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Huntington's Disease Support Information

Wisconsin

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Wisconsin State Flag  Wisconsin
HDSA Chapter 
President: 
Email: 
Phone: 
Address: 
 
Website: 
Hotline
Toll Free
 
Counselor"
Email:
Newsletter
Sean Lanphier 
1-414-257-9499
2041 North 107th 
Wauwatosa, WI 53226
HDSA Chapter Website
 
877-330-2699
Milwaukee: 414-257-9499
Jean Morack
 
HD Support Group Meetings
 
Middleton
When: 
Time:
Where:
 
 
 
Contact: 
Phone: 
Email: 
2nd Saturday of month
10:30 - Noon
Attic Angels Place
8301 Old Sauk Road
(near Junction Road), Middleton. 
Jean Morack
(877) 330-2699
 
Menominee & Marinette
When: 
Time:
Where:
 
 
Contact: 
Phone: 
Contact:
Email: 
Last Saturday of month
1PM [except December]
Ev. Covenant Church
1123 13th St.,
Menominee, MI 49858
Christine Salewsky
[906] 863-6051 or
Greg
 
Milwaukee
When: 
Time:
Where:
 
 
 
Contact: 
Phone: 
Email: 
3rd Saturday of month
10:30-Noon

Froedtert Hospital 
Conf.Rm E, West Clinics
2900 W.Milwaukee Ave.
Milwaukee, WI
Jean Morack
 (877) 330-2699
 
Steven's Point
When: 
Time:
Where:
 
 
Contact: 
Phone:  
As Requested Basis 10:30-noon normally
Communities Industries 
3116 Algoma Street 
Steven's Point, WI.
Sharon Spencer
(715) 345-1451
 
Special Notices
The Wisconsin is one of the best around!  Please take time to visit their website for all of the wonderful information they have for families living with HD.
 
Chapter Calendar of Events  or to see what meetings, fund raisers, etc. are happening or are planned in your neck of the woods check out  HDSA's HD National Events Calendar
 
HDSA Wisc. E-Mail Discussion Group  The Wisconsin HDSA Chapter an E-Mail Discussion Group [<-click]which is a private, members-only e-mail discussion group. 
 
Non HD Support Groups
For Barron County, Eau Claire, Green Bay, Oshkosh-Fox Valley, Wausau, WI and Lake Zurick, Ill. Check ->Help In Wisconsin
 
Caregivers- Madison
When: 
Time:
Where:
 
 
Phone: 
2nd Tuesday of month
7 PM - 8:30 PM
Monona Coalition of the Aging
4142 Monona
(608) 223-3100
 
 
When: 
Time:
Where:
 
Phone: 
Parkinson's Disease Support
3rd Thurs. of month
7 PM
Asbury Methodist Ch.
6101 University Ave.
(608) 257-4656
 
Physicians
HD Experienced
Following is some of the information available from the Wisconsin HDSA Chapter Website

 

Neurologists with HD Experience  

Milwaukee

Karen A. Blindauer, MD

Assistant Professor of Neurology

Medical College of Wisconsin

Dept of Radiology

9200 W. Wisconsin Avenue

Milwaukee, WI  53226

For an appointment, call:

414-805-3666 or 1-800-272-3666

Website:  Karen A. Blindauer, MD

 

Norman Reynolds, MD

Chief of Neurology Services

Zablocki VA Medical Center

Associate Professor of Neurology

Medical College of Wisconsin

Dept of Radiology

9200 W. Wisconsin Avenue

Milwaukee, WI  53226

For an appointment, call:

414-805-3666 or 1-800-272-3666

Website: Norman Reynolds, MD

 Medical
Neighboring state resources

 

Illinois

Chicago, Illinois

Kathleen Shannon, M.D.

Rush-Presbyterian

St. Luke's Medical Center

 

Iowa

Iowa City, Iowa

Dr. Henry Paulson, MD

HD Center of Excellence

 

Minnesota

Minneapolis, Minnesota

MarthaNance, MD

HD Clinic Director

 

Genetic Testing Resources

Genetic Testing Facilities
 
VA Hospital Neurology Service
5000 West National Avenue
Milwaukee, WI 53295
Contact:   Dr. Norman Reynolds
Phone:     (414) 384-2000 x 2950

Marshfield Clinic
1000 North Oak Avenue
Marshfield, WI 54449
Contact:   Mahala Earnhart, RN
Phone:      (800) 782-8581 x 93133
or               (715) 389-3133
Fax:           (715) 387-5727
Website:   Marshfield Clinic
 
Comprehensive Genetic Services(CompGene)

3720 N. 124th St.

Milwaukee, WI  53222

Contact: Jamie Israel, MS

Phone: 877-COMPGENE or 414-393-1000

Nursing Homes-HD Experienced
 
State Long-Term Care Ombudsman
Wisconsin State Long-Term Care
Board on Aging and Long-Term Care
214 North Hamilton Street
Madison, WI 53703-2118
Phone:  (608) 266-8945 Ext. DIR
FAX:     (608) 261-6570
Hospices
HospiceCare Inc
Madison, WI
Contact:  Susan Phillips
Phone:    (608) 276-4660 
Website:  Madison Hospice
 State Resources
Check out the Chapter's Help in Wisconsin
pages first!
 
 
Adult Programs
Information for Wisconsin facility/program management and staff (select facility type below):
Family Caregiver Support -To learn about the Family Caregiver Support Program in your area, contact your County or Tribal Aging Unit.
 
ALF/Nursing Homes/Long Term Care
Community Based Residential Facility Check List to use when evaluating prospective facilities for placing family members.
Family Care is a long-term care program being piloted in nine Wisconsin counties. As a comprehensive and flexible long-term care service system, Family Care strives to foster people's independence and quality of life, while recognizing the need for interdependence and support.
Provider Information about Wisconsin Assisted Living Facilities (includes descriptions, statistics, directories and labels, etc.)
Wisconsin Nursing Home Directory site for basic information on FDDs and nursing homes
The Wisconsin Partnership Program (WPP) is an integrated health and long term care program for frail elderly and people with disabilities. The Partnership Program consists of several community-based organizations located in different geographical regions of Wisconsin.
 
Guides
Centers for Medicare and Medicaid Services (CMS) - Guide to Choosing a Nursing Home
National Citizens' Coalition for Nursing Home Reform (NCCNHR) - A Consumer Guide to Choosing a Nursing Home
 
Disabilities
Disability Programs Index from the Wisconsin Department of Health and Family Services. Includes links to information on programs and resources for Wisconsin residents affected by disabilities.
Wisconsin Speech-Language Pathology and Audiology: Dedicated to helping people with communicative disorders
 
Easter Seals Society of Wisconsin: Easter Seals' mission is to increase independence, maximize opportunities, minimize barriers and enhance the quality of life for people with disabilities.
Wisconsin Coalition for Advocacy  is a private, nonprofit agency that provides protection and advocacy for people with disabilities throughout Wisconsin.
Wisconsin Council on Developmental Disabilities plans and advocates for support for people with developmental disabilities in Wisconsin.
 
Estate Planning
Informed Consent - Wisconsin advance directives and other information
Living Wills
 
Financial Assistance
 
Health Care Benefits Programs
Medicaid (MA, Med.Assistance,Title 19)
Care Needs (CSHCN) Program
 
Insurance
Insurance Wisconsin Consumer Guide [in PDF format] for Getting and Keeping Health Insurance - A guide. The Guide summarize your protections, and so may not answer all of your questions. It is not a substitute for legal, accounting, or other professional advice.
 
How to find and choose doctors, dentists, hospitals, nursing homes, and other types of health care providers.
Who to contact if you have complaints about a doctor, hospital, other health care provider, or insurer.
Medicaid (MA, Medical Assistance, Title 19)
How to choose among your insurance options, and what to do if you have little or no insurance
 

Social Security and Medicare

Social Security and its medical and hospital-ization insurance program, Medicare, can be very important programs to some with HD. Care must be taken when applying for Social Security disability to provide the details needed to make a proper determination of disability on the first review.  If such applications are incomplete or do not contain the right supporting documents, you may be turned down and then be forced into a lengthy appeal process.  Click here for more detail on Social Security and Medicare

 

Transportation

 
Misc. State Support
 
Guardianship Programs
A listing of guardianship programs in each state
 
 
 
Patient Advocate Foundation  listings by State: Ensuring equal access to health care to all Americans. Find out what is available in your community.  Information available on (to mention only a few from the entire list): Children,  Children's Health Insurance Programs, Community Referral, Disability Services, Financial Assistance, Food Stamps, Health Care, Insurance, Legal, Medication/Drug Assistance and Special Needs
 
Private Fuel Funds
There are non-federal dollars available from local fuel funds, which frequently are contributed by your neighbors when they pay their utility bill. Ask the state energy assistance office for the local phone number of the fuel fund nearest your residence.
 
 
State Resources-information or links related to Assistive Technologies, Disability Resources, Domestic Violence Legal Information, Family Legal Guides, Family Services, Guardianship Programs, Health & Human Services Quick Locators, Legal Assistance, Legal Forms - State & Federal, Long-Term Care Ombudsman Programs, Medicaid, Medicaid Waiver Programs, Social Security Offices, Summer Camp Programs, United Way~Local Support and more.
 
United Way-Search By Zip Code will provide you with information on the United Way in your area.  If they have a website, they usually have a section called "How Do I Get Help?"  Click on it and look for their "Quick Guide" (To Human Services) for help in your area. You can print it out.  Most guides are in PDF format and are a great resources to put on your refrigerator!
 Other Resources
Applying For Government Benefits
Dental-Even if you cannot pay for dental care there are ways in which to receive help. Contact the American Dental Association (ADA) (1-800-621-8099) to learn about dentists who assist individuals on fixed incomes by offering their services at reduced fees.
 
 
 
 
GovBenefits.gov is a screening tool provided by the federal government to help you find government benefits that you may be eligible to receive.
 
Insurance Florida Consumer Guide for Getting and Keeping Health Insurance. The Guide summarize your protections, and so may not answer all of your questions. It is not a substitute for legal, accounting, or other professional advice.