Juvenile-HD

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SECTION 1 - AT RISK
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SECTION 2 - GENETIC TESTING
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SECTION 3 - JHD
Coping With The Early Years
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SECTION 4 - SYMPTOM RECOGNITION
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-Read If Your Child Is On Antidepressant
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-Seizures ~Special Populations
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Falling - Subdural Hematoma Risk
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Fevers, sweating & menstural cycles in HD
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Hand muscle reflexes in HD
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Nails-What To Look For
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SECTION 5 - COMMUNICATION
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Communication Problems
Communication Strategies For HD~Jeff Searle
SECTION 6 - EATING/SWALLOWING/NUITRITION
Hints For Weight Loss in HD
HD & Diet~HSA Fact Sheet 7
Nutrients: Some Possible Deficiency Symptoms
Nutrition and HD~Anna Gaba (Recipes)
Nutrition Information In HD~Naomi Lundeen
Speech & Swallowing~Lynn Rhodes
Swallowing & Nutrition Physician's Guide To HD
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5 Swallowing Problems
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Weight Gain
Resources-Drinks/Shakes
-Feeding Tubes~Advanced Stages of HD
-Feeding Tube~Jean Miller
-Feeding Tubes: One More Word ~Jean Miller
-Feeding Tubes & Baby Foods
-Feeding Tube~Dental Care
-Feeding Tube Instructions~Jean Miller
-Feeding Tube Resources
SECTION 7 - THERAPIES
Finding a Therapist - Behavoir
What Is A Physiotherapist?
Physical Therapy In HD
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SECTION 8 - MEDICATIONS
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-Adolescents Under 25
-Antidepressant Adverse Effects
-Anti-psychotic
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A-Z Mental Health Drugs
-Creatine
-EPA~Fish Oil
-Haldol/Haloperidol - Clinical Sheet
-Haldol~Clinician Description
-Haldol & HD
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-Haldol~ Patient Handout
-Mood Stabilizers: ASK 3 Questions
-Neuroleptic Malignant Synd WARNING
-Olanzipine-Risperidone/blood tests
-Celexa/Luvox/Paxil/Prozac/Zoloft
-Psychiatric Drugs & Children
Sertraline ~Zoloft
-Spasticity Meds/Treatments
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-Tardive Dyskinesia WARNING
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SECTION 9 - SURGERIES
Surgery-Movement Disorders
o Surgery Resources
SECTION 10 - PROCEDURES
Clinic Visits-How To Prepare
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Swallowing Tests
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o Procedures Resources
SECTION 11- ALCOHOL/DRUGS
Alcohol-Parent's Guide
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Drugs-What To Do?
Drugs-Talking To Your Child
Disciplining-Ages 0-13 & Up
SECTION 12- SUICIDE
Straight Talk On Suicide
Teen Suicide-You Need To Know
o Suicide Resources
SECTION 13 - DIVORCE
Divorce & Child Stress
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SECTION 14 - DISABILITY ISSUES
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Special Needs Camp - About
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SECTION 15 - ASSISTIVE TECHNOLOGY
Child Assistive Technology
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Products
SECTION 16 - EMOTIONAL ISSUES
Signs of Unhealthy Self-Esteem
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o Emotional Support Resources
SECTION 17 - GRIEF
Helping Child Deal With Death
o Grief Addtional Resources
SECTION 18 - ADD/ADHD
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What Is AD/HD?
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Resources
SECTION 19 - HD SUPPORT GROUPS
HD Support Groups
National Youth Association
SECTION 20 - HD LINKS
HD Links
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SECTION 21 - BENEFITS/INSURNACE
HD Disability
Benefits Check UP - See What You Can Get
Medical Insurance Bureau's Facts On You!
Medicare-Medicaid
Medicare Rights-Home Health & Hospice
Medicare Rights Center Resources
No Insurance? Try This!
Prescription Drug Cards Part I
Prescription Drug Cards Part II
Social Security-Children With Disabilities
SECTION 22 - ARTICLES/JHD
JHD and ADD
SECTION 23 - CAREGIVING
Articles-Resources
Caregiver Self-Assessment
Caregiver's Handbook
"First Shift With A Person With HD"
Getting Respite Care/Help At Home
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Home Emergency Preparations
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SECTION 24 - BIO
Our Personal Experience
Coping At The End
Kelly E. Miller
Song & Verse
Letter From My Heart
GUESTBOOK
Falling - Subdural Hematoma Risk

INDEX Page

One I thought worth reporting is the below one.   This is a risk in mid to early-late and late stage of HD from falls and people should be aware of the symptoms as sometimes they can sometimes be confused with "normal" HD related symptoms where there is cognitive problems.

HD causes an atrophying of certain areas the brain which, in affect, shrinks the size of the brain causing more room inside of the skull. A fall or blow to the head could then cause the brain to hit the sides of the skull causing a subdural hematoma.  This is similar to "shaken baby syndrome".

Every HD caregiver should be aware of the potential for this when a person with HD is experiencing a lot of falling and know the symptoms to watch out for to get immediate attention.

Love
Jean
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Acute (subacute) subdural hematoma

Alternative names:
subdural hematoma - acute/subacute

Definition:
A brain disorder involving a collection of blood in the space between the inner and the outer membranes covering the brain, where symptoms usually develop within a short time after a head injury.

Risks include head injury, very young or old age, chronic use of aspirin, chronic use of anticoagulant medication (blood thinners), and alcoholism or chronic alcohol use.

Other important risk factors include any disorder that may result in a risk of falling, particularly disorders where confusion and cognitive impairment are already present and may mask symptoms of acute/subacute subdural hematoma.

Subdural hematoma occurs in people of all ages. Acute/subacute subdural hematoma is less common, but more often fatal, than chronic subdural hematoma. Chronic subdural hematoma occurs in about 1 out of 10,000 people.

Symptoms & Treatment: 

A head CT scan confirms the diagnosis of subdural hematoma and will pinpoint the exact location of the hematoma.
This disease may also alter the results of a cranial MRI.
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This may be of some help understanding damage that can be sustained from falls. We've talked about the threat of subdural hemorrhage before and I've added a description of that below.  In the advanced stage HD there is a need to watch for this since the HD causes shrinkage of the brain, leaving more space in the skull for hemorraging to occur from falls or trauma to the head.

http://www.p-h.com/  
Under "Neurology"
More Than Just A Bump On The Head Item 212
$ 3.10 each . 24 page paperback Reading Level = 4

About Concussions: Mild Traumatic Brain Injuries (TBI
This resourceful guide can do most of the work for you by helping patients diagnose and/or cope with the ''unseen'' injury of mild TBI. It helps patients, as well as family and friends, understand the problems that can result from mild TBI and gives tips on how to deal with them.

Contents
The "unseen" injury
What happens when you have a mild TBI
Signs of mild TBI
   vascular and tension headaches
   language problems
   loss of problem solving skills
   trouble paying attention
   loss of memory
   personality changes
   seizures
   inner ear problems
Tips for healing
How it affects family
Getting help
   therapy
   doctors
   support
   depression
Tips for family and friends
---------------------------------------
In a subdural hemorrhage or hematoma, blood slowly accumulates in the space between the dura sheath and the underlying subarachnoid membrane, the two outermost layers of the meninges (the membranes covering the brain). The blood vessels that rupture are usually veins on the underside of the dura mater.
 
A head injury --either from something as traumatic as an automobile
accident or, in seniors, as apparently benign as bumping your head--can cause these veins to tear and form a blood clot, squeezing against the brain. The pressure placed on the brain by this mass, known as a hematoma, can cause the brain to shift and produces a spectrum of mental disturbances and neural defects.

Subdural hemorrhage or hematoma is seen most often in seniors who have sustained a fall and struck their head. Symptoms may emerge weeks to many months after the original trauma. The person may not remember the head injury, especially if alcohol was involved.

The degree of severity is associated with the amount of time elapsed between the initial development of symptoms and loss of consciousness. If the interval is less than 48 hours, the injury is considered acute. If it is between 48 hours and 2 weeks, it is subacute. If the interval is longer  than 2 weeks, it is considered chronic.

Acute subdural hematoma often is fatal, despite prompt medical attention
and surgical intervention. Subacute and chronic forms are not as dangerous but require medical attention when symptoms  develop. Brain damage can result if untreated.

Aspirin and other types of anticoagulants increase the risk of bleeding in
or around the brain.

Symptoms
 Convulsions
 Loss of consciousness with weakness or paralysis after a head injury
 Numbness on one side of the body
 Headache
 Nausea

What your doctor looks for
Weakness; decrease in level of consciousness; changes in the fundus (the
back of the interior of the eye) noted on retinal inspection; areas of
pooled blood identified by CT scan; abnormal blood clotting tests; use of
anticoagulants.

Treatment
Diuretic medications control brain swelling caused by sudden accumulations of fluid. Surgery may be necessary to locate and control bleeding, as well as to remove any accumulation of blood or clotted blood. If neurologic symptoms dictate, anticonvulsant drugs may be prescribed after surgery to control or prevent seizures that otherwise might develop. Such medications might have to be taken long-term because seizures may develop even 2 years following the injury.

When to call your doctor
Any head injury that causes loss of consciousness should be investigated
by a doctor.
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Dr. Koop Subarachnoid hemorrhage

Symptoms:

Additional symptoms that may be associated with this disease:

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Also see

Brain pain: Recognizing a subdural hematoma - MayoClinic....
If a subdural hematoma goes unrecognized and untreated, it can be fatal. But if detected early, most can be treated with good results. Learn the warning signs


http://www.emedicine.com/emerg/topic560.htm
eMedicine Journal, January 16 2001, Volume 2, Number 1

eMedicine - Subdural Hematoma : Article by Grant P Sinson...
Subdural Hematoma - A subdural hematoma SDH is classified by the amount of time that has elapsed from the inciting event, if known, to the diagnosis.