Huntington Disease Support Information
Hawaii

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No HDSA Chapter.  Please input any additions to Hawaii in the "Guestbook" for inclusion here or see Start An HD Support Group

Medical Facilities/Genetic Councelors
The Queens Comprehensive Genetics Center
1380 Lusitana Street 3rd floor
Honolul Hawaii 96813
Website: www.queens.org
ATTN: Deborah Schidt,MS.,R.N.
Email:
Phone 808-585-5096/808-537-7633
 
Queens an excellent genetic counseling
program and that would be a great place
to start a support group if one is not
already in place.
 
Genetic Testing Facilities:
Kapi'olani Medical Center
Genetics Department
1319 Punahou Street, #540
Honolulu, HI 96826
Contact: Tammy Stumbaugh, MS, Genetic Counselor
Phone: (808) 983- 8559
Fax: (808) 983-6081

Kaiser Permanente Medical Group
1010 Pensacola Street
Honolulu, HI 96814
Contact: Dwight K.C. Yim, MD
Phone: (808) 597-2481
Fax: (808) 597-2498
 
Physician-HD Experienced
Ravi Pillai, M.D
134 Puuhonu Way,1st Floor
Hilo, Hawaii  96720 .
Email: 
dvierra@vmhawaii.com
Phone: 808-961-4492
Office Hours:
 
Legal Aid

Kauai: Seniors Law Program   246-0573

Maui, Moloka`i, Lanai:
Legal Aid Society  242-0724

Oahu: UH Elder Law Program 
956-6544 www.hawaii.edu/uhelp 

Big Island: Legal Aid Society
Hilo   934-0678
Kona 329-8331

Kokua Mau Continuous Care

State wide partnership to help families dealing
with end of life issues
Phone:      (800) 474-2113 or  (800) 474-2113
Email:       info@kokua-mau.org
 
 
Nursing Homes
 
State Long Term Care Ombudsman Program
Hawaii-State LTC Care Ombudsman
Executive Office on Aging
Office of the Governor
250 South Hotel Street, Suite 107
Honolulu, HI 96813-2831
Phone:  (808) 586-0100
FAX:      (808) 586-0185

Special Notices:
July 20, 2002-Saturday
Caregiver's Conference
9:00 a.m.- 3:30 p.m.
Sheraton Waikiki Resort
Contact: 523-4545 for more information and registration materials.
Presentations on community resources, managing medications, tips and tools for home care, and legal and financial issues are examples of sessions to be offered. Limited financial aid for registration fees and substitute caregivers while family attends the conference will be available.
 
Support Groups (non HD)
 
MAKE TODAY COUNT
2370 Nuuanu Avenue, Honolulu, HI 96817
Phone: 595-7500
Eligibility: General public
Services: Group meets twice monthly for a general meeting, followed by three
simultaneous support group meetings: for grievers, for care givers, and for patients.
 
When:   1st and 3rd Saturday of every month
Time:    10:00 a.m.-12:00 noon
Where:  Nuuanu Congregational Church,
            2651 Pali Highway.
 
When:   Wednesdays
Time:    3:00-4:00 p.m.
Where:  5th Patient's Lounge between wings
             B and C Tripler AMC
Fee: Free.
 
HUGS
3636 Kilauea Avenue
Honolulu, HI 96816
Contact: Steve Crocker
Phone:   732-4846
Eligibility: Seriously ill children and their families.
Services: A wide range of support services for seriously ill children and
their families, plus bereavement support to these families.
Fee: Free.
 
Hawaii Hospices

On the Island of Kauai

  • Kauai Hospice
    P.O. Box 3286
    Lihui, HI 96766
    PH: (808) 245-7277
    FX: (808) 245-5006

On the Island of Oahu

  • Hospice Hawaii
    860 Iwilei Rd.
    Honolulu, HI 96817
    PH: (808) 924-9255
    FX: (808) 922-9161
    www.hospicehawaii.org
  • St. Francis Hospice
    24 Puiwa Rd.
    Honolulu, HI 96817
    PH: (808) 595-7566
    FX: (808) 595-6996
    www.sfhs-hi.org

On the Island of Molokai

  • Hospice Hawaii - Molokai
    P.O. Box 408
    Kaunakakai, HI 96748
    PH: (808) 553-4310
    FX: (808) 553-3775

On the Island of Maui

  • Hospice Maui
    400 Mahalani St.
    Wailuku, HI 96793
    PH: (808) 244-5555
    FX: (808) 244-5557

On the Island of Hawaii

  • Hospice of Kona
    74-5620A Palani Rd.
    Kailua-Kona, HI 96740
    PH: (808) 334-0334
    FX: (808) 334-0365
  • North Hawaii Hospice
    P.O. Box 1236
    Kamuela, HI 96743
    PH: (808) 885-7547
    FX: (808) 885-5592
  • Hospice of Hilo
    1101 Waianuenue Ave.
    Hilo, HI 96720
    PH: (808) 969-1733
    FX: (808) 969-4863