HD Support Information 
URL: clix.to/HDSupportInfo

Please complete and email information back to jemiller@tampabay.rr.com.  If the 
following information is not already included on your State page, on the HD Support Information website then it is needed!
Thank you!
Jean

Need Your Help Providing Information On Following: 

HD HELPLINE & SERVICES 

HELPLINE 
Telephone Number: 
Contact Person: 
Email: 
Hours: 
Services: 
SOCIAL SERVICES
Social Services Offered: 
Contact: 
Phone 
Fax 
Email 
Hours: 
FAMILY SERVICES
Family Services Offered: (if none, suggested local contact used by chapter)
Example: supports a range of medical, mental health, genetic and social service 
programs 
Contact:
Phone
Fax
Email 
EDUCATION & OUTREACH
Education & Outreach Services: (if none, suggested local contact used by chapter)
Example: We provide in-service training to facilities that serve or plan to serve HD 
clients. For more information or to schedule a training at your facility contact the 
Outreach Coordinator 
Contact: 
Phone 
Fax 
Email 
INFORMATION ON HD
Example: Information is available to anyone who would like to learn about HD. 
Print and video materials are available. To request information: 
Contact:
Phone
Fax
Email 
UNIQUE FAMILY PROGRAMS 
Example HD Camp 
Participants: 
For more information contact: 

MEDICAL
OTHER PROFESSIONALS - Experienced in HD:

MOVEMENT DISORDER CLINICS-HD Experienced 

THERAPIST
Speech
Contact
Address
Phone
Fax
Email
Physical
Contact
Address
Phone
Fax
Email 

GENETIC TESTING CENTERS FOR HD 
For HD genetic testing facility contacts,  prenatal or in-virtro testing, contact one 
of the above clinics. 

HOME & OUTSIDE CARE 

NURSING HOMES/ASSISTED LIVING FACILITIES
The following nursing homes or assisted living facilities have experience in the care
of Huntington's Disease patients (please list) 
Name 
Address 
Contact 
Phone Number 
Fax Number 
Email 
Website 
Known Number of HD Patients: 

OMBUDSMAN 
To report poor nursing home conditions, contact (FILL IN) State Health Department 
Hotline at _______________(24-hours a day). 

ADULT DAY CARE 
The following facilities have experience in the care of Huntington's Disease patients 
(please list) 
Name 
Address 
Contact 
Phone Number 
Email 
Website 

HOSPICE 
Ideally we'd like to see a Hospice HD Guidebook for care of HD patients. In the interim, please provide any information you have on the Hospice in your city. A personal note on whether you had difficulty in obtaining their services, and why, might serve as a lesson to other families reading the Guestbook. 

STATE HELP 
Besides Medicare or Medcaid does your state offer any programs which might help 
HD families either with doctors, prescription drugs or equipment? If so, please list 
who and how to contact them. 
Agency 
Address 
Contact 
Phone Number 
Email 
Website 

OTHER
(identify organizations in your state which offer support to HD families) 
For example, Illnois can indicate that they have a Broda chair available for loan, etc.