Click on Section to be taken to information.
Overview
What "respite" services are
Why extra help may be needed
Who "respite" helpers are
Situations indicating that extra help is needed
What to say when you call for help
Make sure you involve the person being cared for in all decisions
Make sure the extra helpers are both reliable and honest
"We've never had anyone else help us before."
"The person I'm caring for doesn't want anyone else here."
"I feel funny having strangers come into my home."
"It's too expensive."
Ask yourself and the person you are caring for how well the plan is working
If your plan does not work, consider temporarily moving the person you are caring for into a nursing home
Topics with an arrow (
) in front of them are actions you can take or symptoms you can look for.
The information in this plan fits most situations, but yours may be different.
If the doctor or nurse tells you to do something other than what is recommended here, follow what they say.
Written for cancer but you can substitute any life threatening illness or condition. Source American College of Physician's/Internal Medicine (ACP/ASIM) http://www.acponline.org/public/h_care/6-respit.htm
Some other articles on this website (click on topic)
Communication - Problems with Communication, Mental Confusion and Seizures
Helping Younger People cope with death and funerals
OTHER RESPITE RESOURCES
Visiting Angels
http://www.visitingangels.com/
1-610-642-HOME
Contact Central Office: http://www.visitingangels.com/contactus.shtml
Our Visiting Angels are screened and bonded, and have experiences and qualifications which range from providing companionship to caring for the terminally ill. Their backgrounds include strong prior training, working in nursing and convalescent homes, hospitals, day centers and private homes. Many have obtained certifications such as C.N.A.'s, L.V.N.'s and Home Health Aides. These traits enable them to provide you with the quality care you deserve. Most of their websites say they offer "hardship" discounts to families too, vs the typical $14.00 an hour, if you meet their financial hardship requirements.
ARIZONA: Chino Valley
CALIFORNIA: Fresno; Northridge; Woodland Hills; Exeter; Sacramento; Santa Clara; Moreno Valley; Alamo;
Redondo Beach; Los Angeles.
COLORADO: Colorado Springs; Pueblo.
CONNECTICUT: Brookfield.
DISTRICT of COLUMBIA: Washington.
FLORIDA: West Melbourne; Fort Myers; St.Petersburg; Tarpon Springs; Delray Beach; Ft.Lauderdale; Clermont.
GEORGIA: Albany; Valdosta.
IDAHO: Kuna; Marion.
KANSAS: Overland Park.
KENTUCKY: Florence.
LOUISIANA: Baton Rouge.
MARYLAND: Laurel; Bowie.
MASSACHUSETTS: Worthington; Marshfield; N.Attleboro.
MICHIGAN: Frankenmuth; Holland; Grand Rapids; St.Clair Shores.
MINNESOTA: Anoka; St.Louis Park.
MISSISSIPPI: Hattiesburg.
MISSOURI: St. Louis.
NEVADA: Henderson; Sparks.
NEW JERSEY: Long Valley.
NEW MEXICO: Albuquerque.
NEW YORK: Goshen; Williamsville.
N.CAROLINA: Raleigh; Durham; Greensboro; Charlotte.
OHIO: Akron. OKLAHOMA: Yukon.
OREGON: Central Point.
PENNSYLVANIA: Havertown; Cogan Station; Allentown; Wilkes-Barre; Lancaster.
S.CAROLINA: Sumter; Mt.Pleasant.
TENNESSEE: Chattanooga.
TEXAS: Mesquite; Houston; Spring; Austin; Round Rock; San Antonio; Corpus Christi; Humble; Flint.
UTAH: West Valley.
WASHINGTON: Bellingham; Seattle.
WISCONSIN: Pewaukee; Milwaukee; West Allis.
CANADA: British Columbia; Ontario
This website lists all of the California Respite Programs (wish all states had this) http://www.chtop.com/calstate.htm
National Respite Network
http://www.chtop.com/archbroc.htm
Contact your State's respite coalition, click on your state at http://www.chtop.com/coalitions.htm
ARCH National Respite Network
provides a variety of informational resources to the general public:
a National Respite Locator Service: http://www.chtop.com/locator.htm
Respite for Families with Children Experiencing a Serious Emotional Disturbance
http://www.chtop.com/archfs34.htm
Finding respite services for a child with challenging behavioral issues, can be difficult for families. This factsheet discusses the definition and characteristics of emotional disturbance, issues for families, program considerations including the referral process, the matching of respite providers and families, liability, training, and evaluation, as well as the need for state involvement in program planning. Written by Judith Sturtevant, Director of Vermont Federation of Families, and Sandra Elliott, former Director of Family Respite Services of Overlook Center, Inc
Introduction
Definition
Characteristics
Family Considerations
Program Considerations
State Administration
Summary
References
Resources
Providing Respite at Conferences for Children with Special Needs
http://www.chtop.com/archfs38.htm
More and more conference planners are understanding the value of offering respite services to families attending their conferences. Written by Susan Bridges Robertson, who has direct experience in offering respite at a large national conference, this comprehensive factsheet covers logistical concerns, liability issues, staffing questions, meals, registration basics, budget issues, and evaluation.
Respite Services for Families with Adolescents at Risk of Abuse or Neglect
http://www.chtop.com/archfs39.htm
An often forgotten population in the field of respite, teens and their families in crisis can greatly benefit from temporary relief. Program design, services for parents, and services for adolescents are discussed. Written by Jill Edwards-Sutton, Child and Family Services Director with Mid-Michigan Community Action Agency.
Adult Day Care: One Form of Respite for Older Adults
http://www.chtop.com/archfs54.htm
Adult day care centers, also known as adult day services, have been providing a form of respite for caregivers for more than twenty years. In 1978 there were only 300 centers nationwide. By the 1980s there were 2,100 centers, and today there are about 4,000 centers nationwide, according to the National Adult Day Services Association (NADSA). NADSA reports that the need for such centers has "jumped sharply to keep pace with the mushrooming demand for home and community based services."
Introduction
Benefits of Adult Day Care
Types of Adult Day Care
Who Uses Adult Day Care?
How Long do Participants Stay?
How Do I Choose a Center?
ELDER CARE (59.5 or older)
http://www.eldercare.gov/default.asp
Eldercare Locator, a nationwide toll-free service, has helped older adults and their caregivers find local services for seniors. The U.S. Administration on Aging is now pleased to make part of this service available on-line so that consumers can easily link to the information and referral (I&R) services of their state and area agencies on aging. These I&R programs can help you identify appropriate services in the area where you or your family member resides.
The toll-free Eldercare Locator service operates Monday through Friday, 9:00 a.m. to 8:00 p.m., Eastern time, and can be reached at 1-800-677-1116. Find a facility in your state at above website
National Adult Day Services Association's
NCOA Office Location
409 Third St., SW
Washington, D.C. 20024
Phone 202/479-1200
E-mail info@ncoa.org
Directory of Adult Day Services http://www.nadsa.org/
Hollywood CALIF Senior Angels
http://www.hollywood4seniors.com/hollywood_senior_angels.htm
Finding Federal Funds for Respite and Crisis Care Services
http://www.chtop.com/archfs52.htm
This fact sheet provides basic information about each of the federal programs that provide funding to states which they could, if they chose to, use to fund respite and/or crisis care programs. For more complete information about each of these federal programs, readers are encouraged to see the ARCH Guide to Federal Funding for Respite and Crisis Care Programs
Results of ARCH 2001 Survey of State Respite Coalitions
http://www.chtop.com/archfs56.htm
From an historical perspective, planned and crisis respite are relatively new services for families caring for a dependent family member. Although respite programs were developed in the 1960s, most States still report a serious shortage of respite for families in need. This nationwide shortage of respite programs, coupled with the realization that there is strength in numbers, planted the seed that has lead to the growth of State respite coalitions
