HuntDiseaseFAQS

MISCELLANEOUS
Home
Index
GENETIC TESTING INFO
EARLY HD
MEDICATIONS~DRUGS
Movement Disorder Medicines
Anxiety-Antidepressant Medications
Antidepressant Adverse Effects
Warnings~Adolescents Under 25
Sertraline ~Zoloft
SSRI's
Anti-psychotic Medications
Prozac, Luvox, Paxil, Zoloft & Celexa
Olanzipine & Risperidone and blood tests
Creatine
Drugs~General
Cutting Prescriptions
Sites That Help the Medicine Go Down
Vitamins & Minerals
SYMPTOMS
Why Certain Symptoms Occur In HD
Tests Commonly Used -Neuropsychological Examination
Symptom vs Medication
HD-Disability
HD~Communications
Speech & Swallowing Difficulties~Lynn Rhodes
Swallowing Problem Warning Signs
Swallowing Tests
Nutrition and HD~Anna Gaba (Recipes)
HD & Diet~HSA Fact Sheet 7
HD~Swallowing & Nutrition
Weight Gain
Taste
5 Levels Difficulty In Swallowing
Feeding Tube~Advanced Stages of HD
Feeding Tube~Jean Miller
One more word on feeding tubes
PEG Tubes and baby foods
Feeding Tubes-More Info
Dehydration
HD~Chorea
HD~Falling/Safety Issues
HD~Cognitive/Decision Making/Impulsivity
Cognitive-Short Tips
HD-Apathy
HD~Perceptual/Unawareness/Attention
Denial of HD
HD~Irritability/Temper Outbursts
Managing behavioral problems
HD~Depression
Depression - Treatment Resistant Patient
HD~Anxiety/Apathy/Irritability
HD~Mania, Obsessive Disorders
HD~Hallucinations & Psychosis
HD~Rigidity, Spasticity, and Dystonia
HD~Seizure/Convulsion/Epilepsy/Tics
Nails
MISCELLANEOUS
Adaptive Products
HD~Suicide
Teen Suicide~Let's Talk Facts
HD~Incontinence
Stress Explained-Easy/Fun Format
How To Help Someone Chronically Ill
Legal Planning for Incapacity
Out-of-Home Care Options FAQ
Preparing for Emergencies

Index

Other Sites
 
Below are some of my other HD related website:
 
HD Support Information
Purpose: A State-by-State listing of HDSA Chapters,
Support Groups, Centers of Excellences, physicians,
nursing homes, Hospices and other information.  Needs
your input on what HD services are available in your city. 
Has a  Swap/Trade/Sell section to list items that you
no longer need that might help another HD family.
 
Purpose:  To provide information for families with a child 
with juvenile HD or one at-risk.  Include at-risk, genetic
testing/testing of children,  related symptoms and how to
recognize/help, types of therapies, various medication
and drug searches, surgeries, procedures used in testing,
suicide,  divorce, disabilities, assisstive technology, grief, 
ADD/AD-HD, support, links, benefits/insurance and a bio/my
personal experience with Kelly. A message board has been
added for those that want to contact others in the same
situation.
 
Kids-Young Adults HD
URL: http://clik.to/HDYouth
Purpose:  Information for kids/young adults living in 
a family with HD to help understand their loved one
with HD or to recognize feelings they themselves may
be experiencing/how to get help; how other young
people feel living with HD, HD support groups and
information, links to games, crafts, fun learning sites,
etc.,  some of Kelly Miller's poems, a Live Chat Room
(need password/contact me) and a Message Board to
talk with other young people living with HD.
 
Purpose:  Very moving and touching portrayal of how
the devastation of Huntington's Disease affects the
lives of our young children and adults living with the
disease through a Question and Answer format
 
HD Helpful Forms
URL:   http://clix.to/HDHelpfulForms  
Purpose: Documents uploaded in Word format to help
caregivers in day to day care, family planning,
appointments, Caregiver Daily Care planning booklet,  
HD Information cards for handout, Emergency Information
document, medication forms, Personal Health History
form, "CNA First Shift" brochure, Driving Assessment
Checklist, New Drug Checklist, Social Services Q&A
checklist, Asssited Living Q&A checklist, etc. 

Understanding Behavior in HD - Dr. Jane Paulsen
URL:  http://clix.to/Understanding
Purpose:  Provide people living with HD this excellent
resource from Dr. Paulsen which addresses the various
aspects of behavior in someone with Huntington's Disease. 
Includes tips on how to help.  The next "Bible of HD'
to the Physician's Guide to The Management of HD

Hunt-Dis Scholarship Fund Raising Projects
URL:   http://clix.to/HDSFwebsite
Purpose:  List items for sale to raise funding to send
some people from Hunt-Dis to the HDSA National
Convention each year.  Items  included are Carmen Leal
books/CD's, original artwork by our own HD Artists
Gayle Kingsbury and Lou Wilkinson, Calendars by
Sue Leck, the Non-Chew Cookbook and the CD of all
the Help CURE HD greeting cards (which can be  used
for HD fund raisers cards, calendars, T-shirts....whatever).

Our Final Journey  
URL:  http://clix.to/FinalJourney
Purpose:   Provide families living with a terminal illness
information on Estate Planning including wills,  powers
of attorney, advance directives, guardianship,
conservatorship, avoding probate, providing for children,
etc..  Links to information for the Patient with a terminal
illness, the Caregiver and the Family.  Information on
Legal Advice, Insurance, Employment Issues (flex scheduling,
Family Leave etc), Financial Planning and tools, Divorce
Issues
Day care centers, assistive living facilities, nursing homes,
sensitive and informative information on the end of life,
grief and support etc.
 
OTHER PUBLISHED WEBSITES

Help CURE HD free Greeting Cards
URL:   http://community.webshots.com/user/jeanemiller1
Established:  November 2000
Purpose:       Over 1,000 every day cards for almost any 
occassion.  Most popular are "Life", "Excuses" and
"Inspirational" cards

Juvenile Huntington's Disease Message Board
URL:  http://groups.yahoo.com/group/JHDCargivers
PurposeYahoo message board for all families who have
a child  with juvenile HD to have a place to share their
experience, seek help and offer support to one another.
 
Huntington's Caregivers Web Directory
URL: http://www.geocities.com/huntingtonsdirectory/index.htm
Purpose:  Hundreds of links to information for caregivers.  
Has not been updated in some time due to Webmaster's
(Olav's) care of wife with HD who  recently passed away.
HD Definitions
I started the accumulating these definition which are 
sometimes used to describe symptoms of/or tests for HD
or discuss other diseases or condition which have symptoms
similar to Huntington's Disease.  As I  find more, they'll be
added.
Symptoms
Scientific/Technical
Testing
Drug
Other diseases similiar to HD
Symptoms
Scientific/Technical
Testing
Drug
Other diseases similiar to HD