Huntington's Disease Support Information
Exercise and Fitness


Index~HD Search
Section 1 General Information
Section 2 HD Specific
Section 3 State Info
Section 4 Misc
Hunt-Dis Scholarship Fund
Advanced Stages of Huntington's Disease
Caregivers Handbook
Exercise and Fitness
As the disease progresses, the individual with HD will decline in health and lead a more sedentary lifestyle. Although the disease process can't be altered, a routine exercise programme can help to address all areas of decline and help him become stronger, improve balance and posture,
and feel more in control of his body.
With aerobic activity such as pedalling a stationary bike, it is possible to improve breathing, which in turn helps with breath control for talking and eating.
Improvement in deep breathing can help him maintain his ability to cough effectively, which in turn helps prevent choking and aspiration pneumonia. People
who regularly exercise are able to clear secretions more efficiently when they do have colds or pneumonia.

Sample Exercise Plan

All exercises should be done slowly, five to ten times each.

Arm Exercises:

1.. Lie on your back with your legs straight. Stretch your arms overhead, hold the position momentarily, then relax.
2.. Lie on your back with your legs straight and arms at your side. Make a fist, strongly straighten your arm, raise it about 30 degrees, hold it, open your fingers, then slowly lower your arm to the floor.
Breathing Exercises:

a.. Close your mouth. Inhale through your nose while expanding your
chest and abdomen.
 b.. Hold for a few seconds. Exhale through the mouth as completely
as possible.
c.. Do it again; this time exhale through your nose and make the
sound "mmm".
d.. Now again, exhaling through your mouth while making the sound
e.. Again and cough two times.
 f.. Again and this time swallow after you exhale.

Trunk Exercises:

a.. Lie on your back with your knees bent and feet flat on the floor. Lift your hips up, hold the position, lower yourself down slowly, then relax.
b.. Roll onto your stomach, then push yourself up on your hands and knees. Raise one arm forward, reach out and hold the position.
c.. Now lower your arm and raise the opposite leg up as straight as possible. Hold the leg up, then lower slowly. Repeat it with the other arm and leg.
d.. Begin on your hands and knees, then lower your hips so that your shoulders, hips and knees are in a straight line.
 e.. Now lift your feet off the ground, bend your elbows, and lower your upper body to the floor and back up in a modified push up.
Gross Motor and Balance Exercises:

1.. Sit on the floor with your legs crossed. Try to keep your kneesas low as possible. Now reverse your legs.
2.. Sit on the floor with your back and legs straight. Reach foryour toes. Hold that position. Repeat.
3.. Standing with your feet six inches apart, shrug your shouldersup toward your ears, hold that position, then relax.
4.. Walk forward with one foot in front of the other as if you were walking on a straight line. Now try it going backwards.
 5.. Stand on one foot. Count the number of seconds you can do it. Now do the other foot.

      Nutshell Case Study:
      Physiotherapy Helps!
Tom reluctantly came to a nursing home because he was no longer able to live alone and had no family members who could help him. He looked depressed, unkempt, and undernourished. He kept to himself
as much as possible, avoiding staff and fellow residents as best he could.
His depression was treated with medication and counselling, and in
several weeks his mood, appearance,
and nutrition were all improved.
Every day a "coach" from the physio-therapy staff visited Tom and chatted briefly with him in his room. When the coach learned that Tom, though not particularly athletic, enjoyed bicycle riding, she invited him to the physio-therapy "gymnasium" to ride the stationary bike.
After three more weeks of the coach's daily visits Tom rode the bike in the gym. After two visits to the gym, he agreed to a physiotherapy evaluation.

He had no significant chorea but his gait was affected by difficulty with balance. His poor posture, due to weak upper back muscles, and his lack of endurance compromised his pulmonary status.
After eight weeks of"workouts" in the gym, Tom achieved his therapeutic goals as well as his personal goal to ride the stationary bike for twenty minutes without short-ness of breath. He smiled, talked with fellow residents, and began to participate in other therapeutic groups. He was a changed man!
Formally discharged from physiotherapy, he continued his daily workout in a group exercise programme. Three months later his strength, balance, gait, and respiratory status were all improved.