Huntington Disease Support Information
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Western PA HDSA Chapter
President: Pam Averman
Email:        
pamaverman@aol.com
Phone:     (888) 779-HDSA
Fax:        (703) 832-8123
Alt. Tel.:   724-833-8160
Address:  PO Box 4102
               Pittsburgh, PA 15202
Website "Linking Care With Cure"http://www.hdsawpa.org/
Newsletter: Stepping Stones
OnLine Support Forum For Question on HD:

Toll Free Hotline: 1-888-779-4372

Mission:
Toll free helpline answered by Social Worker. Other services include In-Service trainings for Nursing Homes


Social Worker: Peggy Polito, MSW
Email
pegpolito@aol.com

Family Services: Betsy Gettig, MS, CGC
Email
bgettig@helix.hgen.pitt.edu
 
Caregiver & Support Groups: Len Stinebaugh
 
Family Advocacy:  Ken Shepard Etzel, RN
 
HD CLINIC 
University of Pittsburgh Institute for
Neurological Disorders
810 Kaufmann Medical Building
Pittsburgh, PA
 
Contact:   Elizabeth Gettig
               Clinic Co-Director
Phone:     412/624-3018
 
Hours:  1 - 4 p.m.
Days:   2nd Wednesday of each month
 
Services:  diagnosis; medication for movement disorders;
cognitive and psychiatric evaluation and treatment; physical,
occupational and speech therapy; caregiver and social services, 
nutritional counseling and clinical trials to HD patients.
 
Affiliated with the Huntington's Study Group
 
Genetic Testing
Facilities-Other:
 
Allegheny General Hospital
Department of Medical Genetics
11th Floor, South Tower
320 East North Avenue
Pittsburgh, PA 15212
Contact: Melissa Bourdius, MS
Phone: (412) 359-6388 or (800) 520-6433
Fax: (412) 359-6488

VA Medical Center
7180 Highland Drive
Pittsburgh, PA 15206-1297
Contact: Carol Schramke, PhD, Clinical Psychologist
Phone: (412) 365-5195 or (412) 365-5335
Fax:

Allegheny Hospital (psychiatry)
1427 Vine Street
Mail Stop 950
Philadelphia, PA 19102-1192
Contact: Melissa Bourdius, MS
Phone: (800) 520-6433
Fax: (412) 359-6388

University of Pennsylvania Medical Center
Clinical Research Building, Room 452A
415 Curie Blvd.
Philadelphia, PA 19104-6145
Contact: Lynn Godmilow, MSW
Phone: (215) 573-9161 or (800) 669-2172
Fax: (215) 573-7760
 
Physicians/Specialists
HD Experienced

Center for Neurobehavioral Health
Regency Executive Offices 
2173 Embassy Drive 
Suite 366
Lancaster, PA 17603 
Contact:   Dr. Bob Stein
               Psychologist in private practice
Phone:     (717) 392-6061
 
Fax:         (717) 431-2014
Email:       czbobb@aol.com
Phone:
Business Hours: 8:30 - 5:00, Monday - Friday
With occasional evening and Saturday appointments

Special Notices
 
 
Support Groups Meeting
Separate support groups held for persons with HD,
persons At-Risk for HD, and Caregivers

Meetings held in Greensburg and in Beaver,
call for details

Western PA
Family and Friends Meeting
When:    1st Thursday each  month
Time:     7-9 PM
Where:  Civic Building
             200 Ross Street 
             Downtown Pittsburgh
Contact: Peggy Polito, MSW
Email:    pegpolito@aol.com

Phone:   1-888-779-4372
Participants: All interested in HD, Caregivers,
Persons At-Risk, Persons with HD 
 
Sayre, PA
When:   4th Wednesday each month
Time:    7-8:30 pm
Where:  Behavioral Science dining room 
            Robert Packer Hospital
            Address:
            Sayre, PA.
Contact: toll free 1-888-4GUTHRIE (1-888-448-8474)
Participants: A support group for patients and families of 
patients who have have a neurologic disease that causea
a long-term disability.
 
Nursing Homes
HD Experienced
Need your input
 
State Long-Term Care Ombudsman
Pennsylvania
State Long-Term Care Ombudsman
Department of Aging
555 Walnut Street, 5th Floor
P.O. Box 1089
Harrisburg, PA 17101
Phone:  (717) 783-7247
FAX:      (717) 783-3382