Our Final Journey
Handbook For Mortals
Tools For Viewing
Let's Talk About It
Section 1 - Assistive Technology
Section 2 - Divorce Issues
Section 3 - Drugs/Medications
Section 4 - Checklist, Documents, Forms
Section 5 - Employment Issues
Section 6 - Estate Planning
Advanced Directives & DNR's
Section 7 - Caregiver Resources
Patient Quality of Life: Should Doctors Guess It?
Incontinence Care
Section 8 - Children Seriously Ill
Children of The Chronically Ill
Siblings of Children with Special Health Needs
Guides To Disability Issues
End Stage Hospital & Home Care
Child With A Serious Illness
Individual Family Service Plan (IFSP)
Camps-Special Needs Children
Children's Wish Foundations
Section 9 - For Kids
Section 10 - Family Resources
Section 11 - Patient Resources
Section 12 - Financial Aids
Section 13 - Insurance
Long Term Care Insurance
Section 14 - Legal
Section 15 - Long Term Care
Section 16 - Symptom Support
Section 17 - End of Life
Section 18 - Funeral Planning
Section 19 - After Death Occurs
Hospice FAQS
Symptom Support
Behavoir Strategies
Ill Person's Feelings
Caregiving & Family Harmony
Caregiver Grief ~Article
End of Life
Comforting A Dying Person
End Stages of Life
When Someone Dies
Funeral Planning
Bereavement Fares and Discounts
Common Bonds of Caregiving
Tips For Helping Your Friend
About me
Free Greeting Cards
Estate Planning Definition
Living & Other Trusts
Wills & Beneficiaries
State Laws On Wills
Conservator~Guardianship Definitions
Insurance Issues
Avoiding Probate
Prescription Drug Program I
Prescription Drug Cards II
Disability & SSDI Insurance Questions
Long Term Care Insurance
Employment Issues
Divorce Issues
State Laws-Statutes
Making A Personal File
Emergency Info Form
Emergency Planning
Health Care Surrogate
Forms, Checklist
Family Resources
Patient Resources
Rehab Tools-Assistive Tech. Categories
State Map-Ombudsman Program
NH Your Rights-Fact Sheets
Nursing Homes and Your Rights - Factsheets for some seriously ill or their caregivers.
Long Term Care-Facts & Rights
State & Federal Resources
Drug Resources
Grief & Sorrow
When death nears - Signs and Symptoms
Some Facts About Artificial Nutrition and Hydration
Things To Consider-Artificial Nutrition and Hydration
Handbook For Mortals:
Guidance For People Facing
A Serious Illness
By Joanne Lynn, M.D. and Joan Harrold, M.D.
Foreword by Rosalynn Carter
You can order this book anywhere. If you'd like to help send a deserving person
to a Huntington's Disease HDSA National Convention, please order it
through this website Amazon Connection!
This excellent book has a lot more to it then the below excepts.  You may want to consider purchasing the entire book for your family.  The development team for the book included experts in many disciplines and used input from focus groups to ensure that the content was relevant and complete.
This is, without a doubt, one of the most comphrensive and sensitive books on this subject I have seen yet.  Read both the lead in Section and the subsequent sections.  See bottom of page for complete index.  Excerpts you can read:

2.0 Enduring And Changing

3.0 Finding Meaning


Related subjects:
Why is it hard to let a patient go without eating? (in book)
Related subjects:

11.2 Decisions About Resuscitation (CPR)

11.3 Decisions About Ventilation

13.1 Coping With Events Near Death

13.2 Questions About Funerals

The complete book, contains the following:
Foreword by Rosalynn Carter
1. Living With Serious Illness
2. Enduring And Changing
3. Finding Meaning
4. Helping Family Make Decisions And Give Care
5. Getting The Help You Need
6. Talking With Your Doctor
7. Controlling Pain
  • Types of pain
  • Choosing the right pain medicine
  • Different ways to take pain medicine
  • Doses of pain medicine
  • A few rules about pain medicine
  • How often to take pain medicine
  • Fear of addiction
  • Side effects of pain medication
  • More medications that relieve pain
8. Managing Other Symptoms
9. Learning About Specific Illnesses
  • How long do I have?
  • Heart disease
  • Cancer
  • Lung disease: chronic emphysema and chronic bronchitis
  • Kidney failure
  • Liver failure
  • Dementia
  • Dying while very old
10. Planning Ahead
11. Forgoing Medical Treatment
  • Thinking about the issues
  • Stopping treatment
  • Time-limited trials
  • When food seems like love
  • The benefits of dehydration at the end of life
  • Tube feeding and the dementia patient
  • Artificial feeding and the permanently unconscious patient
  • Choosing to stop eating and drinking
  • Decisions about ventilators
  • Decisions about resuscitation
  • The many meanings of "DNR"
  • Other decisions to forgo treatment
12. Hastening Death
13. Coping With Events Near Death
14. The Dying Of Children
15. Dying Suddenly
16. Enduring Loss
17. Additional Resources

Email Webmaster~Jean E. Miller