Speaking Out ~ Living With HD
Index
Home
|
Index
|
Guestbook/Tell A Friend
Speaking Out~Living With HD
Index
About NYA
Information on the HD National Youth Alliance.How to join, how you can help.
NYA YahooDiscussion Group
Instructions on how to sign on to the Yahoo NYA message board for members.
Message For Young
People
The importance of communicating your feelings to your parents
Answers To Difficult Questions
NYA'ers responses to the questions shown on the home page. You may also print out this document with all of the responses:
Living With HD - Young Adults Answer Difficult Questions
Amy~At-Risk
Lindsay-At Risk
Julie-At Risk
Joe - At Risk
Mary At-Risk
Michelle-At Risk
Rhonda~At-Risk
Shana-At Risk
Stacy-JHD
At Risk? Some Things To Consider
:
Facing the reality - a balanced view
Learning that you are at risk
Some Common Reactions
Marrying & Having Children
Caring For A Parent & Other Problems
Emotional Problems & Your Child
Advocating For Your Child
Helping Your Child
What Kids Are Saying
Ashling
~ A 15 year old girl at risk
Jenny's Story
~ A 17 year old girl at risk
Julie's Story
~ A 17 year old girl at risk
Sarah's Essay~
The Courage To Go On
A 14 year old girl at-risk
HD & Me
: A Guide For Young People written by Alison Gray.
What is HD?
Tell me what Huntington's Disease is and
Tell me how you get Huntington's Disease
Living with HD
It can be hard when someone you love has HD. There can be lots of changes to cope with.
Your Feelings Matter!
When to Talk to Parents or Adults
About Your Feelings
Why Should You Talk to Parents or Adults About Your Feelings?
Talking To Children
All of my resources can now be found here
HD Articles & Books For Children
or some here:
Best Way to Discuss HD with Young Children
Children of Parents With HD
Talking To Children About HD
In The Family
Talking To Children Resources
Additional Resources
Topics That Might Help
Links
Learning Links
Craft & Fun Links
Got Talent?
HD Links
Guestbook/Tell A Friend
Sign the Guestbook or if you know of a site that might be of interest to other young people living with HD, post it here. Also a place to email a friend to tell them about
Speaking Out-Living With HD
.