|
| HD Support Groups |
|
|
|
|
|
|
 NATIONAL GROUPS
HDSA Chapters & Support Groups
To locate an HDSA Chapter or peer led support group in your state, go to the HD Support Information website
http://clix.to/HDSupportInfo Start A Peer-Lead Support Groups in Your City
ON LINE
Most of these you may have to join the group before being able to participate, however all are free! Friends you meet in these chat rooms, message-boards, and list-servs can be a real stabilizing force in your life. You will find understanding and friendship.
All Known HD Related Chat Rooms and Message Boards
A miscellaneous list of HD chatrooms
http://www.hdac.org/allchat.php?gmt=300 At Risk-For Huntington's Disease
Chat for anybody, but with people at riskfor Huntington's Disease in mind. http://groups.yahoo.com/group/huntingtonsatrisk This is an inter-active email group. HDCaregivers is designed to be a safe haven for caregivers of those with Huntington's Disease. Members are encouraged to honestly express their feelings and situations with others who have "been there and done that" as well as with those who are anticipating similar situations.
The goal is to provide a POSITIVE supportive environment. In order to avoid hurt feelings this is for caregivers only please.
HDAC Chat Room This is the chat room for the Huntington's Disease Advocacy Center. It's intended as a backup to MGH Chat when you're having trouble with the MGH chat site. It is an IRC chat applet. http://www.hdac.org/phorum31/list.php?f=5 HDAC Message Board This message board is intended for you to post questions related to HD that are not covered by the FAQ. http://www.hdac.org/chat.html Hunt-Dis
This is an inter-active email group. The HUNT-DIS mailing list is for discussing all aspects of life as it is affected by Huntington's Disease in one or more family members. Discussions of any topic directly related to how Huntington's has, is or will be affecting your life are welcomed. All family members are invited to join including spouses, parents, and children of a Huntington's individual as well as any person afflicted with or at risk for Huntington's Disease (HD).
With almost 400 members world-wide there are about 100 messages a day on this list. If this volume is too much for you, please set your options to "Digest" after joining the group. This provides you with one message each day, containing all messages from the previous day. http://www.hdac.org/huntdis/index.html Hunt-Dis Scholarship Fund Raising Projects
The members of Hunt-Dis raise funding to help send families with financial difficulties to an HDSA National convention. Several items can be found here including orginal artwork, calendars, books by Carmen Leal, the Non-Chew Cookbook, etc. http://clix.to/HDSFwebsite
This chat forum is visited regularly by the HD community and is hosted by the HD Lighthouse http://www.hdlighthouse.org/see/index.html?/see/forum/bb/bb.htm
MGH HD Chat Room - One of the original HD discussion groups on line: http://neuro-mancer.mgh.harvard.edu/echat42/Huntingtons_Disease/ This is a Message Board only where you post or answers a message on the board and no email is involved.
This message board is one of the first HD on-line groups and is hosted by Department of Neurology at Massachusetts General Hospital.
National Youth Association Young people and adults ages 9 through 29 living with HD. These young people have made it their mission to make this the LAST generation of Huntington's Disease! This forum is for all members of the NYA or any young adult living with HD in their life. Come on in........together you CAN make a difference!!http://groups.yahoo.com/group/hdsanationalyouthassociation |
|
|
|
| | |
|
|
|
| | |
|
|
|  | |
|
|
| | |
|
|
|