Lou Wilkinson HD Convention Scholarship Fund
Your Personalized Agenda


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2004 HDSA National Convention


Your Personalized
2003 HDSA Convention Schedule

The HDSA must pack so much information into 2.5 very short days to try and meet everyone's needs, the schedule is always very hectic with little time to make it from one session to the next much less socialize!

Whether this is your first year attending an HDSA National Convention or if you're an "old pro" this form might help you! 

The rooms the sessions will be held in probably won't be determined until it's closer to the convention, and you can write those in later.
This form can be modified to only include those sessions you want to attend then printed out and taken with you to help keep you on schedule!


HDSA 2003 Convention Schedule

Thursday June 5th Hotel Check-in 4:00 PM       Check your bags @ the Concierges

Hunt Dis Pool Party 4:40 PM hotels outdoor pool

Friday, June 6th

Morning Break            10-10:30 am Exhibit Hall
Lunch On Your Own    Noon-1PM
Afternoon Breaks       2:15-2:30 then 3:45-4:00 PM Exhibit Hall
Dinner                         8:00 PM on your own







8:45 -10:00 am

Opening Session


10:30 - Noon

HDSA Focus on the Family Forum


Noon - 1:00 pm

NYA luncheon session


1:00 - 2:15 pm



HD 101: An Introduction


Support Group Leader Training: Part 1


When Does HD Begin: The Controversy


The Genetics of HD: Fact or Fiction


Getting Help: Veterans Administration &
Social Security Benefits


American Disabilities Act and HD


Grassroots Fundraising


Planned Giving


2:30 - 3:45 pm



Managing Cognitive Symptoms


HD Research: From Mouse to Man


Support Group Leader Training: Part II


Coping with Grief & Loss


Youth Panel: Pre-Teen


Youth Panel: Teen & Young Adult


Assistive Technology Solutions & Strategies


Special Events


4:00 - 5:15 pm

Sharing & Networking Sessions


Newly Diagnosed


Persons with HD




At-risk - Adults


At-risk - Youth



June 7th Continued


4:00 - 5:15 pm

Parents of At-Risk Children


People who have Tested Negative


Tested Positive


Partners of At-Risk Persons


Partners of Newly Diagnosed


5:30 - 5:45 pm

Words of Inspiration


6:00 - 8:00 pm

Convention Reception & All-Star Hoop-A- Thon


Saturday, June 8th                                                             Order Airport Limo/Taxi for Sunday____

Morning Break                      10:15-10:45 Exhibit Hall
Lunch On Your Own             Noon-1:00 pm
Afternoon Breaks                 2:152:30 and 3:45-4:00 pm
Generation 2000 Banquet   6:30 PM







7:00 8:00 am

Walk For The CURE


8:30 8:45 am

Words of Inspiration


9:00 Noon

HDSA Research Forum


1:00 2:15 pm



Managing Motor Symptoms


Helping Kids Talk To Parents


Helping Parents To To Kids


Medication & Alternative Treatment for Symptom Management


HD Study Group (HSG) Clinical Trials


Nutrition & HD


Developing Chapter Boards


2:30-3:45 pm



Depression & Suicide


To Test or Not To Test


Understanding Behavioral Features of HD


Speech & Swallowing Strategies


Managing Functional Decline


Exercise & Physical Therapy


Developing Chapter Budgets and Plan of Work


4:00 5:15 pm



Family Planning


Community Care Alternatives


Palliative Measures In End Stage HD


Managing Behavioral Features of HD


Advance Directives


Advocating for HD


Managing Caregivers Stress & Burden


6:30 pm-1:00 am

Generation 2000 Gala

Banquet Hall


Sunday, June 8th     Hotel Checkout - Noon

Airline/Etc. Departure Time:_____________                                          Order Airport Limo/Taxi ____







8:00 - 8:45 am

Interfaith Service


9:00 - 10:15 am

Continental Breakfast and

Roundtable Discussions




HD Research


Medical & Long Term Care Insurance


Advocating for HD


Physical Therapy


Occupational Therapy


Walk-A-Thons & Hoop-A-Thons


Fund Raising Evenets


Social Workers


HDSA Center of Excellence


Cognitive & Behavioral Issues


Medication and Treatment


National Youth Alliance


Social Security


Family Planning


Caregiver Issues


Speech & Swallowing


Support Groups




11:00 11:30

Closing Ceremony


Start Planning Now!

HDSA 19th Annual HDSA Convention

St. Louis, Missouri!

This Personalized HDSA 2003 Convention Agenda is provided by the Hunt-Dis Convention Scholarship Fund (HDSF). The purpose of this fund is to send people, who otherwise could not afford it, to an HDSA national convention who participate in any on-line HD support group. Since the HDSFs inception we have helped send 8 people to a HDSA convention!!

Please visit our website at http://clix.to/HDSFwebsite