Lou Wilkinson HD Convention Scholarship Fund
Huntington's Disease Memorial Quilt


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2004 HDSA National Convention

The Hunt-Dis "Huntington's Disease Memorial Quilt"
"The Quilt"

I Am The "Huntingtons Disease"
Memorial Quilt
On Display For All Mankind
Look Upon My Patchwork
And These Memories Unwind

Each Square was
Wrought With Loving Hands
All Are Different You Can See
 Each Tells A Story Of Love And Loss
Then All Were Intrusted To Me
 Will Travel This Wide World Over
My Beauty For All To See
Spreading The Word
Of A Cruel Disease
And The Message
"Remember Me"

Ron C.

About The Quilt

Members of the Hunt-Dis internet support group initiated a national Huntington's Disease Memorial Quilt project to honor loved ones with Huntington's Disease.

This was a major undertaking and through the support of HDSA Chapters, HD Support Groups and HD Centers of Excellence Phase I of the Quilt is 120 squares!  The Quilt was unveiled at the 2001 HDSA Convention in San Diego.

Phase II of the Quilt project has been intiated with plans to unveil this section, along with the orginal (Phase I Quilt), at the
2003 HDSA National Convention in Houston, Texas. 

For instructions on how to submit a square for your loved one please visit the following website: 
Quilt Instructions,

Loan Of The Quilt

The Huntington's Disease Memorial Quilt is available for loan from Hunt-Dis to any HDSA Chapter, Support Group, Center of Excellence or HD family supporting an HD awareness, educational or fund raiser event.  It is a powerful and beautiful reminder of the terrible impact of Huntington's Disease in all of our lives.

The Quilt has been to the International Huntington's Disease convention, to Canada and traveled throughout the United States honoring people with Huntington's Disease.

Those borrowing the quilt will be responsible for all round-trip, insured, shipping charges associated with transporting the quilt.

For information on obtaining the quilt for a Huntingtons Disease event, please contact:  Jean Miller

A Display Application can be found here Quilt Display Application.


Pictures of the Quilt Squares may be seen on the following websites.

Deb Hart Quilt Website

HD Memorial Quilt


The Huntington's Disease Memorial Quilt is a project initiated, and solely maintained, by members of Hunt-Dis. It is a beautiful, lasting, memorial for those whose lives have been touched by Huntingtons Disease and our HD Angels. There are over one hundred and twenty (120) 12 x 12" squares alone, showing families living with Huntington's Disease, in Phase I of this Memorial quilt project.

Donations will help defray the cost of maintaining and protecting the Phase I section of the Huntington's Disease Memorial Quilt and for assembling and protecting all future sections.

Only actual costs for this maintenance will be used from donations received. At the end of each year, any unused funds will be donated to Huntington's Disease Society of America (HDSA) for Family Support Services. Donations may be made to:

If you would like to make a donation, please send your check or money order made out to "Hunt-Dis HD Memorial Quilt Project" and mail it to:

HD Memorial Quilt c/o
Jean E. Miller
1835 Pine Cone Circle
Clearwater, FL 33760-5349

Thank you!