of the International Huntington Association and the World Federation of Neurology
"Extreme care should be exercised when testing would provide information about another person who has not requested the test."
"This issue will arise when a child at 25% risk requests testing with full knowledge
that his or her parent does not want to know his or her own status. Every effort
should be made by the counselors and the individuals concerned to arrive at a
satisfactory resolution of this conflict.
A considerable majority of representatives from the lay organizations feel that if no
consensus can be reached, the right of the adult child to know should have priority
over the right of the parent not to know."