Virginia HDSA Chapter
Washington Metro Area Chapter
President: Murrey Jacobson
Phone: (703) 204-4634
Fax: (703) 573-3047
Address: 8303 Arlington Blvd., Suite 210
Fairfax, VA 22031-2900
Website: Unable to open
Help Line: 703-323-1403
Mission: Serve HD familes throughout metro DC area, Virginia and parts of Maryland offering two support groups a month. We host a variety of fundraisers and are looking to increase our for ways to better improve our outreach, our services and to help contribute to research. We always need more volunteers. So please call if at all interested!
Newspaper: Published quarterly, not on line
HDSA Center of Excellence
The University of Virginia
500 Ray C. Hunt Drive
Charlottesville, VA, 22903
Toll free hotline: 1-866-290-4528
Contact: Pat Allinson M.S., C.G.C. Genetic Counselor
HD Clinic Schedule:
A full-day, multidisciplinary clinic for HD is open once a month.
Services are available from Neurology, Psychiatry, Psychology, PT/OT, Speech, Social Work, and Genetics at this time. It's usually on the 4th Monday, but the date occasionally changes so please call first.
They also offer a predictive testing program for at-risk individuals, and also does some HSG-sponsored clinical trials.
Dr. Madaline Harrison
Need your input
When: Last Thursday of most months
Time: 7 pm - 9 pm
Contact: Chris Lederman
Phone: 703-698-7450 Ext. 375
When: Date Changes As Needed, please call.
4424 Montgomery Avenue
Contact: Sara Lieberman~Social Worker
Participants: Individuals At-Risk
The Center of Excellence holds support group
meetings on the day of our clinics with
separate meetings for patients and caregivers.
For more info or to get on the mailing list
of announcements for the meetings contact the
Toll-free helpline 1-866-290-4528
New Discussion Group
When: Call for Dates
Time: 2:00 PM
Health South Rehabilitation Hospital
Fitzhugh & Libbie Ave.
Contact: Miriam Hirsch
Need your input
State Long-Term Care Ombudsman
Virginia State Long Term Care Ombudsman
Virginia Association of
Area Agencies on Aging
530 East Main Street, Suite 428
Richmond, Virginia 23219
Phone: (804) 644-2923
FAX: (804) 644-5640