Huntington's Disease
Activities of Daily Living
(Blysma, Mov. Dis.,1993,8(2):183-90)
This is a informant rated instrument designed to follow disease progress.
An ADL total score is calculated by summing all of the values (zero through
three only, four is not added) for each item. A pro-rated value may be
used if all items are not applicable.
- Personal Care
- Eating
- 0-normal
- 1-independent but slow or some spills
- 2-needs help to cut of poor, avoids some foods, spills often
- 3-must be fed most foods
- Dressing
- 0-normal
- 1-slow or clumsy, independent
- 2-needs help with ties or buttons
- 3-needs help with all clothing
- Interest in Personal Appearance
- 0-same as before illness
- 1-interest when going out but not at home
- 2-allows self to be groomed, or on request only
- 3-resists grooming
- Taking Medication
- 0-remembers without help
- 1-remembers if dose left in special place
- 2-tries but forgets frequently if not reminded
- 3-medication must be given by others
- 4-no regular pills
- Household Care
- Cooking
- 0-plans and prepares meals
- 1-some cooking but less than normal
- 2-gets food out if prepared by other
- 3-does nothing for meals
- 4-never did any
- Housekeeping
- 0-as before
- 1-does at least 1/2 usual
- 2-occasional dusting of small jobs
- 3-no longer keeps house
- 4-never did any
- Home Maintenance
- 0-as before
- 1-does at least 1/2 usual
- 2-occasional minor jobs
- 3-no longer does any
- 4-never did any
- Home Repairs
- 0-does repairs as before
- 1-does at least 1/2 usual
- 2-occasional minor repairs
- 3-no longer does any
- 4-never did any
- Work and Money
- Employment (outside home)
- 0-as before
- 1-some trouble, at same job
- 2-works at easier job, part time, trouble finding job
- 3-no longer works
- 4-never worked
- Handling Money
- 0-as well as before
- 1-trouble with checkbook or making decisions
- 2-most taken over by others
- 3-no longer handles money
- Social Relationships
- Spouse
- 0-as good as before
- 1-mild marital problems
- 2-serious problems, still living together
- 3-divorce or separation
- 4-never married/ widowed
- Children
- 0-adequate parent
- 1-more easily irritated, quicker to punish
- 2-neglects their emotional and physical needs
- 3-cannot care for children/ abuses them
- 4-no children at home
- Family and Friends
- 0-sees as often as before
- 1-sees less often
- 2-accepts visitors or invitations, but doesn't seek out
- 3-refuses to socialize
- Keeping Busy
- 0-same interests as before
- 1-less interested but still does on occasion
- 2-watches TV of others doing things
- 3-if left alone does nothing
- Communication
- Travel
- 0-same as before illness
- 1-gets out if someone else drives
- 2-gets out in wheelchair
- 3-home or hospital bound
- Phone
- 0-same as before
- 1-calls a few familiar numbers
- 2-only answers phone
- 3-never uses phone
- 4-never had a phone
- Write
- 0-same as before
- 1-writes less often
- 2-may sign name, leave message, or grocery list
- 3-never writes
- 4-never wrote much
Source: http://persoweb.francenet.fr/~mondor/huntadl.htm |