Huntington's Disease Support Information


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Huntington's Disease Society of America (HDSA)
505 Eighth Avenue, Suite 902
New York, N.Y. 10018
Toll Free: 1-800-345-4372
Info Email:

National Executive Director/CEO:
Barbara T. Boyle
Phone: 1-800-345-4372
Extention: 16
Click below for:
HDSA's Mission
  • Promote and support research to find a cure for HD
  • Help those affected by the disease and their families
  • Educate the public and health care professionals about HD
The Huntington's Disease Society of America is a national non-profit voluntary health agency that is dedicated to finding a cure for HD while providing both vita services to improve the lives of those affected by HD and support and guidance for HD families through our national network of volunteer-based chapters and affiliates as well as through our newly created Centers of Excellence.
HDSA is a member of the National Health Council, National Voluntary Health Agencies, National Organization of Rare Disorders, Alliance of Genetic Support Groups, Health Care Quality Assurance, Independent Sector and International Huntington Association.
The Marker Magazine
The Marker magazine is an HDSA periodical published twice a year. It is meant to provide information and opinion and to relay items of interest to individuals with Huntington's Disease and their families, health care professionals, and interested friends and supporters.

Our informative Family Guide Series offers an overview of key areas. Please be advised that the information provided within is not meant as an indicator for a diagnosis or medical treatment.

The articles found in The Marker magazine, the Family Guide Series and the Fast Facts about HD pamphlet are property of the Huntington's Disease Society of America. Reproduction of this information in whole or in part without the express permission of the Huntington's Disease Society of America is strictly forbidden.

Currently The Marker is not availalbe on HDSA's new website. To be placed on the mailing list for The Marker please contact HDSA. 

HD Literature/Videos
HDSA has an extensive listing of publications, literature, articles and videos either for sale or free. Currently these resources are not availalbe on HDSA's new website. Contact HDSA.
Support HDSA's Funded Projects
The HDSA is a 501(c) non-profit organization listed in the Guidestar National Database of Non-profit organizations. Website:
HDSA is pleased to mention that the American Institute of Philanthropy (AIP) has designated HDSA as one of the top rated charitable organizations. Ranked with other  large health organizations, such as the American Heart Association, and the American Liver Foundation, HDSA was the only health organization to receive an A+ grade.  Click here -> HDSA's A+ Rating  If you would like to find out more about AIP, and their grading system, see their website.
AIP's Website
Giving to HDSA is easy, and you can show your support in different ways! Please check out our website link to Ways To Give
HDSA Support Research
& Clinical Trials
National Events
HDSA events are a great place for HD families to:
  • Meet, greet and come together to share experiences, challenges …and more!
  • Build awareness about HD in their communities.
  • Find out about HD research, treatment and information on the disease.
  • Raise funds that provide services for HDSA research initiatives, treatment and support for HD families.
To learn more about the HDSA's  National events, supported through HDSA, it's Regional Directors and Chapters located throughout the country, visit the below websites:
  • HDSA's Celebration of Hope Events - are held annually across the country in support of the HDSA Center of Excellence for Family Services Program. These gala events bring together the community served by an HDSA
    Center of Excellence or a potential new HDSA Center of Excellence. The HDSA Celebration of Hope events are tangible demonstrations of  the positive impact our Centers have on a particular region.
  • Annual Awards Dinner - This annual event honors the memories of Woody Guthrie, the legendary folk singer, and his wife, Marjorie, principal founder of the national drive to cure Huntington’s Disease (HD).
  • HDSA Indy Go-Kart Challenge -The Huntingtons Indy is a fast-paced fun family event,  which appeals to the young and the young at heart!  At local go-kart tracks, teams will participate in the event, driving around the track for two hours and raising money for the fight against Huntingtons Disease.
  • Shoot for the Cure HDSA Hoop-a-thons -It is a free throw basketball event where participants shoot baskets from the foul line. The participants or "shooters" get their friends, relatives, family members or co-workers to "sponsor" them. Sponsors will pledge money for baskets made, or donate a flat rate to the shooter. It is fun, exciting and raises lots of money for research and support services.
  • HDSA Walk-a-thons - Join Team Hope, HDSA's national grassroots fundraiser to advance HDSA's research programs and to strengthen its family services by either walking alone or recruiting family and friends to walk with you.
  • HDSA Bowl-a-thons - Here’s a wonderful event opportunity for families and friends of the entire HD community to get together to promote and provide awareness about HD and HDSA.
HDSA's Market Place
A selection of items that will help you make a difference in the fight against Huntington's Disease! Click here ->HDSA's Market Place