Huntington's Disease Support Information

Alabama

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 Click on map for yellow pages.
Alabama State Flag
Alabama
HDSA Chapter
President: 
Email: 
Address: 
 
Phone: 
Toll Free
Fax:
Website: 
 
Kathy Hayman
5750 Picketts Lane
Pinson, AL. 35126
1-205-325-3877 or
1-205-856-2464
 
None
 
Special Notices
Check HDSA's HD National Events Calendar for current events in this area.
Support Groups
Mobile
When: 
Time:
Where:
 
 
 
 
Contact:
Phone: 
Email:
Forum:
Call for information
 
Providence Hospital
Diabetes Center,
PMOP Suite D-36
6801 Airport Boulevard
Mobile, AL. 36685
Cindy Nelson
1-251-633-1984
 
Caregivers
 
 
Trussville & Guntersville
When: 
Time:
Where:
 
Contact:
Phone: 
Email:
Forum:
3rd Sunday of each month
2:30 - 4:00 PM
First Methodist Church
Trussville, Al.
Kathy Hayman
1-205-856-2464
Participants: All 
 (rotates monthly)
Huntsville
When: 
Time:
Where:
 
Contact:
Phone: 
Email:
4th Friday of each month
12:30 - 4:30
UAB Medical Center Complex
Huntsville
Kathy Hayman
1-205-856-2464
Center of Excellence & Genetic Testing
HDSA Center of Excellence
The University of Alabama Birmingham
HD Clinic at the Children’s Hospital of Alabama
1600 7th Avenue South, CBH 314
Birmingham, AL, 35233-1711
Clinic Location:
The Children's Hospital of Birmingham
Clinic #8
Website:  Clinic #8 [use the below phone #s]
 
Center Director:   Leon Dure, M.D
Email:                       ldure@peds.uab.edu
 
Social Worker: Lisa Snyder
Telephone:         858-622-5800
Email:                  
lsnyder@ucsd.edu
Appointments:
Contact:
Phone:
Toll Free
Fax:
Email:
Donna Pendley
1- 205-996-7850
1-800 309-HUNT
1-205-996-7867
Area Covered: Besides Alabama, the referral base also includes portions of Mississippi, Florida and Tennessee.
 
Hours of Operation: 4th Friday of every month
Services:  Clinic services include speech, physical, and occupational therapies: nutritional, neurological and social services. The Center puts forth a great effort to ensure the best care for our patients. They  now provide noon conferences where patients, caregivers and their families are invited to have lunch and participate in discussion and lecture from guest speakers that discuss issues of interest related to HD.
Genetic Testing
 
Department of Genetics
University of Alabama at Birmingham
720 20th street South
Kaul Building - Suite 241
Birmingham, AL 35294-0011
Contact:
Phone:
Fax:
Email:
Judy Franklin, RN, MSN       
1-205-934-4983
1-205-975-6389
 
 
Other Physicians - HD Experienced
Need your input
State Resources
 
NOTE: The majority of documents available from the State, below, are in PDF format.
 
Abuse
    -Elder Abuse Hotline 1-800-458-7214

 
ACL/Nursing Homes
Alabama Nursing Home Association-Consumer Information:
    -Help Numbers
 
Form 154 - Agreement between Nursing Home and Medicaid Patient (.pdf)
Form 204/205 - Application for Elderly & Disabled (nursing home, ICF/MR, Home and Community Based Waiver, and SSI-Related)
 
Caregiving/Respite
Alabama Lifespan Respite Resource Network-is a project of UCP of Huntsville and Tennessee Valley, funded by a grant from the Alabama Council for Developmental Disabilities.
2505 Inverness Lane
Birmingham, Alabama 35242
(205) 991-0927  (866) RESTALA
Email:
alabamarespite@aol.com 
    -Find respite in your area [AL]
    -Respite Information Advocacy and 
     information sites about respite for
     caregivers.
    -Alabama Disability -Support Groups,
     agencies, and resources.
 
A sliding fee scale is used to determine the clients shared cost for certain services.  Cost sharing judgments are made based on the care recipients income. If the care recipients income falls below the national poverty level, the client is not expected to pay anything for the services.   In any case, contributions (donations) are accepted by the Area Agency on Aging for all programs. Call Area Agency on Aging (1-800-AGE-LINE) and make an appointment with the Alabama Cares Coordinator, who will explain the process.
 
    -Application to CMS for waiver [living at 
     home]
       Community Care vs Nursing Home Care
 
Dental
 
Directories/Find
 
Disabilities
Access Alabama Home Ownership Program- makes mortgages more affordable for low- to moderate-income home buyers who have disabilities or family members with disabilities.
Phone (205) 823-3818 or (800) 433-8002
Equipment Loan Program -Alabama STAR program provides short-term loans of assistive technology to persons with disabilities who wish to try out different types of devices. This program also provides equipment loans to rehabilitation professionals so they can better assess and evaluate persons with disabilities using technology.
 
 

Financial
Food Stamps-provides monthly benefits to eligible low income households to help buy the food. The eligibility rules and benefit amounts, based on income and household size. Applications for the Food Stamp Program are available in all county DHR offices.
Alabama Department of Human Resources
Food Stamp Division
50 North Ripley Street
Montgomery Alabama   36130
Public Assistance is made up of two major programs which serve low income familiesa financial assistance program and a medical assistance program: The Family Asssistance Program and the Medicaid for Low Income Families Program [below]. These programs provide temporary cash assistance to eligible families. Public Assistance FAQs
 
Family Assistance Program
 
ACLF/Nursing Homes
 
HD Experienced
Need your input
 
Alabama State Long-Term Care Ombudsman
COMMISSION ON AGING
RSA Plaza, Suite 470
770 Washington Avenue
Montgomery, AL 36130
Phone:  (334) 242-5743
FAX:      (334) 242-5594
 
Hospice/End of Life
Alabama-Alabamians For Better Care at Life's End - 1801 14th Avenue South
Birmingham, AL 35205-4931
Phone:      205-975-9815
Fax:           205-975-8173
Toll Free:  1-877-594-5050
Contact:    Kay Johnson, RN, MPH,-Project Director
Email:
  
kayjohns@uab.edu
Form 165 - Medicaid Hospice Election and Physician's Certification
 
Living Will-The Living Will form, A Gift For Your Family :Advance Directive for Healthcare, Living Will and Healthcare Proxy
Guide for Local Organizers-Planning Ahead for Your Future Health Needs
 
Insurance
Alabama HIPAA [Health Insurance Portability and Accountability Act]
 
    -Forms
    -Limited Medicaid Programs [no drugs] 
    -Medicaid FAQS
Form 211 - Application for Medicare Savings for Qualified Beneficiaries
 
Medicaid for Low Income Families Program provides medical assistance for low income families with a dependent child under age 18
 
Medicare: State Health Insurance Assistance Program -Important Information for Medicare Beneficiaries
    -Introduction
 
Veterans
 
Vital Statistics
Miscellaneous State Support