someone at risk
Thinking of marrying someone at risk can pose problems. If you have never seen
or even heard of HD, you may try to ignore the risks and possible consequences.
Some of you will feel so frightened that
you break off the relationship almost immediately without going further into the
Learning the real facts and weighing up the risks and what they mean to you, against the quality of the relationship,
is the only way a proper decision can be taken.
If you understand the implications and can work out plans for the possibility that
your partner both may and may not get HD, then your marriage can be happy and a sucess whetever happens.
After careful consideration, however, you may feel that you do not want to risk
having to care for an ill person, or you may particularly want children without having to put them at risk too.
It is difficult to reject someone for reasons that are just a possibility in the
future, but unless you are convinced that you can live with the thought or the fact of HD, then it is better and kinder in
the long run to decide against the marriage early on.
Whether or not to plan children
Perhaps the greatest problem that
young people at risk have to face is the issue of having children. If you do not want to have the sort of predictive test
which was discussed in Chapter 2, the decision has to be taken in the dark.
Some people feel strongly that they should not burden a future generation with the risk of HD
and therefore decide not to have any children. Others feel equally strongly that they want to lead as normal a life as possible,
which includes having children, and that the risk is worth taking.
We should perhaps remind ourselves that not every couple who plans a child will conceive. Overall
about 1 couple in 10 cannot conceive and this is nothing to do with HD.