| INDEX Page |
| Tools For Viewing |
| 10 The Most Commonly Asked Questions |
| Clinical Trials & Research |
| Huntington's Disease~WeMove Info |
| Advocacy/Donations/Press Info |
| Clinical Definition & Search |
| Facing HD~Family Handbook |
| JHD Handbook-Chapter 1 |
| JHD Info-Stanford Univ. |
| Physician's Guide To HD |
| Caring for People with HD |
| Physical & Occupational Therapy In HD |
| Understanding Behaviour in HD-Dr. Jane Paulsen |
| Understanding Behavioral-Dr. Edmond Chiu |
| Advanced Stages Caregivers Handbook |
| First Shift-Certified Nursing Assistants |
| Activities of Daily Living-HD |
| Unified HD Rating Scale (UHDRS) Motor Section |
| Westphal Variant |
| SECTION 1 - AT RISK |
| Age & Probability Chart |
| At Risk For HD-What Next? |
| At-Risk Checklist |
| Best Interest of Child? |
| Crystal Ball? |
| Food For Thought |
| Parent Hasn't Tested? |
| Q&A On Risk of Inheriting JHD |
| Testing Children |
| SECTION 2 - GENETIC TESTING |
| Genetic Disorders & Birth Defects |
| Genetic Testing for HD |
| Genetic Counseling-In General |
| Psychological Impact |
| Intro: Genetics/Genetic Testing |
| Prenatal & Preimplanation |
| Prenatal Testing-In General |
| o Genetic Testing Resources |
| o Personal Stories |
| SECTION 3 - JHD |
| Coping With The Early Years |
| Age of HD Appearance |
| Age of Onset-Historical |
| Family-HD Underestimated |
| Children of Parents With HD |
| Child~Parent Ill |
| Clinical Description JHD |
| HD - What Kids Are Saying |
| HD & Me |
| JHD-Duration of Illness |
| JHD-Clinical and Research |
| JHD Symptoms |
| Parenting With HD |
| Patients/Families Coping |
| Talking With Children About HD |
| 5 Stages of HD |
| JHD Resources |
| SECTION 4 - SYMPTOM RECOGNITION |
| Parent Resources |
| 8 Fears of A Chronic Illness |
| Anxiety/Apathy/Irritability~HD |
| Anxiety, Fears & Phobias |
| Apathy-Physician's Guide |
| Ataxia |
| Attention-Perceptual/Unawareness Physician's Guide |
| Bed/Pressure Sores |
| Bed/Pressure Ulcer Guideline |
| Behavior Management |
| Bi-Polar Disorders |
| Botulinum toxin therapy |
| Bradykinesia |
| Caring Tips |
| Child Abuse-Reconizing Signs |
| Chorea-Physician's Guide |
| Chorea |
| Cognitive/Decision Making/Impulsivity |
| Cognitive-Short Tips |
| Contractures~Joints Locking |
| Dehydration-Physician's Guide |
| Dehydration |
| Delirium |
| Denial of HD |
| Depression~Physician's Guide |
| Depression-Understanding It |
| Depression-How To Help |
| Depression - Treatment Resistant Patient |
| Depression-Other Resources |
| -Read If Your Child Is On Antidepressant |
| Disgust - Impaired Recognition in HD |
| Dissociative disorders |
| Driving - Physician's Guide |
| Dyslexia |
| Dyslexia Resources |
| Dystonia |
| Dystonia/Rigidity & Spasticity Physician's Guide |
| Dystonia-Predominant Adult-Onset HD |
| Epileptic Seizures and Epilepsy |
| Epilepsy-Seizures~PG |
| -Seizures ~Special Populations |
| Falling~Safety |
| Falling - Subdural Hematoma Risk |
| Fevers - Unexplained |
| Fevers, sweating & menstural cycles in HD |
| GERD (Stomach) |
| HD Principle Treatments |
| Hallucinations/Psychosis~PGHD |
| Hand muscle reflexes in HD |
| Hypothalamus - A Personal Theory |
| Insomia ~Physician's Guide |
| Irritability~Temper Outburst Physician's Guide |
| Learning Disability |
| Mania/OCD~Physician's Guide |
| Mood Disorder Rate In HD |
| Myoclonus (Movements) |
| Nails-What To Look For |
| Night Terrors |
| Obsessive Compulsive OCD |
| Panic Disorder |
| Personality disorders |
| Pneumonia |
| Pneumonia-Advanced Stages |
| Pneumonia - Aspirated (Inhaled) |
| Prosody - Social Impairment |
| Sexuality~Physician's Guide |
| Skins Sensitivity |
| Sleep Disorders |
| Smoking-Physician's Guide |
| Spasticity |
| Stress |
| Tremors |
| Why Certain Symptoms Occur |
| Symptom & Treatment Resources |
| SECTION 5 - COMMUNICATION |
| Communication Resources |
| Communication Problems |
| Communication Strategies For HD~Jeff Searle |
| SECTION 6 - EATING/SWALLOWING/NUITRITION |
| Hints For Weight Loss in HD |
| HD & Diet~HSA Fact Sheet 7 |
| Nutrients: Some Possible Deficiency Symptoms |
| Nutrition and HD~Anna Gaba (Recipes) |
| Nutrition Information In HD~Naomi Lundeen |
| Speech & Swallowing~Lynn Rhodes |
| Swallowing & Nutrition Physician's Guide To HD |
| Swallowing & Nuitrition Resources |
| Swallowing Warning Signs |
| 5 Swallowing Problems |
| Taste changes in HD |
| Weight Gain |
| Resources-Drinks/Shakes |
| -Feeding Tubes~Advanced Stages of HD |
| -Feeding Tube~Jean Miller |
| -Feeding Tubes: One More Word ~Jean Miller |
| -Feeding Tubes & Baby Foods |
| -Feeding Tube~Dental Care |
| -Feeding Tube Instructions~Jean Miller |
| -Feeding Tube Resources |
| SECTION 7 - THERAPIES |
| Finding a Therapist - Behavoir |
| What Is A Physiotherapist? |
| Physical Therapy In HD |
| Speech-Language Therapy |
| Therapy Descriptions |
| Therapy Resources- Easter Seal |
| Therapy Resources |
| SECTION 8 - MEDICATIONS |
| HD Treatments |
| Medications-Movement Disorders |
| Medication/Emergency Info Forms |
| Cutting Prescriptions |
| Drugs-Look 'Em Up |
| -Adolescents Under 25 |
| -Antidepressant Adverse Effects |
| -Anti-psychotic |
| -Anxiety-Antidepressant |
| A-Z Mental Health Drugs |
| -Creatine |
| -EPA~Fish Oil |
| -Haldol/Haloperidol - Clinical Sheet |
| -Haldol~Clinician Description |
| -Haldol & HD |
| -Haldol/HD Patient Experiences |
| -Haldol~ Patient Handout |
| -Mood Stabilizers: ASK 3 Questions |
| -Neuroleptic Malignant Synd WARNING |
| -Olanzipine-Risperidone/blood tests |
| -Celexa/Luvox/Paxil/Prozac/Zoloft |
| -Psychiatric Drugs & Children |
| Sertraline ~Zoloft |
| -Spasticity Meds/Treatments |
| -SSRI Medications |
| -Tardive Dyskinesia WARNING |
| -Weight Gain Medications |
| -Sites/Help the Medicine Go Down |
| -Vitamin & Mineral Deficiencies |
| SECTION 9 - SURGERIES |
| Surgery-Movement Disorders |
| o Surgery Resources |
| SECTION 10 - PROCEDURES |
| Clinic Visits-How To Prepare |
| CT Scans, MRI's etc. |
| Swallowing Tests |
| Tests Commonly Used |
| o Procedures Resources |
| SECTION 11- ALCOHOL/DRUGS |
| Alcohol-Parent's Guide |
| Alcohol-Talking To Your Child |
| Drugs-What To Do? |
| Drugs-Talking To Your Child |
| Disciplining-Ages 0-13 & Up |
| SECTION 12- SUICIDE |
| Straight Talk On Suicide |
| Teen Suicide-You Need To Know |
| o Suicide Resources |
| SECTION 13 - DIVORCE |
| Divorce & Child Stress |
| Tips For Divorcing Parents |
| SECTION 14 - DISABILITY ISSUES |
| Guides To Disability Issues |
| Caring-Child & Medical Technology |
| Caring for a Seriously Ill Child |
| Child Long Term Illness |
| Disability-Special Education Plan |
| IFSP Early Intervention Process |
| Disability Resources |
| Financial Planning |
| Wishes Can Come True-Children's Wish Foundations |
| Special Needs Resources |
| Special Needs Camp - About |
| Special Needs Camp - Finding One |
| SECTION 15 - ASSISTIVE TECHNOLOGY |
| Child Assistive Technology |
| Adaptive Equipment Resources |
| Products |
| SECTION 16 - EMOTIONAL ISSUES |
| Signs of Unhealthy Self-Esteem |
| Emotional Behavior Links |
| o Emotional Support Resources |
| SECTION 17 - GRIEF |
| Helping Child Deal With Death |
| o Grief Addtional Resources |
| SECTION 18 - ADD/ADHD |
| ADD & Teens |
| Conduct Disorders |
| FAQS & Related Info |
| Understanding AD/HD |
| What Is AD/HD? |
| Research Articles |
| Resources |
| SECTION 19 - HD SUPPORT GROUPS |
| HD Support Groups |
| National Youth Association |
| SECTION 20 - HD LINKS |
| HD Links |
| Related Resources |
| Tips For Friends |
| SECTION 21 - BENEFITS/INSURNACE |
| HD Disability |
| Benefits Check UP - See What You Can Get |
| Medical Insurance Bureau's Facts On You! |
| Medicare-Medicaid |
| Medicare Rights-Home Health & Hospice |
| Medicare Rights Center Resources |
| No Insurance? Try This! |
| Prescription Drug Cards Part I |
| Prescription Drug Cards Part II |
| Social Security-Children With Disabilities |
| SECTION 22 - ARTICLES/JHD |
| JHD and ADD |
| SECTION 23 - CAREGIVING |
| Articles-Resources |
| Caregiver Self-Assessment |
| Caregiver's Handbook |
| "First Shift With A Person With HD" |
| Getting Respite Care/Help At Home |
| Helpful Forms-Info |
| Home Emergency Preparations |
| Symptom Management |
| Ten Tips |
| Useful Tools |
| SECTION 24 - BIO |
| Our Personal Experience |
| Coping At The End |
| Kelly E. Miller |
| Song & Verse |
| Letter From My Heart |
| GUESTBOOK |
What Is a Pressure Sore?
Treatment
