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Huntington's Disease Support Information

Missouri

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Index~HD Search

Click on map for yellow pages
Missouri
                              State Flag  Missouri
HDSA Chapter
Serving Missouri, parts of Kansas and Illinois
President:    Kimberly Golden
Email:          
hdsa@stlouis.missouri.org
Address:      HDSA St. Louis Chapter 
                      8039 Watson Rd., Suite 132
                      Webster Groves, MO 63119-5325
Phone:         (314) 961-4372
Website:       None
Toll Free:     1-866-707-4372
Information
hdsa@stlouis.missouri.org


Development Director:
Peggy Cribbin
 
Social Worker:
Contact: Melinda Kavanaugh, MSW
Phone:   314-362-3471
 
Center of Excellence
 
HDSA Center of Excellence
Washington University
School of Medicine
660 S. Euclid Campus Box 8111
St. Louis, MO, 63110
Hours:  Monday-Friday 9-5
Services: Social services, occupational
therapy, support group, physical therapy,
and excercise class.  Also neurologists,
neuropsychiatrists, and genetic counselors,
and we do genetic testing at the center.
Appointment:  (314) 362-6908 or
Email:              medsec@npg.wustl.edu
Director:         Joel Perlmutter, M.D.

Contact: Melinda Kavanaugh, MSW
Phone:    314-362-3471
Fax:        314-362-0168
 
HD Clinical Studies:  B. Racette  
Phone: (314) 362-7148

Physicians:
Black, Kevin J., M.D.
Racette, Brad A., M.D.
Revilla, Fredy J. , M.D.
(See Centers website for physician bio's)
Website:
movement.htm
Website has physician bio's, clinical trials
and research taking place at CoE.
 
Genetic Testing
 
University of Missouri Hospital
Division of Medical Genetics
Columbia, MO 65121
Contact:   Robin Troxell, MS,
                 Genetic Counselor
Phone:     (573) 884-6735
Fax:         (573) 884-3543
 
Physicians
HD Experienced
Kwee, Liu Lin Thio, PhD
(click above for bio, insurance, etc.)
St. Louis Children's Hospital
Department of Pediatric Neurology
1 Children's Place
Suite 12E47
St. Louis, Missouri 63110
Phone: 314.454.4089

Request Callback   Directions
The hospital is affiliated with the HDSA Center of Excellence at Washington Univ.
 
Other Information
GovBenefits.gov is a screening tool provided by the federal government to help you find government benefits that you may be eligible to receive.
 
Insurance Consumer Guides  for Getting and Keeping Health Insurance - A guide for each state and the District of Columbia - fifty-one in all. The Guides summarize your protections, and so may not answer all of your questions. They are not a substitute for legal, accounting, or other professional advice.
Special Notices
Check  HDSA's HD National Events Calendar for current events in your area.
 
Support Group Meetings
 
Cape Girardeau, MO
To Be Determined, Call For Info.
Contact:   Sandra
Phone:  toll free 866-707-4372
Participants: All associated with HD
 
Independence
When:      Call for details
Time:       6:30 - 8:30
Where:    Maywood Baptist Church
                  10505 E Winner RD
                  Independence, MO.
Contact:  Misty Lehman
Phone:     816-254-9313
Email:     
crazywith2@hotmail.com
All individuals with an interest in Huntington's Disease are invited to attend. Child care will not be provided.
 
St. Louis
When:      3rd Tuesday of month
Time:        7:00 p.m.
Where:    The Heights
                   8001 Dale Avenue
                   Richmond Heights
Contact:   Sandra Boll
E-mail:     
hdsa@stlouis.missouri.org
Phone:     (314) 961-4372
Participants: All associated with HD
 
 
Nursing Homes
HD Experienced
 
Monterey Park Nursing Center
4600 Little Blue Parkway
Independence, Mo. 64015
Phone:  1-816-795-5613
Has 2 HD patients
 
Lathrop Health Care Center
702 Center Street
Lathrop, MO 64465
Phone: 816-528-4257
 
IHS of St. Louis at Big Bend Woods
110 Highland Ave. 
Valley Park  - MO - 63088
Phone:  314-225-5144
Fax:      314-225-8427
Contact:   Darryl Powell
Certified:  Medicaid/Medicare
Total Number of Beds: 176
Parklike setting, friendly staff, clean, visitors allowed 24/7, therapies, neurocable, pets allowed,  etcHD patients who are not at a risk
of fleeing (ie no lock down facilities).
 
Spring Place Care Center
3450 Russell
St. Louis, MO
Phone: (314) 772-9100
HD Patients: Has 1  54 year old male patient with HD as of May 2002
 
Warrenton Nursing & Rehabilitation
Highway AA
Warrenton MO 63383
Phone: 636-456-8700

State Long Term
Care Ombudsman

Missouri State Long-Term Care
Division on Aging
Department of Social Services
P.O. Box 1337
615 Howerton Court
Jefferson City, MO 65102-1337
Phone:  (573) 526-0727
FAX:      (573) 751-8687
 
State Resources
 
Missouri Homepage
 
Misc. State Support 
Family Services-Map by State
Guardianship Programs
A listing of guardianship programs in each state
 
United Way-Search By Zip Code will provide you with information on the United Way in your area.  If they have a website, they usually have a section called "How Do I Get Help?"  Click on it and look for their "Quick Guide" (To Human Services) help in your area. You can print it out. Most guides are in PDF format and are a great resources to have on your refrigerator!