Our Final Journey
Turning Points in Illness and Care
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Section 7 - Caregiver Resources
Patient Quality of Life: Should Doctors Guess It?
Incontinence Care
Section 8 - Children Seriously Ill
Children of The Chronically Ill
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Guides To Disability Issues
End Stage Hospital & Home Care
Child With A Serious Illness
Individual Family Service Plan (IFSP)
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Section 9 - For Kids
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Section 16 - Symptom Support
Section 17 - End of Life
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Section 19 - After Death Occurs
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Ill Person's Feelings
Caregiving & Family Harmony
Caregiver Grief ~Article
End of Life
Comforting A Dying Person
End Stages of Life
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Long Term Care-Facts & Rights
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When death nears - Signs and Symptoms
Some Facts About Artificial Nutrition and Hydration
Things To Consider-Artificial Nutrition and Hydration
Turning Points in Illness and Care
HAVE YOU REACHED A TURNING POINT?

People who suffer from chronic degenerative diseases can reach a point where they feel that the benefits of treatment are no longer worth the pain or
discomfort. 
 
If you believe you have reached such a turning point, it is important to tell your physician what your are feeling.

While it is possible that the turning point from a treatable illness to a terminal one has been reached, it is also possible that the difficult medical treatments have made the situation seem worse than it actually is.

Before taking any action you should be sure that you have considered all the
options.
  • If you have reached such a point, you may wish to change the kind of
    treatment you are receiving, perhaps entering a hospice program.  This is avery important decision that you should discuss with your family andphysician.
  • If you have a chronic progressive illness, there is usually not a specific
    time when it becomes terminal.  It just slowly gets worse and you may reach a point where you simply don't want to receive any more treatment.
  • Dealing with a serious illness can make you depressed, possibly to the
    point where you feel that life is not worth living anymore.  Before acting on these feelings, however, check with a doctor to find out if you have clinical depression - a psychological condition that can often be helped. Medications or counseling may set you back on a more hopeful track.

ASK YOUR PHYSICIAN
  • How am I responding to medical treatment?
  • How can you tell if the treatment is working?
  • What are my options?
 
ASK YOUR PHYSICIAN continued
  • What are the benefits and risks of those options?
  • What is your professional opinion about my condition?
Talk to your physicians about your concerns.

Before taking any action you should be sure that you have considered all the
options.

Ask yourself the following:
  • What is important to you?
  • How is your illness now affecting you physically and emotionally?
  • Is the number of good days far outnumbering the bad days?
  • How do you feel about the medical treatment you have been receiving?
  • Have there been difficult or painful side effects?
  • How is this affecting your loved ones?
Even if you make choices that seem right today, it is likely that you will want to change them as your get older or things change in your life. The purpose of this website is to help explain some of the choices you can make, whether you are still healthy or have a serious illness, in order to make things easier for you and your family.

Decisions you make and share with others, while you are healthy, will most
likely be better than decisions that others make for you if you're very
sick.

Just remember, there is no "right choice" or "wrong choice".  It is YOUR choice.  You can decide how to live the last days of your life, but you must think about these issues now and discuss them with your family and your doctor to make the best decisions for yourself and loved ones.

Source: Choices and Conversations

A Guide To End of Life Care For Rhode Island Families" published by Aging 2000
Information is In PDF format

Ironically one of the contributor to this guide is Jean E Miller, a nurse!