This site is for storing articles to be linked the Huntington's Disease Information For Families website only.   The majority of articles are those I've had archived on my computer about HD or related symptoms and/or treatments.  Sometimes notes are included based on my own personal experience living with HD or comments expressed by other HD families.   Please see disclaimer.   It is love that makes a parent or caregiver go  beyond the norm to search for other medical reasons why a particular symptom is occurring and then forces the medical personnel to  LISTEN and provide whatever is necessary to rectify or fix the problem.

Sometimes we tend to forget that people with HD don't die from the disease itself but in most cases succumb to other anomalies as a result of the affects of HD.   To accept fevers, dehydration, severe chorea, stomach ailments, etc. etc. just because the person has HD is UNacceptable. To accept, blindly, a physicians recommen-dations without researching and fully understanding the possible ramifications of the proposed treatment is UNacceptable. To LOVE your pHD without condition and be willing to EDUCATE, FIGHT and SURVIVE, often in the face of adversity, is the greatest gift a caregiver has to give! Jean

DISCLAIMER The  information offered on this site is by a non-medical professional.  Information is provided to assist you in making decisions on finding quality care and support.  If  you have specific medical questions about Huntington's Disease and/or its treatment please consult with your medical professionals. This site does not receive any source of funding to support it.  Any advertising is by the web provider, i.e. no paid advertising  will appear on this site. Webmaster: Jean Miller

Instructions: Use the -> Index page to get around this site. HuntDiseaseFAQS This is a link from Jean Miller's  Huntington's Disease Links