Lou Wilkinson HD Convention Scholarship Fund
Your Personalized Agenda

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2004 HDSA National Convention

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Your Personalized
2003 HDSA Convention Schedule

The HDSA must pack so much information into 2.5 very short days to try and meet everyone's needs, the schedule is always very hectic with little time to make it from one session to the next much less socialize!

Whether this is your first year attending an HDSA National Convention or if you're an "old pro" this form might help you! 

The rooms the sessions will be held in probably won't be determined until it's closer to the convention, and you can write those in later.
 
This form can be modified to only include those sessions you want to attend then printed out and taken with you to help keep you on schedule!

_______________________s

HDSA 2003 Convention Schedule

Thursday June 5th Hotel Check-in 4:00 PM       Check your bags @ the Concierges

Hunt Dis Pool Party 4:40 PM hotels outdoor pool

Friday, June 6th

Morning Break            10-10:30 am Exhibit Hall
Lunch On Your Own    Noon-1PM
Afternoon Breaks       2:15-2:30 then 3:45-4:00 PM Exhibit Hall
Dinner                         8:00 PM on your own

Attend

Time

Session

Location

Speaker

 

8:45 -10:00 am

Opening Session

   
 

10:30 - Noon

HDSA Focus on the Family Forum

   
 

Noon - 1:00 pm

NYA luncheon session

   
 

1:00 - 2:15 pm

Workshops:

   
   

HD 101: An Introduction

   
   

Support Group Leader Training: Part 1

   

When Does HD Begin: The Controversy

   

The Genetics of HD: Fact or Fiction

   
   

Getting Help: Veterans Administration &
Social Security Benefits

   
   

American Disabilities Act and HD

   
   

Grassroots Fundraising

   
   

Planned Giving

   
 

2:30 - 3:45 pm

Workshops:

   
   

Managing Cognitive Symptoms

   
   

HD Research: From Mouse to Man

   
   

Support Group Leader Training: Part II

   
   

Coping with Grief & Loss

   
   

Youth Panel: Pre-Teen

   
   

Youth Panel: Teen & Young Adult

   
   

Assistive Technology Solutions & Strategies

   
   

Special Events

   
 

4:00 - 5:15 pm

Sharing & Networking Sessions

   
   

Newly Diagnosed

   
   

Persons with HD

   
   

Caregivers

   
   

At-risk - Adults

   
   

At-risk - Youth

   
 

Friday

June 7th Continued

   
 

4:00 - 5:15 pm

Parents of At-Risk Children

   
   

People who have Tested Negative

   
   

Tested Positive

   
   

Partners of At-Risk Persons

   
   

Partners of Newly Diagnosed

   
 

5:30 - 5:45 pm

Words of Inspiration

   
 

6:00 - 8:00 pm

Convention Reception & All-Star Hoop-A- Thon

   

Saturday, June 8th                                                             Order Airport Limo/Taxi for Sunday____

Morning Break                      10:15-10:45 Exhibit Hall
Lunch On Your Own             Noon-1:00 pm
Afternoon Breaks                 2:152:30 and 3:45-4:00 pm
Generation 2000 Banquet   6:30 PM

Attend

Time

Session

Location

Speaker

 

7:00 8:00 am

Walk For The CURE

   
 

8:30 8:45 am

Words of Inspiration

   
 

9:00 Noon

HDSA Research Forum

   
 

1:00 2:15 pm

WORKSHOPS:

   
   

Managing Motor Symptoms

   
   

Helping Kids Talk To Parents

   
   

Helping Parents To To Kids

   
   

Medication & Alternative Treatment for Symptom Management

   
   

HD Study Group (HSG) Clinical Trials

   
   

Nutrition & HD

   
   

Developing Chapter Boards

   
 

2:30-3:45 pm

WORKSHOPS:

   
   

Depression & Suicide

   
   

To Test or Not To Test

   
   

Understanding Behavioral Features of HD

   
   

Speech & Swallowing Strategies

   
   

Managing Functional Decline

   
   

Exercise & Physical Therapy

   
   

Developing Chapter Budgets and Plan of Work

   
 

4:00 5:15 pm

WORKSHOPS

   
   

Family Planning

   
   

Community Care Alternatives

   
   

Palliative Measures In End Stage HD

   
   

Managing Behavioral Features of HD

   
   

Advance Directives

   
   

Advocating for HD

   
   

Managing Caregivers Stress & Burden

   
 

6:30 pm-1:00 am

Generation 2000 Gala

Banquet Hall

 

Sunday, June 8th     Hotel Checkout - Noon

Airline/Etc. Departure Time:_____________                                          Order Airport Limo/Taxi ____

Attend

Time

Session

Location

Speaker

 

8:00 - 8:45 am

Interfaith Service

   
 

9:00 - 10:15 am

Continental Breakfast and

Roundtable Discussions

   
   

Genetics

   
   

HD Research

   
   

Medical & Long Term Care Insurance

   
   

Advocating for HD

   
   

Physical Therapy

   

Occupational Therapy

   

Walk-A-Thons & Hoop-A-Thons

   
   

Fund Raising Evenets

   
   

Social Workers

   
   

HDSA Center of Excellence

   
   

Cognitive & Behavioral Issues

   
   

Medication and Treatment

   
   

National Youth Alliance

   
   

Social Security

   
   

Family Planning

   
   

Caregiver Issues

   
   

Speech & Swallowing

   
   

Support Groups

   
   

Nutrition

   
 

11:00 11:30

Closing Ceremony

   

Start Planning Now!

HDSA 19th Annual HDSA Convention

St. Louis, Missouri!

This Personalized HDSA 2003 Convention Agenda is provided by the Hunt-Dis Convention Scholarship Fund (HDSF). The purpose of this fund is to send people, who otherwise could not afford it, to an HDSA national convention who participate in any on-line HD support group. Since the HDSFs inception we have helped send 8 people to a HDSA convention!!

Please visit our website at http://clix.to/HDSFwebsite