This seems to describe different levels which might be beneficial
the various stages of HD.
Dysphagia Diet 5 Levels Difficulty In Swallowing Diet
sample menu's and provides the names and phone numbers for
manufacturer's for Commercial Thickening Agents
http://www.gicare.com/pated/edtgs07.htmLevel 1 - Puréed Foods
Foods in this
group are puréed to a smooth, mashed potato-like consistency. If necessary, the puréed foods can keep their shape with the
addition of a thickening agent. Meat is puréed to a smooth pasty consistency. Hot broth or hot gravy may be added to the puréed
meat, approximately 1 oz of liquid per 3 oz serving of meat.
CAUTION: If any food does not purée into a smooth
consistency, it may make eating or swallowing more difficult. For example, zucchini seeds sometimes do not blend well.
2 - Minced Foods
Foods in this group should be minced/chopped into very small pieces (1/8 inch). The flecks
of food are similar in size to sesame seeds.
Level 3 - Ground Foods
Foods in this group
should be ground/diced into 1/4-inch pieces. These pieces of food are similar in size to rice.
Level 4 -
Foods in this group should be chopped into 1/2-inch pieces. These pieces of food are similar
in size to uncooked elbow macaroni or croutons (small bread cubes).
Level 5 - Modified Regular Foods
in this group are soft, moist, regularly textured foods
Explanation of some Swallowing Programs
Self-Feeding and Swallowing Treatment Programs
your feeding and swallowing difficulties require therapy, your speech- language pathologist and occupational therapist will
work together to design and implement a program specific to your needs. Our goal is to help you reach your highest potential
for safe swallowing.
Several treatment approaches which may be included in your swallowing program are:
Motor Methods - These may include an exercise program for your chewing and swallowing muscles, as well as training
specific swallowing techniques.
Therapeutic Feeding - Small amounts of food are given to increase
the patient's ability to eventually tolerate a complete meal safely.
Posture - Recommendations are
made to assure that your head and body is positioned for safe and efficient swallowing.
- Equipment may be recommended to help you with positioning and feeding yourself. Some devices that may be recommended include
arm and lapboards, wheelchair cushions and adaptive cups and plates.
Changes in Eating Style - Changes
may be recommended by your swallowing therapists to assure safer swallowing. A written list of recommendations will be provided
and may include suggestions such as eating more slowly, swallowing more frequently, eating in a quiet area with few distractions,
eating only certain food consistencies, etc. The
reason for each recommendation will be explained to you by your swallowing
Food Preparation - Foods may be prepared in different ways to help you swallow safely.
Your foods may be pureed, blenderized or soft as ordered by your physician. Liquids also have different consistencies. Thicker
liquids may be easier at first to swallow than thinner liquids.
The following list gives examples of diet orders including foods you
receive at meals.
Physician's Diet Order - Foods may include:
- Cream soups, hot cereal, custard, puddings, thick frappe, and apricot nectar.
Thin Liquids with Thickener
- A powdered additive (cornstarch) may be used to thicken consistencies of thin liquids.
- Water, soda, fruit juices, hot beverages, milk, jello, melted ice cream.
Puree Diet - Meat, vegetables,
fruit will be pureed; mashed potato, whipped squash, applesauce, cream of wheat and oatmeal.
Basic Soft Diet
- All meats will be ground and vegetables will be blenderized. Soft chewables are allowed including canned fruits, scrambled
eggs, hot cereal, rolls, muffins, bread, pastas, casseroles, stews, quiche, pie, pancakes.
Advanced Soft Diet
- Soft cut meats and cooked vegetables, and canned fruit are allowed. All foods allowed for basic soft diet are also available
on advanced soft diet .
Dental Soft Diet - For patients who may have difficulty chewing. This diet
restricts fresh fruit, raw vegetables and foods containing nuts. Most other foods are included. (Some patients require foods
from more than one of the above categories.)
House/Regular Diet - Foods have no modifications of ingredients
=======Nutrition and Huntington's Disease, A Practical Guide.
http://www.huntington-assoc.com/form.html to order
Ellen van Broekhoven (dietician), Dirk Gaasbeek
(nursing home physician),
and Maartje Veninga (speech therapist) work in a nursing home with a special unit for patiens
suffering from Huntington's Disease. They discovered that there were no ready answers to questions in relation to, in particular,
nutrition for patiens suffering from this disease.
It is for this reason that they decided to pool their knowledge
and experience into a very practical guide and to supplement it with information from the skimpy scientific literature on
The book provides insight into the nutritional problems that exist among patients suffering from this
disease from the point of view of various disciplines. With that, it appears time and again that communication, i.e. to understand
what the patient wants and to which degree it is possible to discuss problems of vital importance. That is why communication
comes up extensively. Another question that is raised is whether or not tube feeding may be a good alternative if regular
feeding is no longer possible.
What makes this book so unique is that it serves as a comprehensive guide for medical
practitioners and paramedics.
In this recommendation, Prof. Dr. H.P.H Kremer, neurologist, says: "I warmly recommend
this book to those who, either in their work or in the family, have to deal with patients suffering from Huntington's Disease.
This is the first practical publication in this field and I hope it will inform and inspire many people."
toll-free HELPLINE 1-800-638-8255
Consumer Brochures Examine Swallowing Disorders in Children and Adults http://www.asha.org/press/swallowing_brochure.cfm(ROCKVILLE, MD-May 1, 2001) Two new brochures focusing on swallowing
are available free of charge to consumers from the American
Speech-Language-Hearing Association (ASHA).
and Swallowing Problems in Children" and "Swallowing Problems
in Adults" discuss some of the causes and symptoms of swallowing
disorders, or dysphagia, as well as how swallowing problems can lead to poor nutrition, dehydration, or pneumonia in both
children and adults.
The brochures also examine the different phases at which problems
can occur in the swallowing process, from difficulty chewing or moving food or liquid from the mouth to the throat, to problems
in squeezing food through the esophagus.
In addition, the brochures address the role of the speech-language
pathologist in evaluating and treating dysphagia.
Consumers can receive the brochures by calling ASHA's toll-free HELPLINE
1-800-638-8255. Consumers may also view the brochures online, as well as obtain referrals to qualified speech-language
pathologists and access additional information on speech, language and hearing development and disorders, by visiting
the ASHA website at www.asha.orgASHA is the national professional, scientific, and credentialing
association for more than 99,000 audiologists, speech-language pathologists, and speech, language, and hearing scientists.