Click on the underlined subject to be taken to information.
Donations
programs and services. Donations can be earmarked for one of the funds shown on this HDSA website or you can designate your donation strictly for Research or Family Services.
Huntington's Disease Society of America
158 West 29th Street, 7th Floor
New York, N.Y. 10001-5300
Phone: (212) 242-1968 or 800-345-HDSA (345-4372)
Fax: (212( 239-3430
www.hdsa.org
Personal Note:
The HDSA also established the Kelly E. Miller Juvenile HD Fund to support families who have a child with juvenile Huntington's Disease. Donations can be made to the HDSA with your donation marked for the Kelly E. Miller Juvenile HD Fund.
Hereditary Disease Foundation
The HDF appreciates donations towards Research on Huntington's Disease. 100% of every public donation will fund scientific research.
The Hereditary Disease Foundation
2444 Wilshire Boulevard, #511
Santa Monica, CA. 90403
Phone: (310) 575-9656
Donations Through Employers
If you want to know more about how to give to Community Health Charities or include us in your employee giving campaign - visit the Employee Giving Campaigns section of this site. If you would like to find how Community Health Charities works in your community, visit our Local Offices.
Local offices are affiliates of Community Health Charities that work within the community to create strategic alliances and local workplace giving campaigns. These affiliates link employees with their local health charities and services. Please contact our State Affiliates to find out how Community Health Charities works in your community.
Check with your United Way local office to see if Huntington's Disease Society is listed and request your employee designated your contributionsto United Way to the code provided for HD. For example:
Florida the code is 4221
New York the code is 0526 for HDSA
Texas the code is 050038 for HDSA
Washington the code is 5679 for the HDSA WA Chapter
Virginia/DC the code is 6009 for HDSA
Advocacy
HDSA is engaged in efforts to protect the rights of our HD families, in addition to bringing into focus the difficult situations these families encounter to the attention our federal, state and local elected officials through advocacy. Educating elected officials and community leaders about the needs of those facing this devastating degenerative disease is one of the best tools we have at this time in the fight against HD. Read how YOU can help!
Map of Congress <-click on for map of US to locate your state
respresentatives.
Tips on Telephoning & Writing & Emailing Your Respresentative including how to contact them
Get contacts for President & VP, US Congress, State and Local Officials
Under this section, if you see something you want to write your congressrepresentiatve on, you can put in your zip code to get information on them.
See what issues are currently being discussed in Congress
Department of Health and Human Services - Including all names and contact info as well as agencies within this department such as: Centers for Medicare & Medicaid Services (formerly HCFA) and the ability to compose aletter to them on that site!
Track your senators' and representative's votes by e-mail!
Register To Vote
Begin by clicking the state in which you live, or use the menu below. You can then enter the information required by your state to register to vote. Once you have entered the required information, you will be able to print and mail your voter registration application (requires Adobe Acrobat:download). Note: Residents of New Hampshire, North Dakota, Wisconsin, and Wyoming are not permitted to use this form. (Secure site)
Huntington's Disease Society of America- Latest information released to the Press by the HDSA
Media Guide (National & Local)
Find and contact national and local media search by Local/Zip, Individual, Organization or by clicking on your state in the map.
To find your state & federal representatives, or your local news media, use links below by typing in your zip code and pressing "go"  |
