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Huntington's Disease Support Information

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Washington State Flag Washington
Northwest HDSA Chapter
President:         Steve Weil
Email:                
nwhdsa@yahoo.com
Phone:               206-464-9598
Address:            PO Box
33345
                            Seattle, WA 98133
Helpline:            1-888-264-4372
or                        206-464-9598
Request Info:   nwhdsa@yahoo.com
 
Serving: Alaska, Idaho, Montana, Oregon,
and Washington. Click on those states for support group meeting information.  
 
Social Worker:     
Catherine Kendall MSW
Email:  ckendall@u.washington.edu

Mission: To help individuals and families affected by HD through support and services through:
  • Public Education
  • Nursing Home Staff Educ. & Consultation
  • Helpline --Information & Support
  • Individual & Family Counseling
  • Newsletter
  • Funds for Research
  • Area Support Groups
  • HD Information & Consultation for Medical Specialists 

    Chapter meets bi-monthly 10:00 am-noon,at Seattle's Northwest Hospital in dining room 3.

    Internet Support Group
    The purpose of the group is to provide support
    and information to individuals with HD, family members and friends, and health professionals and is hosted by our social worker, Catherine Kendall, MSW. This free group will meet weekly. You must pre-register for the group a day before the first session you attend. Pre-register by sending an email to Catherine at ckendall@u.washington.edu or call 1-877-264-HDSA.
     
    For step-by-step instructions, go here and click on the computer link next to the announcement of the HD group.

    Center of Excellence

    HDSA Center of Excellence 
    The University of Washington
    Medical Center Neurological Clinic
    1959 NE Pacific Street
    Seattle, Wa, 98195,
    Contact:  Robin Bennett
    Email
    Phone:     (206) 616-2135
    Fax:          (206) 616-2414

  • Thomas D. Bird, M.D.
    Prof of Neurology & Medicine (Genetics) Email:   tomnroz@u.washington.edu
    Dr. Bird's Bio

    Webpage: UoW Neurology Clinic

    University of Washington
    Box 358280
    VA Medical Center (GRECC)
    1660 South Columbian Way
    Seattle, Washington 98108
    Phone:  (206) 764-2308
    Fax:      (206) 764-2569

    Genetic Testing

    University of Washington
    Medical Genetics
    1959 NE Pacific Street
    Box 357720
    Seattle, WA 98195-7720
    Contact:   Robin Bennett, MS
    Phone:     (206) 598-3000
    Fax:          (206) 616-4196

    Physician-HD ExperiencedOther Cities

    Need your input

    Special Notices

    See Chapter Events & News

    Support Group Meetings
    City Not Known
    When:       3rd Wednesday of month
    Time:
    Where:     Location varies
    Contact:   Marti Bradley
    Phone:     (907) 258-5665
     
    Mulkiteo
    When:      2nd Thursday of month
    Time:        7 PM to 8:30 PM
    Where:   
    Mukilteo Fire Station #1 
                      5th and Lincoln
    Phone:     1-888-264-4372
     
    Seattle Area~Washington
     
    Caregivers
    Monthly
    When:     2nd & 4th Wednesday
    Time:       9-10:30 AM
    Where:   Greenwood Senior
                     Activity Center
                     525 North 85th St
    Phone:    1-888-264-4372

    All Support
    When:     2nd  Monday monthly
    Time:       6:30 to 8:00 p.m
    Where:   Swedish Medical Center
                     Ballard, WA
    Phone:    1-888-264-4372
    Participants: Support for People
    at-risk and those diagnosed with HD; spouses and supportive others welcome.
     
    Spokane
    When:    Wednesday nights.
    Time:
    Where:   Inland Northwest
                     Genetics Clinic
                     604 West 6th Ave.
                     Spokane Wa, 99204
    Phone:    509-473-7115
    or    1-800-945-7115
     
    Tacoma
    When:      call for details
    Time:        7:00 to 8:30pm
    Where:     St. Joseph-St. Johns
                       Episcopal Church
                       Intersection 112th St 
                       & Old Military Road S.W.
                       Lakewood, WA.
    Contact:   Jane Gidney
    Phone:      253-588-1233 
     
    Vancouver
    When:     3rd Thursday monthly
    Time:        6:30 to 8:30 PM
    Where:    Northside Baptist Church 
                      5201 NE Minnehaha St.
    (63rd)
    Phone:     1-888-264-4372
     
    Yakima
    When:     3rd Saturday monthly
                     except July & Aug. 
    Time:       Call
    Where:   Women's Health Center 
    next to     Yakima Memorial Hospital
    Address: 
    Cross streets: 
     Tieton Drive & S. 28th Ave.
    Phone:     1-888-264-4372
     
     
     
    Nursing Homes
    HD Experienced
     
    Riverside Nursing Home
    1305 Alexander
    Centralia, WA.
    Contact:  Ruth Tremblay
    E-mail:   
    Tremblay_family@msn.com
    Phone:     360-736-2294
     
    State Long-Term Care Ombudsman
    Washington State Long-Term Care Ombudsman
    South King County
    Multi-Services Center
    1200 South 336th Street
    P.O. Box 23699
    Federal Way, WA 98093
    Phone:  (253) 838-6810
    FAX:     (253)  874-7831
     
    State Resources
     
    Washington  Homepage