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Kansas
PHYSICIANS
HD Experienced
Need your input
GENETIC TESTING FACILITES
University of Kansas Medical Center 3901 Rainbow Boulevard Kansas City, KS 66160-7314 Contact: Carolyn S. Gray, RN
Neurology Nurse Clinician Phone: (913) 588-6983 Fax: (913) 588-6965
Hereditary Neurological Disease Center 654 North Woodchuck Wichita, KS 67212-3555 Contact: Gregory Suter Phone: (888) 232-4632
or (316) 721-9250 Fax: (316) 722-2710
OTHER RESOURCES
Kansas LIFE Project 1901 University Wichita, Kansas 67213-3325 Phone: 316.263.6380 Fax: 316.263.6542 fax HELPLINE 888-202-5433 (tollfree) 888-202-LIFE Email: contact@lifeproject.org
Misc. State Support
Misc. Other Support
STATE RESOURCES
Hotline Numbers
Client Assistance Program 3640 Southwest Topeka Boulevard, Suite 150 Topeka, Kansas 66611 (785) 266-8193 or 1-800-432-2326 (Kansas residents only) Fax: (785) 266-8574
DISABILITIES
ELDERLY SERVICES
Aging Services in Kansas
Alzheimer's
HOME & COMMUNITY BASED SERVICES
INSURANCE
PD Waiver serves individuals age 16 and over who meet the criteria for nursing facility placement due to their physical disability, who are determined disabled by social security standards and or Medicaid eligible.
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SPECIAL EVENTS
SUPPORT GROUP MEETINGS
When: 3rd Tuesday of month
Time: 7:00 P.M. Location: Trinity Lutheran Church 63rd and Nall Shawnee Mission Parkway and Nall Shawnee Mission, KS.
Contact: Debbie Peek Email: Phone: 816-455 4143 Participants: All assoicated with HD
When: To Be Determined, Call for info. Lathrop Health Care Center
Contact: Margaret Email: Phone: 816-740-4258 Participants: All associated with HD
When: 2nd Thursday of month
Time: 7:00 P.M. Location: Southgate Village 4101 SW Martin Drive Topeka, KS
Contact: LeVone Email: Phone: 785-235 3282 Participants: All associated with HD
This info is from 9/99. Add note to Guestbook if not current
Donald J. Allen Memorial Huntington's Disease Clinic Association 2721 Boulevard Plaza Wichita,KS 67211 USA Toll free: 1-800-759-0135 Phone: 316-684-3443 Year started: 1987 Information for: affected individuals
families of affected individuals the public or media professionals (e.g., clinicians, teachers)
Support: peer support professional counseling crisis intervention, medical referrals, referrals for non-medical services Services: peer counseling speakers advocacy Research: registry of affected individuals; linking researchers and families
ACLF/NURSING HOMES
HD Experienced
Need your input
Kansas State LTC Ombudsman Office of the State Long-Term Care Ombudsman 610 SW 10th Street, 2nd Floor Topeka, KS 66612-1616 Phone: 785-296-3017 Fax: 785-296-3916
STATE RESOURCES continued
MENTAL HEALTH
SOCIAL WELFARE
SERVICES
(for low income families)
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