Articles discussing age and probability of getting HD
thought provoking experiences of others at-risk, what
if a parent hasn't been tested, what's in the best interest
of your child,an at-risk checklist, Q&A on risk of inheriting HD
Information on genetic disorders, genetic testing in HD,
counseling, psychological impact of testing, prenatal and
preimplanation, genetic resources and personal stories.
All available information I have had archived on JHD including
age of appearance, age of onset, children of parents with HD,
clinical description of JHD, what kids are saying, duration of
illness in JHD, symptoms, talking with children about HD, stages
of HD and other JHD resources.
An extensive list of descriptions of the various symptoms which
can be associated with Huntington's Disease from anxieties
through treatments. Resources include several HD specific
guidebooks and other available information.
Communication resources, problems and strategies
Extensive listing of resources, facts and suggestions
regarding nutrition, speech & swallowing guides,
warning signs, taste changes, weight gain/loss, resources
for fortified drinks/shakes, and resources on feeding tubes.