In a state-to-state comparison, Indiana has
the highest number of contacts on the roster. More than 12% of the number of contacts from the US are Hoosiers! The larger
the number of participants in the roster, the greater force the HD population builds.
Increasing awareness of this horrible disease will help further our efforts for funding and programs to assist
those who are affected by HD. Therefore it is extremely important, for the future strength of our effort and for future programs,
that you participate in the roster.
All of the information which you provide remains within the roster itself. No individuals information will be
disclosed. The role of the roster is to accumulate the information to benefit the population. This is done by combining all
of the information and not disclosing individual information.
The National Huntington's Disease Research Roster publishes its statistics on a regular basis. Interested individuals
can contact HDSA Indiana Chapter for recent information.