Physician's Guide To HD
The Huntington's Disease Society of America published "A Physicians Guide to the Management of Huntington's Disease" Second Edition June 2000. This booklet is the standard of HD medical care and free a copy is available to any physician treating someone with Huntington's Disease. Copies are available for anyone else for $12.50. Contact Anita Mark-Paul, Extension 19, at the HDSA
1-800-345-4372.
Every family living with HD should have a copy of this very important book
Explaining inheritance of the gene, CAG repeats in the huntingtin gene, Testing/Diagnostic, Predictive and Prenatal Testing
Explains chorea, dystonia, abnormal eye movements, dysarthria, gait disturbance, and dysphagia, rigidity, spasticity myodonus, tics, epliepsy, swallowing difficulties. nuitrition, dysarthia (swallowing) and falls.
Explains lack of disorganization, initiative, perservation, impulsivity, irritability and temper outbursts, unawareness, attention, speech and language, and learning and memory difficulties along with coping strategies for some of these symptoms.
Explains depression, suicidal thoughts, mania, obsessive-compulsive disorders, schizophrenia-like disorders, delirium, irritability, apathy, anxiety and sexual along with describing current methods of treatment in HD
Explains Driving, Smoking, Sleep Disorders, Incontinence, Disability and End of Life Issues in HD
Other Resources:
Joseph Jankovic, MD |
