What Is The ONE Thing In HD That You Are Most Afraid To Discuss With A Parent?
I don't know really, we talk about all aspects of it pretty openly. But I guess you could say telling her she is getting
worse or is gonna get worse is the hardest.
How Open Are Your Parents In Discussing HD With You And How Does This Make You Feel?
Completely open. Relieved.
What Things Have You Done To Help You Live With Being At Risk For HD?
Nothing. I don't worry that. It might not ever happen, and I am not gonna allow to myself to worry over something that
might never happen or if it does might not happen till way later in life. I will deal with that day when/if it happens.
If You've Tested HD Positive, What Are Three of The Most Important Things You
Feel Would Help You? Are You Getting That Support?
N/A never been tested and I am not gonna be tested.
What Type of Support Is There Available In Your Area For Young People Living With HD?
Would You recommend This Support To Others? If So, Please list Contacts.
Well, I haven't really connected with anyone local at this time. At one time when I was caring for my aunt, I did go to
some support groups. But to be honest they were too far away, and I stopped going.
Would You Be Willing To Communicate With Someone Your Age Dealing With These Things?
If so, please show how to contact you.
Yes. I am not sure I would be much help, but would gladly be a friend to someone who needed it. After all we can all use
a few good friends, and I know it helps to know that you not are alone.