Huntington Disease Support Information
Connecticut

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Connecticut HDSA Chapter
President:   Joy Woolley
Email:         None Listed
Phone:        (800) 840-9907
Address:     PO Box 719
                  Southington, CT 06489
Website:     None Listed

HD Centers

THE HUNTINGTON'S DISEASE PROGRAM
THE UNIVERSITY OF CONNECTICUT HEALTH CENTER
Hartford Hospital's Conklin Building
Seymour Street
Hartford, CT
(see website for driving directions)
 
APPOINTMENTS:
Phone:   860-545-2637
Hours:   8:30 am - 5:00 pm
Days:    Monday - Friday
On Call 24 hour emergency access

FEES:
There is no charge to Connecticut residents/families for these services.
 
SERVICES:
The center provides care and treatment to HD patients and their families. Persons eligible include Connecticut residents who have, or are at risk for, Huntington's Disease.  We will provide ongoing education to professionals and organizations in the State of Connecticut regarding HD and help individuals and their families network with available resources in the state.  The HD Program will also work with the local Huntington's Disease Society of America (HDSA) chapter as well as the national organization to support the informational and educational mission of these organizations.  Finally, the program will be involved with basic neuroscience research to elucidate the cause and treatment of Huntington's Disease.
 
STAFF:
James D. Duffy, M.D., Neuropsychiatrist, Medical Director

A.Wallace Deckel, Ph.D., Neuropsychologist, Scientific Director
Phone: 860  679-4154

Bonnie L. Hennig, M.S.W., L.C.S.W., Clinical Social Worker
Phone: 860-545-2637

Mary Jane Fitzpatrick, A.P.R.N., Nurse Clinician
Andrea Gainey, M.S., C.G.C., Certified Genetic Counselor
Alice Iacobucci, B.S., Administrative Assistant, Community Liaison
 
Physicians-HD Experienced
Need your input
 
Genetic Testing Centers
The School of Medicine
University of Connecticut Health Center
Conklin Building, Suite 401
80 Seymour Street
Hartford, CT 06102
Contact: Mary Jane Fitzpatrick
Phone: (860) 545-2637
Fax:

Yale University School of Medicine
Department of Genetics
333 Cedar Avenue
PO Box 208005
New Haven, CT 06520
Contact: Miriam DiMaio, MSW
Phone: (203) 785-2661
Fax: (203) 785-7673

Special Notices
 
 
 

Support Group Meetings

Hartford County
Sorry, this group no longer meets
Contact: Marianne Amato
Email:
Phone: (860) 289-9571
 
New London County
When:     4th  Tuesday of each month
Time:      6:30 to 7:30 p.m.
Where:   Mariner Healthcare Center of Bridebrook
              Niantic
Contact:  Laura Kokoska
Email:
Phone:    (860) 691-1499
 
Rhode Island Group accessible to Connecticut families
When:     1st Tuesday of each month
Time:      7:00 to 9:00 p.m.
Where
     Rhode Island Hospital
address:
Contact:  Kim Emond
Email:
Phone:    (401) 231-7271
 
Mass. Group accessible to Connecticut families
When:     3rd  Wednesday of each month
Time:       6:30 to 8:00 p.m.
Where:    Bay State Medical Center
Address
City
Contact:
   Dr. Amy Fowler
Email:
Phone:     (413) 732-7419
 
Nursing Homes
Need your input on HD experienced facilities
 
State Long Term Care Ombudsman Program
Connecticut State Long-Term Care Ombudsman
Department on Aging
25 Sigourney Street - 10th Floor
Hartford, CT 06106-5033
Phone: (860) 424-5200 ext. 5221
FAX:    (860) 424-4966