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Tennessee
MidSouth Huntington's Disease Group
(an HDSA Affiliate)
President: N/A Contact:
Kathy Bergeson Email: midsouthhd@usa.com Phone:
(901) 755-0205 Address: 8950 Evening Grove Cove Cordova,
TN 38018 Website: None Listed
Serving central and west Tennessee, South-eastern Arkansas, plus northern Mississppi, etc.. We
operate as an all-volunteer organization. Any donations are gratefully accepted towards fund patient services &
research and towards finding a CURE for HD.
Physicians
HD Experienced
HD experienced: need your input
Genetic Testing Facilities
University of Tennessee Medical Center Developmental and Genetic Center 1924 Alcoa Highway Box
0102 Knoxville, TN 37920 Contact: Dr. Nicholas T. Potter Phone: (423)
544-9030 Fax: (423) 544-6675
Vanderbilt
University Medical Center Division of Genetics DD-2205 Medical Center North Nashville, TN 37232-2578 Contact:
Vickie Hannig, MS Phone: (615) 322-7601 Fax:
(615) 343-9951
Nursing Homes-
HD Experienced
Need your input
State Long-Term Care Ombudsman
Tennessee State Long-Term Care Commission on Aging Andrew Jackson Building,
9th Floor 500 Deaderick Street Nashville, TN 37243-0860 Phone: (615) 741-2056 FAX:
(615) 741-3309
Consumer information about Tennessee nursing homes, click here.
State Veterans Homes
Humboldt
2865 Main Street
(731)784-8405 Murfreesboro
345 Compton Road
(615)895-8850
Assited Living
Family Homes for Adults - (615) 313-4763
A foster care service for adults who are frail or disabled and are victims
of abuse or neglect.
Vital Records
Order birth, death, marriage and divorce
records
Abuse
Services for adults, 18 years of age or older who are abused, neglected, or financially
exploited and unable to protect themselves due to mental or physical disabilities or advanced age.
Advocacy
Children
Every child (under 21) who is eligible for TennCare
is eligible for these services. A child can be eligible for TennCare through Medicaid or through the Uninsured or Uninsurable
guidelines. Caring for Kids (EPSDT) screenings are well-child check-ups.
A statewide not-for-profit organization of parents, professionals, business leaders,
and state representatives committed to improving and expanding services related to the emotional and behavioral well-being
of children.
Disabilities
(615) 313-5464 or 1-800-342-1117
Make disability determinations for the Social Security Administration for Tennesseans
applying for Disability Insurance Benefits (DIB) and Supplemental Security Benefits (SSI) through the Social Security Program.
Family
Family Resource Centers, Adult Protective Services, Victims' organizations
Financial
Community Services - (615) 313-4759
Contract Services to non-profit and local government agencies across the state, to assist
people in crisis, and to provide support services to help low-income people become more self-sufficient or maintain independence.
There are some pharmaceutical companies that offer free medications to low-income families.
They require a doctor's consent and proof of your financial status. Depending on what your insurance covers, you may be able
to apply. A few companies even allow family incomes as high as $40,000 annually.
Low Income Home Energy Assistance & Weatherization Assistance Programs
-(615) 313-4764 or your local DHS County office. Assistance to low-income families,
disabled, or elderly persons to help pay utility bills or make necessary repairs to weatherize their homes.
Families First (TANF) - 1-888-863-6178
Families First Hotline or Contact your local DHS Office. Tennessee's welfare reform
program. A temporary cash assistance program that emphasizes work, training, education, and personal responsibility. A variety
of other support services are available to help customers make the transition to self-sufficiency.
Food Stamp Program - 1-800-342-1784 Food Stamp Hotline or (615) 313-4888
Nutrition assistance program provides a safety net for elderly, disabled, families with children, or other low income households
to help maximize food dollars for purchasing food and seeds to grow food. |
Volunteer Needed To Be Alabama's
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Special Notices
Memphis
When: Call for Dates
Time: 1:00 p.m. Where: Gloria Dei Lutheran
Church 5415 Raleigh-LaGrange Road Memphis,
Tennessee (near Barlett) Contact: Kathy
Bergeson Email: midsouthhd@usa.com Phone: (901) 755-0205
Eastern Tennessee (private
meetings)
Call: Meetings held on various days and times
Where: VA Medical Center,
Building
#37 #116A
Mountain
Home, TN Contact: L. Bolick, LCSW or M.
Brooke-Webb, RN Phone: (423) 926-1171 x 7439
NOTE these meetings are
for families of patients in the VA home only.
Participants: HD family and friends interested
in meeting with a nurse and a social
worker
Northeast Tenn Group disbanded Nov. 2002. Contact the Chapter for meetings near you.
State Resources continued
Financial - continued
Tenn Care Waiver Program -There are two--TennCare Medicaid and TennCare Standard. TennCare
Medicaid is a program for certain low-income people: Children, Families who get welfare, People over age 65, People with
disabilities. TennCare Standard covers some uninsured people who cannot get Medicaid or have health problems that
keep them from getting health insurance. To be "uninsured," you must not have access to health care coverage such as Medicare,
TRICARE, or insurance through your job or a family members job. How do you apply for TennCare Medicaid or TennCare Standard?
Go to your local DHS ("food stamp") office. Click here to find the DHS office closest to you, or call 1-888-863-6178. This is a free call. In Nashville,
call 313-5790.
Health/Insurance
Bureau of TennCareAdministration of the TennCare and TennCare Partners programs, a managed care system
that provides health care benefits including mental health and substance abuse services
Medicaid & TennCare - 1-800-669-1851 for TennCare Coverage
Premier Behavioral Systems of Tennessee
(800) 447-7242 is a Behavioral Health Organization (BHO) and will provide
and manage your TennCare Partners Program mental health and substance abuse benefits.
Supplemental Security Income (SSI)
People with disabilities may get Supplemental Security Income (SSI) benefits through
the Social Security Administration in Tennessee, SSI benefits include Medicaid. You can call the Social Security Administration
at 1-800-772-1213 to find out more. This is a free call.
(1) to provide services to populations who are more difficult to serve because of their
health care needs, their mobility, and/or their geographic location; and (2) to serve as a "back up" in any area of
the state where TennCare enrollees cannot be adequately served by the other TennCare HMOs. Click here to see Frequently Asked Questions about TennCare Select.
The Journey of Hope Program (A Program of NAMI-TN)
West Tennessee Region: 1-888-875-4687 East Tennessee Region:
1-800-929-5609 Middle Tennessee Region: 1-888-232-7830
The Journey of Hope program is an eight-week course for family members and caregivers
of persons with mental illness. It is taught by family members for family members. It provides the opportunity to share feelings
and experiences, and to learn.
Suicide Prevention No suicide attempt should be dismissed or treated lightly! Treatment is available
for those with thoughts of suicide. To learn more about warning signs, treatment, and precautionary steps, read the information
below or call your Magellan program (800) 447-7242.
Legal
Transportation
Veterans
Misc. State Support
Patient Advocate Foundation listings by State: Ensuring equal access to health care to
all Americans. Find out what is available in your community. Information available on (to mention only a few from
the entire list): Children, Children's Health Insurance Programs, Community Referral, Disability Services, Financial
Assistance, Food Stamps, Health Care, Insurance, Legal, Medication/Drug Assistance and Special Needs
Private Fuel Funds There are non-federal dollars
available from local fuel funds, which frequently are contributed by your neighbors when they pay their utility bill. Ask
the state energy assistance office for the local phone number of the fuel fund nearest your residence.
State Resources-information or links related to Assistive Technologies, Disability Resources,
Domestic Violence Legal Information, Family Legal Guides, Family Services, Guardianship Programs, Health & Human Services
Quick Locators, Legal Assistance, Legal Forms - State & Federal, Long-Term Care Ombudsman Programs, Medicaid, Medicaid
Waiver Programs, Social Security Offices, Summer Camp Programs, United Way~Local Support and more
United Way-Search By Zip Code will provide you with information on the United Way in your area.
If they have a website, they usually have a section called "How Do I Get Help?" Click on it and look for their
"Quick Guide" (To Human Services) for help in your area. You can print it out. Most guides are in PDF
format and are a great resources to put on your refrigerator!
Other Information
Dental-Even if you cannot pay
for dental care there are ways in which to receive help. Contact the American Dental Association (ADA) (1-800-621-8099) to
learn about dentists who assist individuals on fixed incomes by offering their services at reduced fees.
GovBenefits.gov is a screening tool provided by the federal government to help you find government
benefits that you may be eligible to receive.
Insurance Tennessee Consumer Guide for Getting and Keeping Health Insurance. The Guides summarize your protections,
and so may not answer all of your questions. It is not a substitute for legal, accounting, or other professional
advice.
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