Every person has their different view on Huntington's Disease so I won't
try to explain it for them.
But what I will do is explain how having a parent with HD affects my life and maybe somebody can relate to
how I feel.
I first found out about Huntington's around one and a half years ago. My parents decided to tell my brother,
sister and myself that dad had the disease. It wasn't long before both my younger siblings were in tears.
Me, I didn't know what to feel. At times I still don't.
To put myself straight on what I was dealing with, I checked
the medical dictionary. It defines Huntington's as "random twitching
and general clumsiness, mood swings are inevitable, there is
difficulty making decisions and memory loss". It also states
that sufferers "commonly live 15 to 30 years and that no cure was available.
Right there and then I knew what it meant to me and how
I felt. It meant that this disease would be tearing my family
apart. It meant I'd be losing my dad.
How did I feel? I felt like Eddie Jordan seeing his only
chance of a podium finish being dashed as Trulli is knocked
off the circuit by Coulthard angry, upset and the question of
why? comes to mind. As you probably have guessed, I'm a Formula
One fanatic
