Not only do families living with HD face the daily challenges of the physical and psychological changes HD causes, but too many of them suffer great financial losses because of Huntington's Disease.
In most HD families, the person with Huntington's Disease was the primary or major contributor to their financial stability. Losing their job and insurance benefits has many HD families facing the loss of their homes and having to depend on Government or charitable contributions just to be able to care for their loved ones at home.
In some cases, loving couples are forced into a divorce in order to receive the small stipend of benefits to allow them to care for their HD partner at home.
The Hunt-Dis Convention Scholarship Fund was established by the members of Hunt-Dis in 1999 to help those members who, due to these financial hardships, are unable to attend a Huntington's Disease Society of America's (HDSA) national convention.
The experience of attending a HDSA National Convention is invaluable to any family living with Huntington's Disease. It is at a national convention where they can hear, firsthand, the latest in research directly from all of the wonderful scientists and researchers who attend the convention.
The sessions are designed to help everyone from the caregiver, to those at-risk, to the person with Huntington's Disease and to our young adults and children living with HD, who have it or are at-risk for it.
Lastly, the comradeship and lasting friendships that everyone will make at a national convention is so heart-warming it just cannot be experienced to the same degree on line. It is, truly, a very rewarding experience for anyone who is able to attend.