Family Care Research Program is a collaborative, interdisciplinary effort by the faculity of the Michigcan State University Colleges of Nursing and Human Medicine and the Department of Family Practice. Although it deals with cancer http://www.healthteam.msu.edu/fcrp/ it has information on:
Also see Our Final Journey http://clix.to/FinalJourney which has a lot of resources on estate planning and articles/information for patients, families and caregivers.