Huntington's Disease Support Information

Centers of Excellence

Home
Index~HD Search
Convention Scholarship Fund
State HD Support
District of Columbia
Hawaii
Idaho
Indiana
Kansas
Kentucky
Louisiana
Maine
Maryland
Massachusetts
Minnesota
Mississippi
Missouri
Montana
Nevada
New Hampshire
New Mexico
New York
North Carolina
North Dakota
Wyoming
Wisconsin
West Virginia
Washington State
Oklahoma
Oregon
Pennsylvania~Delaware Valley
Pennsylvania~Western
Rhode Island
South Dakota
Tennessee
Utah
Vermont
Virginia
Michigan
Wyoming Non-HD Specific Caregiver Support
Miscellaneous State Resources
Other Resources

 
Note: Go to your State Pages for information on whether 
there is an HD Center of Excellence located there.
 
 What Is An HD Center of Excellence?
 
Centers of Excellence are stable regional centers providing high quality clinical care and services to individuals affected by Huntington's Disease (HD) and their families. In addition to clinical
and family services, Centers of Excellence provide professional and lay education and are involved in HD clinical research.
 
Centers of Excellence are designed to provide comprehensive multidisciplinary diagnostic and therapeutic services for HD individuals and their families. Services are centered around an organized HD clinic in which an individual's needs are determined; plans are made to fulfill those needs and sufficient follow-up is provided.
 
HDSA Centers of Excellence are being established at strategic academic institutions throughout the United States to complete an HD network of resources and referrals. There are currently 16 centers across the United States, with plans to expand the program to 25 by the year 2005.
 
Centers of Excellence's are supported through your donations and funding raised by HDSA Chapters. 
 
Center of Excellence Celebration of Hope Dinners  
 
Celebration of Hope events are held annually across the country in support of the HDSA Center of Excellence program. These gala events bring together the community served by a Center or potential Center and demonstrate the positive effects an innovative program can have on a region. 
 
For More information about the Celebration of Hope Events, or the Center of Excellence Program, contact your local HDSA Chapter or  the National Office at 1-800-345-HDSA or email at hdsainfo@hdsa.org
 
How Do You Become an HDSA Center of Excellence?
 
Potential programs must meet a rigorous standard of established criteria to apply for funding as an HDSA Center of Excellence. Applications are reviewed each year by a national panel of experts. Sites are chosen on their proven ability to meet the needs of the HD population as well as their ability to expand services. The Core Services offered by the HDSA Centers of Excellence are:
  • Medical Treatment by Neurologists specialized in Movement Disorders
  • Speech, Physical, and Occupational Therapy
  • Genetic Counselors and Genetic Testing Services
  • Trained Social Workers available to assist families
  • Network of Regional Referrals for HD care
  • Opportunities for participation in HD research
Where are the HDSA Center of Excellence Programs?
ALABAMA
HDSA Center of Excellence at
The University of Alabama at Birmingham
1600 7th Ave. South
Ambulatory Care Center, Suite 516
Birmingham, AL, 35222,
Jan Findlay, RN, MS, CS 
jfindlay@peds.uab.edu
(205) 939-9588
(205) 939-6184
 
CALIFORNIA
HDSA Center of Excellence at
The University of California
Davis Medical Center
4860 Y Street Suite, 3700
Sacramento, CA, 95817,
Terry Tempkin, RNC, MSN, ANP
teresa.tempkin@ucdmc.ucdavis.edu
(916) 734-6278
(916) 734-6525

HDSA Center of Excellence at
The University of California San Diego
Outpatient Center, Third Floor Suite 1
200 West Arbor Drive
San Diego, CA, 92103,
Shirley Fenner, RN
sfenener@ucsd.edu
(858) 622-5800
(858) 622-1012
 
COLORADO
HDSA Center of Excellence at
The Colorado Neurological Institute
701 East Hampden Avenue, Suite 530
Engelwood, CO, 80110
Website: Movement Disorder Clinic
Sherrie Montellano
(303) 788-4600
(303) 788-8854
 
GEORGIA
HDSA Center of Excellence at
Emory University School of Medicine
1841 Clifton Road
Atlanta, GA, 30329
Randi Jones, Ph.D. sjone03@emory.edu
(404) 728-4936
(404) 728-6685
 
IOWA
HDSA Center of Excellence at
The University of Iowa  Hospitals and Clinics
Psychiatry Research 1-145 MEB
Iowa City, IA, 52242,
Elizabeth Penziner
elizabeth-penziner@uiowa.edu
(319) 353-4307
(319) 353-3003

 
MARYLAND
HDSA Center of Excellence at
Johns Hopkins Hospital
Meyer 2-181
600 North Wolfe Street
Baltimore, MD, 21287
Website: HD Center
Debbie Pollard
dpollard@jhmi.edu
(410) 955-2398
(410) 955-8233
 
MASSACHUSETTS
HDSA Center of Excellence at
Massachusetts General/Tewksbury Hospital
VBK, Fuit Street
Boston, MA, 2114
Colleen Skeuse cskeuse@partners.org
(617) 726-5892
(617) 726-5346
MINNESOTA
HDSA Center of Excellence at
The Hennepin County Medical Center
701 Park Avenue South
Minneapolis, MN, 55415,
Beryl Westphal R. N., A. N.P-C

hcmc.hd.clinic@co.hennepin.mn.us
(612) 347-6024
(612) 904-4270
 
MISSOURI
HDSA Center of Excellence at
Washington University School of Medicine
660 S. Euclid Campus Box 8111
St. Louis, MO, 63110
Website: Movement Disorder Clinic
Susan Donovan
medsec@npg.wustl.edu
(314) 362-6909
(314) 362-0168

NEW YORK
HDSA Center of Excellence at
North Shore University Hospital
444 Community Drive, Suite 206
Manhasset, NY, 11030,
Dennis Zgaljardic 
neurodjz@juno.com
(516) 869-9527
(516) 869-9535
 
HDSA Center of Excellence at
Columbia Health Sciences/
New York State Psychiatric Institute
1051 Riverside Drive
New York, NY, 10032
Website:  http://www.hdny.org/
Deborah Thorne, C.S.W.
(212) 305-9172
(212) 305-2556
 
HDSA Center of Excellence at
The University of Rochester
919 Westfall Rd, Buldg C. Suite 220
Rochester, NY, 14618,
Leslie Briner 
lbriner@mct.rochester.edu
(716) 273-4147
(716) 341-7510

OHIO
HDSA Center of Excellence at
Ohio State University Medical Center
1645 Upham Drive, Means Hall 4th Floor
Columbus, OH, 43210,
Karen Betcher, RN
kostyk.10@osu.edu
(614) 247-6851
(614) 293-4974

TEXAS
HDSA Center of Excellence at
Baylor College of Medicine
6550 Fannin, Suite 1801
Houston, TX, 77030
Website: Huntington's Disease Clinic
Lauren Tipton  
Ltipton@bcm.tmc.edu
(713) 798-5970
(713) 798-6808

VIRGINIA
HDSA Center of Excellence at
The University of Virginia
500 Ray C. Hunt Drive
Charlottesville, VA, 22903
Website:   UofV Huntington's Disease Program
Pat Allison PSA9M@hscmail.mcc.virginia.edu

(804) 924-2665
(804) 982-1726

WASHINGTON
HDSA Center of Excellence at
The University of Washington Medical Center
1959 NE Pacific Street
Seattle, Wa, 98195
Website: UW Neurological Clinic
Robin Bennett
(206) 616-2135
(206) 616-2414