Awareness |
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HD Awareness Tri-fold Handout
I Have Huntington's Disease card
Info on HD For Temporary Caregivers
Jim Pollard's excellent brochure providing an overview on an HD patient for Certified Nursing Assistants (CNA's) which can also be used to provide temporary caregivers at home, at day care centers, etc.
Appointments
Appointment Information Use this form to keep track of your loved ones medical appointments*
Appointment Information-Q&A's
Therapy Calendar-Questions & Recommendations
Weekly Rehab Calendar A form to help you and your loved one track his or her rehabilitation goals and successes*
At Home Helpful Forms
Caregivers Document Organizer A form that will help you identify, locate, and organize the important documents your will need as a primary caregiver*
Caregivers Journal Some tips for setting up a notebook to keep track of your caregiving situation*
Use copies of this form to monitor daily changes and help with communication among care providers working in shifts*
(in PDF format) Cardiopulmonary
Resuscitation (CPR) includes a group of
procedures used when the heart stops beating.
Assessment Instrument Excellent links to home modifications and checklists from the
National Resource Center on Supportive Housing and Home Modifications
In depth instructions to leave for temporary caregivers.
Personal Records A form to help you keep track of your loved ones personal records and other important information*
Sample Filing System One possible method for setting up a home filing system. You should adopt a system that fits your needs and those of your family*
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Outside The Home
Assisted Living-Questions To Ask
Social Services Q&A Checklist
Assisted Living: Quality Of Life A checklist of questions dealing with socializing, meals, safety, and other issues to consider when you and your loved one visit an assisted living facility*
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you and your loved one visit an assisted living facility.
you need to find out about any special care services offered by the facility.
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Estate Planning
What Is Estate Planning Document
What Is A Conservatorship-Guardianship?
yet available for judging quality end-of-life care, these are some questions you can ask to evaluate care. These can be used to help select providers and are also helpful if a loved one is dying and you are uncertain of the quality of care they are receiving. Use this checklist to talk to members of the health care team.
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