Joe was 27 years old when he responded to this questionaire. He
is married and has one child at list. They live in Oklahoma.
What Issues Do You Deal With Living With HD That Is The Hardest For You?
The hardest thing that I am dealing with would have to be watching my brother who lives with me. As you know he is at risk and showing many signs.
Has
Living With HD Affected Your Education? (Absenteeism/Lack of Concentration/etc.)
Not really I had plenty of chances to finish
high school and go farther I just made bad choices.
What
Things Do You Do To Help In The Care of an HD parent?
Do
You Feel This Is Fair?
Well I did a lot to help care for my father
before he passed away. From taking him to the bathroom to feeding
him, really just about everything I helped with.
Was it fair? I don't think there is much that is fair when it comes to HD, but it did not bother me one bit to help. We were able to keep him at home
until he passed.
How
Does Helping With Your Parent's Care Affect You Socially?
Personally?
Financially?
Well it affected me socially because although I was old enough to do what I wanted, I had to be there for my dad so
that took most
of my time. Personally it was just hard seeing my father get worse and worse. Financially I did ok.
What Advice Would You Give to A Young Person Living in A Volatile
HD Family Environment?
N/A
