Applying Palliative Care Principles to Children - This is the first in a four-part series concerning pediatric end-of-life issues. Other articles will
focus on bereavement issues, ethics, advanced care planning, and research into pediatric end-of-life care.
Excellent information from The Medical Center of Central Georgia:
Please click on the following for information on agencies who provide
wishes for seriously ill children.
No words can describe what it is like to know that your child is not going to live to be an adult. You can
comfort your child during her lifetime, and heal with your family in the future. Seriously ill infants; Sudden causes
of childhood death; Fatal chronic illnesses with intact intellect; Communication with children; Rare disorders and Disorders
with impaired consciousness |
Respite for
Children with Disabilities and Chronic or Terminal Illnesses - Respite programs provide temporary relief for families or caregivers. Additional family
benefits include: allowing the family to engage in daily activities thus decreasing their feelings of isolation; providing
the family with rest and relaxation; improving the family's ability to cope with daily responsibilities; maintaining the family's
stability during crisis situations; helping preserve the family and more
Songs Of
Love - A not-for-profit organization that creates personalized songs for chronically and terminally ill children
and young adults. Songwriters, singers, and instrumentalists donate their talents to produce one-of-a-kind songs.
Standby Guardianship~Minors - The purpose of standby guardianship is to allow parents, who have chronic, debilitating,
or terminal medical conditions or illnesses, to make care and custody plans for their children now that will become effective at some future date, without having to legally transfer decision-making
power.
When A Child Is Dying
Information from Finding Our Way an article that includes tips for parents for coping with the illness.
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