Our Final Journey
Section 11 - Patient Resources
Tools For Viewing
Let's Talk About It
Section 1 - Assistive Technology
Section 2 - Divorce Issues
Section 3 - Drugs/Medications
Section 4 - Checklist, Documents, Forms
Section 5 - Employment Issues
Section 6 - Estate Planning
Advanced Directives & DNR's
Section 7 - Caregiver Resources
Patient Quality of Life: Should Doctors Guess It?
Incontinence Care
Section 8 - Children Seriously Ill
Children of The Chronically Ill
Siblings of Children with Special Health Needs
Guides To Disability Issues
End Stage Hospital & Home Care
Child With A Serious Illness
Individual Family Service Plan (IFSP)
Camps-Special Needs Children
Children's Wish Foundations
Section 9 - For Kids
Section 10 - Family Resources
Section 11 - Patient Resources
Section 12 - Financial Aids
Section 13 - Insurance
Long Term Care Insurance
Section 14 - Legal
Section 15 - Long Term Care
Section 16 - Symptom Support
Section 17 - End of Life
Section 18 - Funeral Planning
Section 19 - After Death Occurs
Hospice FAQS
Symptom Support
Behavoir Strategies
Ill Person's Feelings
Caregiving & Family Harmony
Caregiver Grief ~Article
End of Life
Comforting A Dying Person
End Stages of Life
When Someone Dies
Funeral Planning
Bereavement Fares and Discounts
Common Bonds of Caregiving
Tips For Helping Your Friend
About me
Free Greeting Cards
Estate Planning Definition
Living & Other Trusts
Wills & Beneficiaries
State Laws On Wills
Conservator~Guardianship Definitions
Insurance Issues
Avoiding Probate
Prescription Drug Program I
Prescription Drug Cards II
Disability & SSDI Insurance Questions
Long Term Care Insurance
Employment Issues
Divorce Issues
State Laws-Statutes
Making A Personal File
Emergency Info Form
Emergency Planning
Health Care Surrogate
Forms, Checklist
Family Resources
Patient Resources
Rehab Tools-Assistive Tech. Categories
State Map-Ombudsman Program
NH Your Rights-Fact Sheets
Nursing Homes and Your Rights - Factsheets for some seriously ill or their caregivers.
Long Term Care-Facts & Rights
State & Federal Resources
Drug Resources
Grief & Sorrow
When death nears - Signs and Symptoms
Some Facts About Artificial Nutrition and Hydration
Things To Consider-Artificial Nutrition and Hydration

Section 11
Patient Resources
Upon Learning You're Dying
A Dying Person's Guide To Dying
Advice to remember in those first few days after you learn the bad news;  things you need to know from your doctors and other health care staff

A Guide To First Steps (after learning diagnosis)- From "On Our Own Terms" Bill Moyers on dying: some suggested first steps for those facing a serious illness

Tapestry of Support  - A description of how patients can create a support system for themselves, including a medical team, hospice team, clergy, social workers, family, friends, co-workers and others, and directs users to some of the many on-line resources available. No registration is required.
  • It's Time To Talk-The Most Important Conversations - In Adobe/PDF format, bottom of article "Where To Start" tips to help you talk to doctors, loved ones and yourself.

    Learning about specific illnesses  - from Handbook For Mortals. Regardless of your illness, you are likely to share many concerns with others who face life-threatening disease, including the fears, worries, and needs for information and support that accompany this critical time in your life. Your particular illness will shape some of what you can expect to happen, and even how much can be predicted.  It helps to know that doctors often can give only very general guidance on how long you will live, and what problems are likely to arise.  Talking about your prognosis; Questions you want to have answered; Keeping up with your prognosis; concerns about: heart disease/cancer/lung disease/kidney failure/HIV-AIDS/dementia and dying when very old.

    Thoughts for Someone Who's Dying   - Our culture does not handle dying very well. It's no longer a part of our everyday lives as it was for our ancestors. We don't look upon it as directly as they did. We don't live with it as closely. Most of us don't participate in it as personally. So when the news comes that we're dying, we're at a definite loss. We have so little background for knowing what to do. It all seems so unfamiliar and frightening. This can be a very upsetting time for everyone. Following are various ideas to help you through this time.

    When You're Ill or Incapacitated - Where you are ill or incapacitated affects how you are ill or incapacitated. You may be lying in a hospital bed when you read these words, or you may be in another type of healthcare facility. You may be at home, or in the home of another. Every environment establishes its own limits and calls for unique responses.  You'll need to adapt the thoughts that follow for your own setting and for the changing course of your life. Some ideas will work best early in your experience, while others will be better suited for later. You'll know. Use what will help you. Pass over what doesn't. Personalize this time to make it your own. Develop your own notions. Devise your own solutions. 
    When You're in Transition   - You may have lost some part of yourself, your physical health, your emotional well-being, your spiritual wholeness. You may be leaving behind your job, or your home, or your family. You may be called upon to say farewell to your innocence or security, your hopes or dreams, your past or future. The writing here is from the book, Welcoming Change: Finding Hope in Life's Transitions by James E. Miller. It describes how all human transitions are made up of a three-fold process, involving a beginning (which is really an ending), an interim period (when it seems like not much is happening but actually a lot is going on), and an ending (which is really a new beginning in life). There is also a Willowgreen videotape entitled Nothing Is Permanent Except Change: Learning to Manage Transition in Your Life. Both are available for purchase.
    Your Rights

    Bill of Rights And Responsibilities For Terminally ill Patients- A . Personal Dignity And Privacy;  B. Informed Participation; and  C. Competent Care
    The Emotional Challenges
    Ultimate Emotional Challenge  - A dying person is grieving the loss of control over life, of body image, of normal physical functions, mobility and strength, freedom and independence, security, and the illusion of immortality. He is also grieving the loss of an earthly future, and reorienting himself to an unknowable destiny. At the same time, an emotionally healthy dying person will be trying to satisfy his survival drive by adapting to this new phase, making the most of life at the moment, calling in loved ones, examining and appreciating his own joys and accomplishments

    Emotional Challenges From Modern Maturity
    -How to Be With a Dying Person

    Enduring and Changing from Handbook For Mortals. Consider how you can best meet the challenges that await you. Be compassionate toward yourself. Allow yourself to find a measure of joy in your life, despite the sadness you are sure to feel. Extending the same respect, concern, and affection to yourself that you would offer someone else will help you live fully while dying.

    Living With Serious Illness - Handbook for Mortals Living with a serious illness can open up an unexpected variety of new possibilities. Serious illness can be a time of growth, meaning, and healing. Many people find, often to their surprise, that the period of time when life may be short is a very precious time. When you are dying, you should do those things you have always wanted to do. Families and friends may want to hear your old stories one more time and to share with you their hopes and dreams and worries. They may look to you for blessings and advice. You and those you love will often look to a shared faith in God, nature, and each other to make some sense of life and death.

    Depression-For The Patient - Physician Information:  Depression saps a person's energy, steals the pleasure in life, and even makes it hard to eat, sleep, talk, concentrate, or hold down a job. Just recognizing depression can be a sizable hurdle in itself. It may seem impossible to believe right now, but depression is treatable. You don't have to--or deserve to--live with such an empty feeling.
    Communication With Your Doctor[s]

    Talking With Your Doctor- - Handbook For Mortals.  When you put something into words, sometimes it is more "real" than if you hadn't mentioned it. Often, however, the future becomes less threatening when you name and describe it. Until then, your thoughts and feelings are often too vague to confront and manage. And, of course, you might be afraid of what kind of response you will get when you speak of dying, pain, and fear of what is likely to happen to you. Although doctors are supposed to take care of sick and dying patients, you might be afraid your doctor will think you are "giving up" and give up on you, too.  Know what you should expect from your doctor; choosing a doctor; Getting the most out of each visit with your doctor; dress for success; Set the stage for a successful conversation; When you are hesitant to ask questions.