profit organization that creates personalized songs for chronically and terminally ill children and young adults. Songwriters, singers, and instrumentalists donate their talents to produce one-of-a-kind songs.
 
Standby Guardianship~Minors - The purpose of standby guardianship is to allow parents, who have chronic, debilitating, or terminal medical conditions or illnesses, to make care and custody plans for  their children now that will become effective at some future date, without having to legally transfer decision-making power.
 
When A Child Is Dying
Information from Finding Our Way an article that includes tips for parents for coping with the illness.
When A Child Is Dying - In English PDF 1 page
When A Child Is Dying - In Spanish Word DOC
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