Our Final Journey
Turning Points in Illness and Care
Tools For Viewing
Let's Talk About It
Section 1 - Assistive Technology
Section 2 - Divorce Issues
Section 3 - Drugs/Medications
Section 4 - Checklist, Documents, Forms
Section 5 - Employment Issues
Section 6 - Estate Planning
Advanced Directives & DNR's
Section 7 - Caregiver Resources
Patient Quality of Life: Should Doctors Guess It?
Incontinence Care
Section 8 - Children Seriously Ill
Children of The Chronically Ill
Siblings of Children with Special Health Needs
Guides To Disability Issues
End Stage Hospital & Home Care
Child With A Serious Illness
Individual Family Service Plan (IFSP)
Camps-Special Needs Children
Children's Wish Foundations
Section 9 - For Kids
Section 10 - Family Resources
Section 11 - Patient Resources
Section 12 - Financial Aids
Section 13 - Insurance
Long Term Care Insurance
Section 14 - Legal
Section 15 - Long Term Care
Section 16 - Symptom Support
Section 17 - End of Life
Section 18 - Funeral Planning
Section 19 - After Death Occurs
Hospice FAQS
Symptom Support
Behavoir Strategies
Ill Person's Feelings
Caregiving & Family Harmony
Caregiver Grief ~Article
End of Life
Comforting A Dying Person
End Stages of Life
When Someone Dies
Funeral Planning
Bereavement Fares and Discounts
Common Bonds of Caregiving
Tips For Helping Your Friend
About me
Free Greeting Cards
Estate Planning Definition
Living & Other Trusts
Wills & Beneficiaries
State Laws On Wills
Conservator~Guardianship Definitions
Insurance Issues
Avoiding Probate
Prescription Drug Program I
Prescription Drug Cards II
Disability & SSDI Insurance Questions
Long Term Care Insurance
Employment Issues
Divorce Issues
State Laws-Statutes
Making A Personal File
Emergency Info Form
Emergency Planning
Health Care Surrogate
Forms, Checklist
Family Resources
Patient Resources
Rehab Tools-Assistive Tech. Categories
State Map-Ombudsman Program
NH Your Rights-Fact Sheets
Nursing Homes and Your Rights - Factsheets for some seriously ill or their caregivers.
Long Term Care-Facts & Rights
State & Federal Resources
Drug Resources
Grief & Sorrow
When death nears - Signs and Symptoms
Some Facts About Artificial Nutrition and Hydration
Things To Consider-Artificial Nutrition and Hydration
Turning Points in Illness and Care

People who suffer from chronic degenerative diseases can reach a point where they feel that the benefits of treatment are no longer worth the pain or
If you believe you have reached such a turning point, it is important to tell your physician what your are feeling.

While it is possible that the turning point from a treatable illness to a terminal one has been reached, it is also possible that the difficult medical treatments have made the situation seem worse than it actually is.

Before taking any action you should be sure that you have considered all the
  • If you have reached such a point, you may wish to change the kind of
    treatment you are receiving, perhaps entering a hospice program.  This is avery important decision that you should discuss with your family andphysician.
  • If you have a chronic progressive illness, there is usually not a specific
    time when it becomes terminal.  It just slowly gets worse and you may reach a point where you simply don't want to receive any more treatment.
  • Dealing with a serious illness can make you depressed, possibly to the
    point where you feel that life is not worth living anymore.  Before acting on these feelings, however, check with a doctor to find out if you have clinical depression - a psychological condition that can often be helped. Medications or counseling may set you back on a more hopeful track.

  • How am I responding to medical treatment?
  • How can you tell if the treatment is working?
  • What are my options?
  • What are the benefits and risks of those options?
  • What is your professional opinion about my condition?
Talk to your physicians about your concerns.

Before taking any action you should be sure that you have considered all the

Ask yourself the following:
  • What is important to you?
  • How is your illness now affecting you physically and emotionally?
  • Is the number of good days far outnumbering the bad days?
  • How do you feel about the medical treatment you have been receiving?
  • Have there been difficult or painful side effects?
  • How is this affecting your loved ones?
Even if you make choices that seem right today, it is likely that you will want to change them as your get older or things change in your life. The purpose of this website is to help explain some of the choices you can make, whether you are still healthy or have a serious illness, in order to make things easier for you and your family.

Decisions you make and share with others, while you are healthy, will most
likely be better than decisions that others make for you if you're very

Just remember, there is no "right choice" or "wrong choice".  It is YOUR choice.  You can decide how to live the last days of your life, but you must think about these issues now and discuss them with your family and your doctor to make the best decisions for yourself and loved ones.

Source: Choices and Conversations

A Guide To End of Life Care For Rhode Island Families" published by Aging 2000
Information is In PDF format

Ironically one of the contributor to this guide is Jean E Miller, a nurse!