It can be hard when someone you love has HD. There can be
lots of changes to cope with. Because of the brain cells that are dying, people with HD can change a lot as they become
more unwell.
They may not be able to do things with you the way they used to. They may sometimes get angry with you and be rude
to you.
Try to remember that it is the illness that makes them do this........... IT IS NOT YOUR FAULT or
theirs. They still love you but cannot show it as well because of the changes in their brain.
Other people might not understand the changes in the person with HD. You can explain it's because they aren't
well. Maybe you could show them this website and help them understand HD better.
It is important for you to talk to people about how you feel. People in your family, friends and teachers need
to know what's going on so they can try and help you. It's good to have someone to talk to!
Feelings
Sometimes it can feel unfair that you have to deal with all this HD stuff when you just want to be like your friends.
It can be hard to cope with all the changes HD can bring. You might feel:
Angry
It's
okay to be angry sometimes. Just try to let your anger out in a safe way - punch a pillow, scream at the top of your
voice or throw a ball as hard as you can against a wall - whatever works for you, so long as you don't hurt yourself or anyone
else. It feels good to let it out.
