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New Portable Mini Feeding Pump
Families have told me about a new device, EnteralLite, made by ZEVEX http://www.zevex.com/enteral/home.htm which is an Ambulatory Enteral Feeding Pump. It is the smallest and lightest, charges the quickest and lasts the longest. It has an interval feeding feature and works in any direction, and does not have a "drip chamber". This is an ideal device for mobile, active children making a significant contribution to their quality of life.
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Nutrition and HD~Anna Gaba (Recipes) - Includes infor on feeding tubes.
"Tube, Pumps & Food" which rates different feeding devices discusses both the Mic-Key tube and EnteralLite
The Legal Aspects of PEG Feeding in Patients with Huntington's Disease in the UK http://www.huntingtons.org.uk/peg.htmThere are some very good points made in this article discussing:
Consent
Advance decision making
Withholding Life-prolonging Treatment(PEG feeding)
hydration and feeding (see below).
Extra Safeguards regarding artificial nutrition and hydration.
Legal reforms as they relate to PEG feeding
Gastrostomy Support http://www.challengenet.com/~g-tube/index2.spml?clkd=iwmHere you will find helpful information about living with special tube feeding needs including a FAQ sheet on tubes. The "Cookbook & Meal Ideas" has a lot of good information. The "Feeding Programs" links you to several good articles like "Thick and Easy" a complete line of products for people with swallowing difficulties.
ALS: Home Tube Feeding Guide for Patients with Amyotrophic Lateral Sclerosis http://www.mni.mcgill.ca/neuropatient/resource.htmlin PDF format for printing. Scan down page to: Patient Education: Factsheets
To crush or not to crush?(medicinal tablets)
http://www.findarticles.com/cf_0/m3231/2_30/59586716/p1/article.jhtml?term=Tube+feeding+%2F+Safety+and+security+measuresWhat to consider before giving medications to a patient with a tube
or who has trouble swallowing
Medical Complications caused by Eating Disorders
http://closetoyou.org/eatingdisorders/complications.htmDefinitions; Starvation; Treatment for Starvation; Amenorrhea (when your period stops); Heart Attack Warnings and What is Tube Feeding?
SWALLOWING PROBLEMS - How to Help
http://dementia.ion.ucl.ac.uk/candid/factsheets/swallowingfacts.htmFrequently Asked Questions about Tube Feeding
http://www.challengenet.com/~g-tube/gtubefaq.htmlGastrostomy Feeding Tube Placement
http://www.realage.com/Connect/healthadvisor/adulthealth/crs/gasfed.htmMuscular Dystrophy Article
http://www.muscular-dystrophy.org/information/Care/gast.htmlWhat is a "Gastrostomy"? Excellent information from finding out you should have a tube through care like will it hurt, what does it feel like, etc.
Internal Feeding Tube de-Clogger
http://www.bionixusa.com/declogg.htmThe Drainage Bulb and G-Tube Holder
http://www.findarticles.com/cf_0/m0VPB/11_21/58089702/p1/article.jhtml?term=Tube+feeding+%2F+Safety+and+security+measuresWhen used for feeding tubes, the product's lower profile and secure
fastening discourages inadvertent patient "pullout" or tampering.
Should My Child Have a Feeding Tube?
http://www.nnpdf.org/parent1.htmThe decision to tube feed is a very difficult one - the realization that there
is a loss of skills, perhaps the guilt that you cannot manage some part of this, the prospect of surgical procedure and pain, and all the other emotionally charged issues with family, friends, and acquaintances including what it will do the getting people to help care for him at home and in school.
CHILDREN WITH FEEDING TUBES
written by Suzanne Evans Morris, Ph.D. Speech-Language Pathologist
PART 1: PART 1: THE ISSUES http://www.new-vis.com/fym/papers/p-feed12.htmPART 2: TREATMENT PROGRAMS http://www.new-vis.com/fym/papers/p-feed14.htmPART 3: MAKING THE TRANSITION TO ORAL FEEDING http://www.new-vis.com/fym/papers/p-feed15.htmFeeding and Nutrition In Children With Developmental Disabilities
http://www.lissencephaly.org/medical/feeding.htmIt Works For Us - From the Parents
http://www.gle.egsd.k12.co.us/opitz/daily.htmlDaily Care G-tubes, NG tubes, J-tubes, Bard Buttons and Mic-key Buttons
Feeding Tubes
http://www.redrival.com/wsphillips/ftube.htmFeeding Tube Patient Education Manual
http://www.med.upenn.edu/cnss/pem/tubecare.htmlLife On A Feeding Tube
http://www.monkeygirl.atfreeweb.com/feedingtube.htmPlease feel free to read through the next few pages if you are interested
in learning about what my life on a feeding tube is like.
Going with the flow (preventing clogged feeding tubes)
http://www.findarticles.com/cf_0/m3231/n4_v28/20512637/p1/article.jhtml?term=Tube+feeding+%2F+Safety+and+security+measuresNurses can anticipate problems to prevent clogged enteral feeding tubes
with a few simple steps. Prevention is much better than having to try to clean...
Confused about what feeding tube goes where, and why?
http://www.findarticles.com/cf_0/m3231/12_30/68504986/p1/article.jhtml?term=Tube+feeding+%2F+Safety+and+security+measuresLearn the ins and outs of each device by reading this comprehensive overview.
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