Huntington Disease Support Information
Missouri

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Missouri HDSA Chapter
Serving Missouri, parts of Kansas and Illinois
President:    Kimberly Golden
Email:          hdsa@stlouis.missouri.org
Address:
HDSA St. Louis Chapter
8039 Watson Rd., Suite 132
Webster Groves, MO 63119-5325
Phone:     (314) 961-4372
Website:  None

Toll Free:  1-866-707-4372
Informationhdsa@stlouis.missouri.org

Development Director: Sandra Boll
Email:  hdsa@st.louis.missouri.org
 
Center of Excellence
HDSA Center of Excellence
Washington University School of Medicine
660 S. Euclid Campus Box 8111
St. Louis, MO, 63110
Hours:
Services:
Appointment:  (314) 362-6908 or
 
Director: Joel Perlmutter, M.D.
Contact: Susan Donovan
Email:  
medsec@npg.wustl.edu  
Phone: (314) 362-6909
Fax: (314) 362-0168
 
HD Clinical Studies:  B. Racette  
Phone: (314) 362-7148

Physicians:
Black, Kevin J., M.D.
Racette, Brad A., M.D.
Revilla, Fredy J. , M.D.
(See Centers website for physician bio's)
Website has physician bio's, clinical trials and research taking place at CoE.
 
Genetic Testing Facility
University of Missouri Hospital
Division of Medical Genetics
Columbia, MO 65121
Contact:   Robin Troxell, MS, Genetic Counselor
Phone:     (573) 884-6735
Fax:         (573) 884-3543
 
Physicians HD Experienced
Need your input
Name
Address
City
Phone
Fax
Email
Office Hours
Contact:
Speciality

Special Notices

Special Notices
September 7, 2002
Celebration of Hope Dinner

 The Starlight Roof

At The Chase Plaza Hotel

212 North Kingshighway Boulevard

Eleventh Floor

St.  Louis, Missouri 63108

Dinner Amount - $125 per plate


Contact: Sandra Boll

Phone:   314-961-4372

or toll free at 866-707-4372

A dinner gala to support  the HDSA Center of Excellence at Washington University School of Medicine.

Support Group Meetings
St. Louis
When:   3rd Tuesday each month
Time:     7:00 p.m.
Where:  The Heights
             8001 Dale Avenue
             Richmond Heights
Contact: Sandra Boll
E-mail
hdsa@stlouis.missouri.org
Phone:  (314) 961-4372
Participants: All associated with HD
 
Cape Girardeau, MO
To Be Determined, Call For Info.
Contact: Sandra
Phone: toll free 866-707-4372
Participants: All associated with HD
 
Nursing Homes
HD Experienced
 
Monterey Park Nursing Center
4600 Little Blue Parkway
Independence, Mo. 64057
Phone:  1-816-795-5613
Has 2 HD patients
 
Lathrop Health Care Center
702 Center Street
Lathrop, MO 64465
Phone: 816-528-4257
 
IHS of St. Louis at Big Bend Woods
110 Highland Ave. -
Valley Park  - MO - 63088
Phone:  314-225-5144
Fax:      314-225-8427
Contact:   Darryl Powell
Certified:  Medicaid/Medicare
Total Number of Beds: 176
Parklike setting, friendly staff, clean, visitors allowed 24/7, therapies, neurocable, pets allowed,  library, beauty services,private phones/TV, neuro rehab, clinical dietician, etc.  Willing to take HD patients who are not at a risk of fleeing (ie no lock down facilities).
 
Spring Place Care Center
3450 Russell
St. Louis, MO
Phone: (314) 772-9100
HD Patients: Has 1  53 year old male patient with HD as of May 2002
 
Warrenton Nursing & Rehabilitation
Highway AA
Warrenton MO 63383
Phone: 636-456-8700

State Long Term Care Ombudsman Program
Missouri State Long-Term Care Ombudsman
Division on Aging
Department of Social Services
P.O. Box 1337
615 Howerton Court
Jefferson City, MO 65102-1337
Phone:  (573) 526-0727
FAX:      (573) 751-8687