What Is The NYA:
At the Huntington's Disease of America's annual convention in Orlando, June 2000, a group of young children and young adults, with HDSA's support and encouragement, established the HD National Youth Association.
These young people's Vision Statement is that theirs will be "The LAST Generation of Huntington's Disease!" Each year the members of NYA elect peers as their Team Leaders who serve in that function for the fiscal convention year.
NYA members either have Huntington's Disease, are at-risk for the disease, or have a parent or sibling with the disease or are a friend to HD. Their ages range from 9years to 30 years.
There are also four adults supporting the NYA; two with experience as a parent of a child/children with HD, one with experience as a caregiver and with children at-risk, and one from the HDSA.
The support, love and encouragement that they share with each other is phenomenal and would melt anyone's heart! If you are a young person living with HD you are encouraged to try and attend an HDSA National Convention to join the other NYA members in the special events that they plan and for the special sessions the HDSA has put on the convention agenda for young people.
JOIN THE NYA:
If you are a young person living with Huntington's Disease and would like to join the NYA, you can obtain an application from this website HDSA National Youth Alliance (NYA)
What Is The Silent Auction?
The first annual NYA Silent Auction was a great success at the national convention in San Diego, June 2001. Donated items were displayed before the banquet, giving everyone a chance to bid on items. Over $2,000 was raised!!!
At the 2002 HDSA National convention in Columbus, Ohio the NYA raised over $1,500.00. A beautiful, handmade, quilt was donated by Mollie Ressa who was responsible for assembling the Huntington's Disease Memorial Quilt
At the 2003 HDSA convention in Houston, through some generous doubling of the amounts the NYA raised, their total contributions were over $12,000.00!!
Many familes, friends and stores donated unique and wonderful gifts making the 2003 NYA Silent Auction a fun-filled part of the convention.
This event has become an annual event for the HDSA's National Convention. Monies raised by the NYA are typically given to HD Research under matching fund programs.
Please check either the NYA website, or this website, for updates to NYA projects, including how YOU can help support the Silent Auction by donating something of value to the NYA to auction off.
How You Can Help
If you'd like more information about making a donation to the Silent Auction now, please either email Shana Martin or Jean Miller
If you'd like to solicit stores in your area to help this worthy cause through the donation of merchandise or gift certificates please contact Jean Miller for an HDSA letter recognizing the NYA. Or, fill out and send this NYA Auction~Auto-Responder