Juvenile-HD

HOME

INDEX Page
Tools For Viewing
10 The Most Commonly Asked Questions
Clinical Trials & Research
Huntington's Disease~WeMove Info
Advocacy/Donations/Press Info
Clinical Definition & Search
Facing HD~Family Handbook
JHD Handbook-Chapter 1
JHD Info-Stanford Univ.
Physician's Guide To HD
Caring for People with HD
Physical & Occupational Therapy In HD
Understanding Behaviour in HD-Dr. Jane Paulsen
Understanding Behavioral-Dr. Edmond Chiu
Advanced Stages Caregivers Handbook
First Shift-Certified Nursing Assistants
Activities of Daily Living-HD
Unified HD Rating Scale (UHDRS) Motor Section
Westphal Variant
SECTION 1 - AT RISK
Age & Probability Chart
At Risk For HD-What Next?
At-Risk Checklist
Best Interest of Child?
Crystal Ball?
Food For Thought
Parent Hasn't Tested?
Q&A On Risk of Inheriting JHD
Testing Children
SECTION 2 - GENETIC TESTING
Genetic Disorders & Birth Defects
Genetic Testing for HD
Genetic Counseling-In General
Psychological Impact
Intro: Genetics/Genetic Testing
Prenatal & Preimplanation
Prenatal Testing-In General
o Genetic Testing Resources
o Personal Stories
SECTION 3 - JHD
Coping With The Early Years
Age of HD Appearance
Age of Onset-Historical
Family-HD Underestimated
Children of Parents With HD
Child~Parent Ill
Clinical Description JHD
HD - What Kids Are Saying
HD & Me
JHD-Duration of Illness
JHD-Clinical and Research
JHD Symptoms
Parenting With HD
Patients/Families Coping
Talking With Children About HD
5 Stages of HD
JHD Resources
SECTION 4 - SYMPTOM RECOGNITION
Parent Resources
8 Fears of A Chronic Illness
Anxiety/Apathy/Irritability~HD
Anxiety, Fears & Phobias
Apathy-Physician's Guide
Ataxia
Attention-Perceptual/Unawareness Physician's Guide
Bed/Pressure Sores
Bed/Pressure Ulcer Guideline
Behavior Management
Bi-Polar Disorders
Botulinum toxin therapy
Bradykinesia
Caring Tips
Child Abuse-Reconizing Signs
Chorea-Physician's Guide
Chorea
Cognitive/Decision Making/Impulsivity
Cognitive-Short Tips
Contractures~Joints Locking
Dehydration-Physician's Guide
Dehydration
Delirium
Denial of HD
Depression~Physician's Guide
Depression-Understanding It
Depression-How To Help
Depression - Treatment Resistant Patient
Depression-Other Resources
-Read If Your Child Is On Antidepressant
Disgust - Impaired Recognition in HD
Dissociative disorders
Driving - Physician's Guide
Dyslexia
Dyslexia Resources
Dystonia
Dystonia/Rigidity & Spasticity Physician's Guide
Dystonia-Predominant Adult-Onset HD
Epileptic Seizures and Epilepsy
Epilepsy-Seizures~PG
-Seizures ~Special Populations
Falling~Safety
Falling - Subdural Hematoma Risk
Fevers - Unexplained
Fevers, sweating & menstural cycles in HD
GERD (Stomach)
HD Principle Treatments
Hallucinations/Psychosis~PGHD
Hand muscle reflexes in HD
Hypothalamus - A Personal Theory
Insomia ~Physician's Guide
Irritability~Temper Outburst Physician's Guide
Learning Disability
Mania/OCD~Physician's Guide
Mood Disorder Rate In HD
Myoclonus (Movements)
Nails-What To Look For
Night Terrors
Obsessive Compulsive OCD
Panic Disorder
Personality disorders
Pneumonia
Pneumonia-Advanced Stages
Pneumonia - Aspirated (Inhaled)
Prosody - Social Impairment
Sexuality~Physician's Guide
Skins Sensitivity
Sleep Disorders
Smoking-Physician's Guide
Spasticity
Stress
Tremors
Why Certain Symptoms Occur
Symptom & Treatment Resources
SECTION 5 - COMMUNICATION
Communication Resources
Communication Problems
Communication Strategies For HD~Jeff Searle
SECTION 6 - EATING/SWALLOWING/NUITRITION
Hints For Weight Loss in HD
HD & Diet~HSA Fact Sheet 7
Nutrients: Some Possible Deficiency Symptoms
Nutrition and HD~Anna Gaba (Recipes)
Nutrition Information In HD~Naomi Lundeen
Speech & Swallowing~Lynn Rhodes
Swallowing & Nutrition Physician's Guide To HD
Swallowing & Nuitrition Resources
Swallowing Warning Signs
5 Swallowing Problems
Taste changes in HD
Weight Gain
Resources-Drinks/Shakes
-Feeding Tubes~Advanced Stages of HD
-Feeding Tube~Jean Miller
-Feeding Tubes: One More Word ~Jean Miller
-Feeding Tubes & Baby Foods
-Feeding Tube~Dental Care
-Feeding Tube Instructions~Jean Miller
-Feeding Tube Resources
SECTION 7 - THERAPIES
Finding a Therapist - Behavoir
What Is A Physiotherapist?
Physical Therapy In HD
Speech-Language Therapy
Therapy Descriptions
Therapy Resources- Easter Seal
Therapy Resources
SECTION 8 - MEDICATIONS
HD Treatments
Medications-Movement Disorders
Medication/Emergency Info Forms
Cutting Prescriptions
Drugs-Look 'Em Up
-Adolescents Under 25
-Antidepressant Adverse Effects
-Anti-psychotic
-Anxiety-Antidepressant
A-Z Mental Health Drugs
-Creatine
-EPA~Fish Oil
-Haldol/Haloperidol - Clinical Sheet
-Haldol~Clinician Description
-Haldol & HD
-Haldol/HD Patient Experiences
-Haldol~ Patient Handout
-Mood Stabilizers: ASK 3 Questions
-Neuroleptic Malignant Synd WARNING
-Olanzipine-Risperidone/blood tests
-Celexa/Luvox/Paxil/Prozac/Zoloft
-Psychiatric Drugs & Children
Sertraline ~Zoloft
-Spasticity Meds/Treatments
-SSRI Medications
-Tardive Dyskinesia WARNING
-Weight Gain Medications
-Sites/Help the Medicine Go Down
-Vitamin & Mineral Deficiencies
SECTION 9 - SURGERIES
Surgery-Movement Disorders
o Surgery Resources
SECTION 10 - PROCEDURES
Clinic Visits-How To Prepare
CT Scans, MRI's etc.
Swallowing Tests
Tests Commonly Used
o Procedures Resources
SECTION 11- ALCOHOL/DRUGS
Alcohol-Parent's Guide
Alcohol-Talking To Your Child
Drugs-What To Do?
Drugs-Talking To Your Child
Disciplining-Ages 0-13 & Up
SECTION 12- SUICIDE
Straight Talk On Suicide
Teen Suicide-You Need To Know
o Suicide Resources
SECTION 13 - DIVORCE
Divorce & Child Stress
Tips For Divorcing Parents
SECTION 14 - DISABILITY ISSUES
Guides To Disability Issues
Caring-Child & Medical Technology
Caring for a Seriously Ill Child
Child Long Term Illness
Disability-Special Education Plan
IFSP Early Intervention Process
Disability Resources
Financial Planning
Wishes Can Come True-Children's Wish Foundations
Special Needs Resources
Special Needs Camp - About
Special Needs Camp - Finding One
SECTION 15 - ASSISTIVE TECHNOLOGY
Child Assistive Technology
Adaptive Equipment Resources
Products
SECTION 16 - EMOTIONAL ISSUES
Signs of Unhealthy Self-Esteem
Emotional Behavior Links
o Emotional Support Resources
SECTION 17 - GRIEF
Helping Child Deal With Death
o Grief Addtional Resources
SECTION 18 - ADD/ADHD
ADD & Teens
Conduct Disorders
FAQS & Related Info
Understanding AD/HD
What Is AD/HD?
Research Articles
Resources
SECTION 19 - HD SUPPORT GROUPS
HD Support Groups
National Youth Association
SECTION 20 - HD LINKS
HD Links
Related Resources
Tips For Friends
SECTION 21 - BENEFITS/INSURNACE
HD Disability
Benefits Check UP - See What You Can Get
Medical Insurance Bureau's Facts On You!
Medicare-Medicaid
Medicare Rights-Home Health & Hospice
Medicare Rights Center Resources
No Insurance? Try This!
Prescription Drug Cards Part I
Prescription Drug Cards Part II
Social Security-Children With Disabilities
SECTION 22 - ARTICLES/JHD
JHD and ADD
SECTION 23 - CAREGIVING
Articles-Resources
Caregiver Self-Assessment
Caregiver's Handbook
"First Shift With A Person With HD"
Getting Respite Care/Help At Home
Helpful Forms-Info
Home Emergency Preparations
Symptom Management
Ten Tips
Useful Tools
SECTION 24 - BIO
Our Personal Experience
Coping At The End
Kelly E. Miller
Song & Verse
Letter From My Heart
GUESTBOOK
Prescription Drug Cards Part I

INDEX Page

All in all not a tremendous discount when considering the amount of money needed to be spent annually, but every little bit helps if you qualityf.  Here are some of the prescription drug programs.  There are also many discount drug programs that exclude pre-existing conditions.
Eli Lilly and Company have announced a program which will offer immediate benefit to Medicare beneficiaries eligible for the program.  The program is called "LillyAnswers"

The LillyAnswers card will allow seniors and people with disabilities under Medicare to pay a flat $12 fee for a 30-day supply of any retail distributed Lilly drug. Excluded from the program are controlled substances or any products not distributed by retail pharmacies.  

Who is eligible for the LillyAnswers card?

  • U.S. citizens
  • Medicare-enrolled seniors and people with disabilities
  • No other prescription drug coverage
  • Individual annual income below $18,000; household income below $24,000

To apply for the card, eligible seniors and disabled persons can call 1-877-RX-LILLY.  The applicant will receive a short application form to fill out and return along with copies of their most recent tax return and Medicare card.  Once the application is processed and eligibility confirmed, it will take 2-4 weeks for the eligible applicant to receive their LillyAnswers card.  Once the patient is enrolled in the LillyAnswers program, the card is good for 12 months.  After 12 months, the patient will have to requalify through the application process.

Among the drugs covered by the program are: Evista for osteoporosis, Humulin and Humalog for diabetes, Prozac for depression, and Zyprexa for schizophrenia.  Unfortunately, since controlled substances are not included in the program, popular arthritis pain medication, Darvocet N-100, is not covered with the LillyAnswers card. 

The Medicine Program -This organization assists people who may qualify to enroll in one or more patient assistance program by preparing and processing all the needed paperwork. This seems to be a very useful service for folks who can't or don't wish to handle this themselves. There is a charge of $5 per drug. 1-573-996-7300 Click here for Program Information   

    If you do not have insurance or a government program that pays for your outpatient prescription medicines . . .

    If the high cost of your Medicine causes you a financial hardship . . .

    You may qualify to enroll in a privately sponsored program which provides. . .MEDICINE at NO COST!

    May we suggest that you print an Application Form and make it available to someone who would benefit from this program? 

    Two of the new pharmacy drug programs have the same qualifiers. Both Glaxo Smith Klines Orange Card and Novarits Care Card are free and your savings are instant when you pay for your prescriptions.

To be eligible you must:

  • Be a Medicare beneficiary (age 65 or older or on Medicare due to disability).
  • Receive an annual income of less than $26,000/individual or
    $35,000/couple (300% of federal poverty level).
  • Have no other prescription drug coverage. This includes private
    insurance (such as Medigap or employer sponsored retiree coverage) and public assistance through federal or state programs (such as Medicaid, Medicaid spend-down,
    Medicare HMO, VA, and state pharmaceutical assistance programs such as Hoosier Rx).

GlaxoSmithKlines Orange Card

is free and offers qualified Medicare recipients an average savings of 30% off the usual price paid on all GlaxoSmithKline outpatient medicines. Applications are available through healthcare providers or by calling toll free 1-888-ORANGE6(672-6436).

The Novartis Care Card

is also free and qualified Medicare recipients should receive savings of at least 25% on selected Novartis outpatient prescription products.  Applications are available at pharmacies, doctors offices, and by calling toll free  1-866-974-CARE (2273). You can also print an application off their web site www.novartis.com/carecard/

Pfizers The Share Card Program works differently.  The program offers:

  • A $15 fee for each 30-day Pfizer prescription
  • All Pfizer prescription drugs, as well as two co-promoted drugs
  • Simple, easy-to-enroll process
  • No membership or enrollment fee
  • Acceptance by most retail pharmacies in the U.S.
  • No limits on number of prescriptions or medicines
  • Health information and guidance on applying for existing benefits programs provided at patient's request

You must:

  • Be a Medicare beneficiary.
  • Have a gross income below $18,000/individual or $24,000/couple.
  • Have no other prescription coverage.

Pfizers The Share Card Program offers a 30-day supply of a Pfizer
prescription for $15 (per prescription). All Pfizer prescription drugs are covered with no limit on the number of prescriptions or medicines.

Patients can call 1-800-717-6005 to receive an application or visit their website www.pfizerforliving.com for more information.

Patients will use the card at participating pharmacies and pay a $15 fee per Pfizer prescription for each 30-day supply of medicine.

It is suggested that you talk with your doctor or pharmacist to determine if you would benefit from these programs. They should also be aware of any new discount cards that may come out.

To receive a free copy of the booklet, Finding Help with Prescription Costs, call SHIIP at 1-800-452-4800.

NOTE: This information was gathered from the companies web sites and should not be taken as a guarantee of eligibility. Address your questions to: Ask SHIIP, 311 W. Washington Street, Ste. 300, Indianapolis, IN 46204. Or e-mail
higgins@qtm.net

Drug List

This page has a list of all the drugs currently in the NeedyMeds system. From there you can go directly to the page that has the information about the drug you are interested in

An asterisk (*) after a drug name means that the manufacturer has set up a web site specifically for that drug. To find that web site, click on the drug name in the drug list. Once you get to the manufacturer's page, you'll see the list of drugs at the top of the page. Any drug with its own web site will be in blue and underlined.


Patient Assistance Program Applications -

Many patient assistance programs will accept copies of their applications. Here you'll find a list of all the applications we have received. Some of the copies are very clear - and others are not. If you have a better copy that we can scan in please send it to us.

NEW Pharmaceutical Discount Card Comparison