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Huntington's Disease Support Information

Pennsylvania~Western

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Index~HD Search

 
Click on map for yellow pages
Pennsylvania State Flag Pennsylvania
Western~HDSA Chapter
President:     Pam Averman
Email:            pamaverman@aol.com
Hotline:         1-888-779-4372
Fax:                (703) 832-8123
Alt. Tel.:         (724) 833-8160
Address:       PO Box 4102
                        Pittsburgh, PA 15202
Website      "Linking Care With Cure"
                  http://www.hdsawpa.org/
Newsletter: Stepping Stones
OnLine Support Forum For Question on HD:
http://www.hdsawpa.org/forum/forum.cgi

Mission:
Toll free helpline answered by Social Worker.
Other services include In-Service trainings
for Nursing Homes

Social Worker:
Peggy Polito, MSW
Email: 
pegpolito@aol.com

Family Services:
Betsy Gettig, MS, CGC
Email: 
bgettig@helix.hgen.pitt.edu
 
Caregiver & Support Groups:
Len Stinebaugh
 
Family Advocacy: 
Ken Shepard Etzel, RN
 
HD CLINIC 
 
University of Pittsburgh Institute
for Neurological Disorders
810 Kaufmann Medical Building
Pittsburgh, PA
Contact:  Elizabeth Gettig
                 Clinic Co-Director
Phone:     412/624-3018
Email:      bgettig@HELIX.HGEN.PITT.EDU
 
Hours:  1 - 4 p.m.
Days:    2nd Wednesday of  month
 
Services:  diagnosis; medication for
movement disorders; cognitive and
psychiatric evaluation and treatment;
physical, occupational and speech
therapy; caregiver and social services, 
nutritional counseling and clinical trials
to HD patients.
 
Affiliated with the Huntington's Study
Group
 
Genetic Testing
Facilities-Other:
 
Allegheny General Hospital
Department of Medical Genetics
11th Floor, South Tower
320 East North Avenue
Pittsburgh, PA 15212
Contact:  Melissa Bourdius, MS
Phone:     (412) 359-6388
or             (800) 520-6433
Fax:         (412) 359-6488

VA Medical Center
7180 Highland Drive
Pittsburgh, PA 15206-1297
Contact:  Carol Schramke, PhD
                 Clinical Psychologist
Phone:     (412) 365-5195
or             (412) 365-5335
Fax:

Allegheny Hospital (psychiatry)
1427 Vine Street
Mail Stop 950
Philadelphia, PA 19102-1192
Contact: Melissa Bourdius, MS
Phone:    (800) 520-6433
Fax:        (412) 359-6388

University of Pennsylvania
Medical Center
Clinical Research Building,
Room 452A
415 Curie Blvd.
Philadelphia, PA 19104-6145
Contact:  Lynn Godmilow, MSW
Phone:     (215) 573-9161
or             (800) 669-2172
Fax:         (215) 573-7760
 
Physicians/Specialists
HD Experienced

Center for Neurobehavioral Health
Regency Executive Offices 
2173 Embassy Drive 
Suite 366
Lancaster, PA 17603 
Contact:   Dr. Bob Stein
                  Psychologist in private practice
Phone:      (717) 392-6061
 
Fax:          (717) 431-2014
Email:       czbobb@aol.com
Phone:
Business Hours: 8:30 - 5:00
                           Monday - Friday
With occasional evening and Saturday
appointments

 
Special Notices
 
Support Groups
Meeting
Separate support groups held for
persons with HD, persons At-Risk
for HD, and Caregivers

Meetings held in Greensburg and
in Beaver, call for details

Western PA
Family and Friends Meeting
When:       1st Thursday of month
Time:        7-9 PM
Where:     Civic Building
                  200 Ross Street 
                 Downtown Pittsburgh
Contact:   Peggy Polito, MSW
Email:      pegpolito@aol.com

Phone:      1-888-779-4372
Participants: All interested in HD,
Caregivers, Persons At-Risk,
Persons with HD 
 
Sayre, PA
When:      4th Wednesday of month
Time:       7-8:30 pm
Where:     Behavioral Science
                dining room 
                Robert Packer Hospital
Address:
                Sayre, PA.
Contact: 1-888-448-8474 toll free
Participants: A support group for patients
and families of  patients who have have
a neurologic disease that causea a
long-term disability.
 
State Resources
 
Pennsylvania Homepage
 
Check out what is available
in your state services:
Family Services-Map by State
 
Nursing Homes
HD Experienced
Need your input
 
State Long-Term Care
Ombudsman
Pennsylvania
State Long-Term Care
Department of Aging
555 Walnut Street, 5th Floor
P.O. Box 1089
Harrisburg, PA 17101
Phone:  (717) 783-7247
FAX:      (717) 783-3382