PEG Tubes and baby foods
Movement Disorder Medicines
Anxiety-Antidepressant Medications
Antidepressant Adverse Effects
Warnings~Adolescents Under 25
Sertraline ~Zoloft
Anti-psychotic Medications
Prozac, Luvox, Paxil, Zoloft & Celexa
Olanzipine & Risperidone and blood tests
Cutting Prescriptions
Sites That Help the Medicine Go Down
Vitamins & Minerals
Why Certain Symptoms Occur In HD
Tests Commonly Used -Neuropsychological Examination
Symptom vs Medication
Speech & Swallowing Difficulties~Lynn Rhodes
Swallowing Problem Warning Signs
Swallowing Tests
Nutrition and HD~Anna Gaba (Recipes)
HD & Diet~HSA Fact Sheet 7
HD~Swallowing & Nutrition
Weight Gain
5 Levels Difficulty In Swallowing
Feeding Tube~Advanced Stages of HD
Feeding Tube~Jean Miller
One more word on feeding tubes
PEG Tubes and baby foods
Feeding Tubes-More Info
HD~Falling/Safety Issues
HD~Cognitive/Decision Making/Impulsivity
Cognitive-Short Tips
Denial of HD
HD~Irritability/Temper Outbursts
Managing behavioral problems
Depression - Treatment Resistant Patient
HD~Mania, Obsessive Disorders
HD~Hallucinations & Psychosis
HD~Rigidity, Spasticity, and Dystonia
Adaptive Products
Teen Suicide~Let's Talk Facts
Stress Explained-Easy/Fun Format
How To Help Someone Chronically Ill
Legal Planning for Incapacity
Out-of-Home Care Options FAQ
Preparing for Emergencies
The following message is posted on the MGH forum and I thought
it important enough to repost here.   I tried some of the baby foods
with Kelly which she enjoyed.  But her tube was too small to try and
get anything but liquid down it.  Damn, I wonder if I could have asked
for a wider tube to allow pureed foods?

Reading things like this just reminds me......we never can ask too many
questions for our pHD's care.  What we need is a little person walking
behind us giving us reminders or to-do lists constantly.  Now I'm we ever stop saying "I'm sorry angel"


If you're a member of the MGH forum you can write to this person
by responding to their post, at:

My husband has been feeding via peg tube for more than 2 yrs due to MS dysphagia. The feedings consisted of jevity, jevity plus and TwoCal. Despite ever increasing volumes of these products used, my husband's weight dropped, his general nutrition dwindled until he developed pressure ulcers that were slow to heal.

After a particularly nasty spell in. hospital, he was returned home to die under hospice care. I quit my job and stayed home to be a caregiver.

I suspected that my husband's poor condition was due to inadequate nutrition from the canned liquid foods, so I decided to supplement his PEG feedings with REAL FOOD.

I started with stage 2 baby food meats, they are fine enough to pass easily through the tube if diluted with about 1/2 jar of water and added directly to his jevity in the feeding bag.  The tube did not clog, and the food was well tolerated by my husband.

Within five days, both his nurse and I saw astonishing improvement in his stage 4 wounds! Tissue growth was greatly accelerated. Also, the chronic problem with hard stools - "jevity stones" - vanished and his stools became regular, easily passed and well formed.

I advanced from the baby meats to stage 2 dinners, using ratio of 1/2 jar water to 1 jar food, added to his regular jevity, also baby cereal and fruit for breakfast. Husband gained weight, regrew lost hair, and the pressure ulcers, one of which was a stage 4 with his hipbone exposed when I brought him home 4 months ago is now closing skin and almost completely healed.

Will someone out there PLEASE spread the word throughout the medical community that these so-called "complete" nutrition formulae are seriously defective in quantity/quality of protein.

Also, using REAL Foods is possible and can be done safely via a PEG.
I will share what I have learned with anyone who asks.